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Are you pregnant & in the UK? We need your help. We have translated a survey & need to test if it works in a UK context. It only takes 5 mins. It doesn't matter if you are active or not. Please share with pregnant people you know. Thank you! 💙 Dr Sally Pezaro PhD FRCM MSc SFHEA PgCAPHE RM Chris Smyth PhD

Fascinating new article. Effects of compression garments on balance in hypermobile Ehlers-Danlos syndrome: a randomized controlled trial tandfonline.com/doi/full/10.10…

So proud of my sister 💓💓💓

If you have a child aged 6-12 years with symptomatic hypermobility please consider participation in this study. We want to understand the symptoms and impact better so that we can develop our assessment Spider tool for younger children. hypermobility.org The Ehlers-Danlos Society Ehlers-Danlos Support UK

Brilliant 🤩

2 new articles out on pregnancy & birth outcomes, experiences & tools to support people with hypermobile #EhlersDanlosSyndrome & #HypermobilitySpecrumDisorders 1 mdpi.com/1660-4601/20/2… 2 mdpi.com/1660-4601/20/2… Dr Sally Pezaro PhD FRCM MSc SFHEA PgCAPHE RM @LMBell_ Emma Reinhold hEDStogether Paul Magee

Anshu …my nephew 💓The side effects of being on long term cancer treatment are sadly taking their toll. He has tried to juggle a few hours at school around his hospital treatment, but now has been too unwell and hasn’t been to school for over 3 months.justgiving.com/crowdfunding/A…

My husband doing what he does best 🤩 #power #strength instagram.com/stories/fitcur…

Coventry University: Exploring the use of DEFO for shoulder symptoms in patients with hypermobile Ehlers-Danlos syndrome (hEDS) and hypermobility spectrum disorders (HSD). Prof Shea Palmer Anna Higo Dr Gemma Pearce The Ehlers-Danlos Society

Model railway fan creates fictional town from cereal boxes bbc.in/44g8KYJ

So proud of my sister Dr Mandy Graham (Reader, Professional Lead @ St George’s University, London, MSc Occupational Therapy) Dr Mandy Graham presenting her PhD research in Singapore- OT maternal mental health - saot.org.sg/ot-practice/re… ♥️🥂🌟

Shoulder symptoms in hEDS/HSD are common yet significant gaps in knowledge remain. This NEW paper reviews what we currently know about non-surgical interventions like exercise, taping and compression garments. sciencedirect.com/science/articl… First publication for Anna Higo's PhD 👏

The project page about Anna Higo's PhD on the hypermobile shoulder has been updated! A review paper has been published and ethics has now been approved for a survey that will go live soon so watch this space to take part! hedstogether.com/projects/suppo… Anna Higo

Congratulations Anna Higo 🙌

Are you hEDS/HSD experiencing shoulder symptoms and living in the UK? Please take our 20minute survey exploring experiences and perceptions to the use of specialist orthotic clothing known as Dynamic Elastomeric Fabric Orthoses (DEFO). Please share and RT app.onlinesurveys.jisc.ac.uk/s/coventry/the…

Research into conservative management for hEDS/HSD with shoulder symptoms is severely lacking. Your participation will help shape future research 🙏. #HSD #hEDS #shoulders Dr Gemma Pearce Behnam Liaghat, PhD Jason Tallis Prof Shea Palmer Emma Reinhold Ehlers-Danlos Support UK hypermobility.org

Do you have hypermobile #EhlersDanlosSyndrome or a similar diagnosis? Do you have issues with your shoulder? Are you an adult living in the UK? Please complete this survey to let us know your experience & if you might want shoulder support or not 😊 app.onlinesurveys.jisc.ac.uk/s/coventry/the…

Check out Anna Higo's blog with some fantastic news! Anna Higo In the blog she summarises a recent publication on shoulder treatments for hypermobility & launches a NEW SURVEY! Have a look, share with others and take part 😁❤ THANK YOU 🙏 hedstogether.com/annas-blog-abo…

Check this out 😃Please share the survey 🙏🏻 app.onlinesurveys.jisc.ac.uk/s/coventry/the… Jo Gibson Lennard Funk Chartered Society of Physiotherapy (CSP) Chrissy Holmes Emma Reinhold BendyBrain: Dr Jessica Eccles Jane Green MBE FCCT connective 😶