God bless you, Dr. Martin Makary, Vinay Prasad MD MPH, and Secretary Kennedy.🙏🩷 You are the leadership that the U.S. FDA and the American people have needed. #EndALS Donald J. Trump President Donald J. Trump Marty Makary MD, MPH

Shah Minokadeh, M.D. Dr. Martin Makary Vinay Prasad MD MPH Secretary Kennedy U.S. FDA Donald J. Trump President Donald J. Trump Marty Makary MD, MPH Impressive interview on Fox last night. I hope they have great success

.Dr. Martin Makary Vinay Prasad MD MPH, as a physician living with ALS, I urge you to grant NurOwn accelerated approval to break a 156-year cycle of despair for a 100% fatal disease. ALS patients, with a median survival of 2–3 years, cannot wait 5+ years for Phase 3b trial results,

This is amazing! nytimes.com/2025/05/15/hea…

We’re proud to announce the name of our upcoming Phase 3b ALS clinical trial: ENDURANCE – A Testament to Strength and Perseverance in the Fight Against ALS. 📌 It is posted here: bit.ly/4mi4IaP The trial is not yet enrolling. We will announce when enrollment begins.

My partner Serena’s mom is dying from ALS. The NIH grant supporting the scientists in my lab working hard on a cure was just terminated. No words

Marty Makary MD, MPH Secretary Kennedy congratulations to BrainStorm but 2028, can you give access to #NurOwn to patients that don’t fit your profile, meanwhile all this waste of time

I am just sad that Wayne Britt has passed away. He first had PLS then was told he had ALS. He loved life, he loved art, and I loved him too. Dear God please help me fight with these diseases with a strong punch. Give me the energy to win.

.BrainStorm has always gone beyond its anticipated completion date, but even so, that is topline results 20 YEARS after Phase 1 & 16 years after #Nurown granted FDA "Fast Track Designation" Dr. Martin Makary Secretary Kennedy FDA Biologics, PLEASE invite them to apply for Accelerated

A reminder that #NationalPoppyDay is this Friday. The red poppy reminds Americans of the sacrifices made by our veterans while protecting our freedoms. ALA National HQ has put together resources for local use & education about #PoppyDay. legion.org/information-ce… #LegionFamily

.Dr. Martin Makary FDA Biologics Secretary Kennedy, as a physician living with ALS, I urge you to grant NurOwn accelerated approval to break a 156-year cycle of despair for a 100% fatal disease. ALS patients, with a median survival of 2–3 years, cannot wait 5+ years for Phase 3b trial results,

Trump ripped NIH funding away from scientists already working on cures for cancer, Alzheimer’s, and more. For me, this is personal.

Does anyone know of galactose free, dairy free formula in Pakistan? A family is trying to find the right formula… but they have limited options. Lactose free doesn’t mean galactose free. I can’t read the labels. #galactosemia #raredisease #Pakistan

Most politicians start with purpose—but politics reshapes them. Democrats and Republicans often enter with different paths and motivations. But over time, money, power, pressure, and access reshape what they fight for—and who they listen to. Money changes everyone. 🤑

#OTD the Iron Horse, Lou Gehrig, started his streak of 2,130 consecutive games. His streak and HOF career were cut short when he was diagnosed with #ALS at the age of 39. MLB created LG4 day in his honor. Today & throughout the next week at ballparks across the US, baseball

🏉 Remembering ROB BURROW, one year on 😢 BLESS YOU for baring your vulnerability to the world with such dignity, your wicked wit and genuine humility to raise the profile of #MND, while you battled this brutal disease. WE will never forget. THOUGHTS are with Rob's loved ones.

Today marks one year since the death of Rob Burrow - a hero, inspiration, and beacon of courage to so many. We remember Rob with deep gratitude, love, and admiration. His legacy lives on in every stride we all take towards a world free from MND 💙

Dr. Hardik Patel 🩺💉 Vinita Agrawal Alok Sharma Namesh kamat Gopambuj Singh Rathod Jasmine Sethi Dr Pallavi Mahato Sakthi Rajagopal Nephrology | Karger Karger Publishers Please mention #ALECT2 which is the 2nd most common type of #renal amyloidosis. ALECT2 disproportionately impacts Mexican Americans (not all Latinos) and people of MENA, Indian & Chinese ethnicity. • Lost my Mexican Mom in 2003 to amyloidosis. • Took nearly 10 yrs to be

Lou Gehrig. A legend lost to ALS at 37. 82 years later, no cure. No end in sight. On June 3 at T-Mobile Park, Steve Gleason - "Live Impossible" (#37) will throw the first pitch with his son, River. Let’s push for a cure. Learn more: answerals.org #LouGehrigDay #mlb Team Gleason

#NORD's inaugural Rare Disease Scientific Symposium is now underway, kicking off two days focused on scientific breakthroughs and new opportunities for collaboration. With 95% of the 10,000+ known rare diseases lacking approved treatments, the stakes couldn't be higher. As NORD