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#BeTheGood, Hemophilia Federation of America (HFA)

Tomorrow marks 30 years of World AIDS Day. We should never forget the devastating loss of more than 10,000 #bleedingdisorders community members since the 1980s to HIV/AIDS from tainted blood. That tragic history, however, led to ensuring a safer blood supply for all.

Apply for our Summer 2019 Policy, Advocacy and Government Relations Internship! Interns live in D.C. for 10 weeks from May to August to work on projects, attend congressional hearings and meetings on Capitol Hill and much more! bit.ly/HFA2019Intern

Yesterday’s ruling striking down the Affordable Care Act as unconstitutional is something we’re watching closely. The court did NOT tell the government to stop enforcing the ACA so the ruling should not have an immediate impact on people's health coverage. bit.ly/HFA_TXvUS1

Most people experience some form of an insurance frustration while dealing with their bleeding disorder. If those frustrations have led to a delay or denial of care or have otherwise impacted your care, let Project CALLS know: buff.ly/2GwLdtZ

As news has circulated about Friday's decision in Texas vs United States regarding the Affordable Care Act, we've received questions about what's next. Read more in the latest update to Word From Washington: bit.ly/HFA_TXvUS2

Patient advocate Sonji Wilkes of Hemophilia Federation of America (HFA) just testified during Energy & Commerce Democrats hearing on her experience with a #SurpriseMedicalBill of $50,000 despite going to an in-network provider.

There are unfamiliar motorcycles casing my neighborhood tonight, I live@just off Nicollet. Typically the only people driving through my neighborhood live here. One was stopped and asked why they are here? Response -just out for a drive. Doubtful. looking for an escape route?

Many barriers are yet to be broken down to ensure equitable and accessible care for women and girls living with, or carriers of, hemophilia around the world. Learn more 👇

Now we know why plowing takes so long in Mpls. Their clocks are off by 24 hours #mplsmayor

NBC's interview of Bode Miller - shameful...

If only Bradley's arm was longer. Best photo ever. #oscars

State gains 2,600 jobs in March. Minnesota labor force surpasses 3 million for the first time in state history: goo.gl/uxrMHk

Happy to welcome Kristin Beckmann - Kristin Beckmann - to the Mayor's Office team as new Deputy Mayor.

federalregister.gov/a/2014-15990 #gov20

@DeltaAssist

@DeltaAssist, had my last worst experience with gogoinflight. Not going to use it ever again!

Fashionable activism - #RedTieChallenge. #NHFWD

@DELTAASSIST I can't stand the fact that you move my seats in economy comfort! Stop! I like the seat I pick when I book!