
Ian Lev
@lev_ian
I have a rare form of MND known as PLS
ID: 1361362768897716230
15-02-2021 17:12:47
1,1K Tweet
577 Followers
340 Following

Looking forward to getting the band back together in December to keep on fighting for the MND Association community and in memory of our great friend Rob …..We go again… going to be emotional xx









Please sign this petition for MotorNeuroneDisease with the SOD1 gene variant. Absolutely crucial for them, but also to get authorities "thinking properly" about potential personalised treatments being studied for various genes West Sussex North MNDA West Sussex South West Surrey MNDA MNDA-EastKent



We were interested to hear about the huge financial impact of living with #MND. Research from MND Campaigns shows people living with MND spend on average £14,500 a year just to meet the additional costs of the disease. Some families report spending far more.


My latest poem “Running Home for Christmas” can be read on my Facebook page Ian Lev - Raising Awareness of MND! - POETS Day! It would be be good if this could be shared with Sir Kev! BBC Breakfast Sally Nugent Keep Strong 💪 Keep Positive!😎







