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Wrapping up the first day of the SCOPE workshop. Great work reducing infections in children on dialysis! ⁦Children's Hospital Association⁩ ⁦Brad Warady⁩ #SCOPECollaborative

We enjoyed our 1st SCOPE Workshop on Minneapolis this week! Thanks to the organizers for a warm welcome as their newest members.

The NAPRTCS #Cystinosis registry has enrolled over 100 pediatric participants since 2018. Want to learn more? Join our webinar on June 9th. Attendance is open to the entire academic community and providers of adult patients are welcome. Register: tinyurl.com/ndkd96tt

Tune in tomorrow to learn more about the NAPRTCS Cystinosis Registry. We're excited to share our progress and future plans. Clinicians caring for both pediatric and adult patients are welcome to attend. #Cystinosis #CKD #ESKD Register here: tinyurl.com/ndkd96tt

Fantastic and productive meeting with ⁦CDC⁩ and ⁦ASN EPC⁩ to identify core interventions to reduce PD-related infections ! Let’s target zero infections in home dialysis !!! ⁦suzanne watnick⁩ ⁦Alicia Neu⁩

Congrats to Cozumel, Alison Hewitt, Rene Shumate and team on their Johns Hopkins Children's Center #InnovationGrant , “Enhanced Dissemination of Solid Organ Transplant Transition of Care Education” hopkinsmedicine.org/johns-hopkins-…

Happening now! The @NAPRTCS Fall Meeting welcomes over 185 registrants from 73 pediatric nephrology programs in 7 countries! We also have attendees from 10 of our sponsor partners. Follow us for updates throughout the meeting. #NAPRTCS2023

First up, @Vikas_R_D provides an update on the dd-cfDNA project. So far in 2023, centers have entered over 250 new forms. This more than doubled the data in our registry! Participation is open to new centers and data entry is compensated. #NAPRTCS2023

Next, Brad Warady and stuart goldstein present our current and upcoming clinical trials. The NAPRTCS Clinical Trials Committee works closely with our industry partners to plan and implement studies to help improve the health of pediatric #CKD and #ESKD patients. #NAPRTCS2023

Tune in now to watch Jodi Smith give an update from the NAPRTCS Registry Committee. Recent work includes a comprehensive review of the existing Benchmarking Reports. Look for new and improved Reports early next year! #NAPRTCS2023

Next, Jodi Smith provides an update on the NAPRTCS #Cystinosis Registry. The registry now includes data on 104 participants with up to 4 years of follow up so far. If you follow even a single cystinosis patients at your center, we’d love to have you join! #NAPRTCS2023

Up next, Sara Boynton spotlights centers that have excelled in the past year. We are so grateful for the hard work done by all of our NAPRTCS centers. Need help getting caught up? We’re here to help! Resources, including 1 on 1 training calls, are available. #NAPRTCS2023

Nathan Paziuk of Modern Craft provides an update from the NAPRTCS IT Committee. They continue to work on ways to reduce the burden of data entry. Latest update - NAPRTCS data reports are now available in EPIC! #NAPRTCS2023

The NAPRTCS Communication Committee is hard at work keeping you informed through newsletters, webinars, reports, and social media. Have suggestions for improved communication? Let us know! Center Status Reports have been very successful! #NAPRTCS2023

Taylor House of University of Wisconsin Department of Pediatrics presents information about her upcoming project examining communication around kidney transplant preparation directed at adolescent and young adult patients. Stay tuned for additional information that will go out by email next week. #NAPRTCS2023

Next up, Ari Pollack of Seattle Children's shares information about Kids CoLab! This multicenter study looks at cooperative decision making in the adolescent #CKD and #ESKD population. The project will engage patients, caregivers, and clinicians. #NAPRTCS2023

The NAPRTCS Patient and Family Advisory Council is looking for additional members. Pediatric patients ≥ 18 years impacted by #CKD & #ESKD and their families are eligible to join. Please share with your patients so they can help guide our efforts. #NAPRTCS2023

That’s a wrap! Thank you to everyone who attended #NAPRTCS2023. We look forward to seeing you again next year. Save the date for March 2024!

Just wrapped up another great SCOPE meeting in Chicago! Children's Hospital Association Brad Warady