LyLe Foreningen (@lyle_foreningen) 's Twitter Profile
LyLe Foreningen

@lyle_foreningen

LyLe -Patientgroup for Lymphoma, Leukemia and MDS in Denmark. We have existed since 2007, and very active in sharing informations with you.

ID: 2523463750

linkhttp://www.lyle.dk calendar_today02-05-2014 14:53:51

4,4K Tweet

498 Followers

671 Following

International CML Foundation (@icmlf) 's Twitter Profile Photo

Save the date for the iCMLf Forum: Advancing Treatment-Free Remission in CML Worldwide – a tradition at #ASH24. Connect with experts & explore future directions in CML care. Register now: buff.ly/40h6XCB #iCMLf #CML #ASH24 ASH

Save the date for the iCMLf Forum: Advancing Treatment-Free Remission in CML Worldwide – a tradition at #ASH24. Connect with experts & explore future directions in CML care.

Register now: buff.ly/40h6XCB

#iCMLf #CML #ASH24 <a href="/ASH_hematology/">ASH</a>
CLL Ireland (@cllireland) 's Twitter Profile Photo

Vaccination is so important for #CLL patients. The UK CLL Forum and our goods friends in CLLSA have put together information on what vaccines patients should have. Unfortunately, Shingrix is not yet available free in Ireland. Dr Colm Henry, CCO HSE Ireland HSE Ireland NCCP Pádraig O'Sullivan TD

Vaccination is so important for #CLL patients.
The UK CLL Forum and our goods friends in <a href="/CLLSupport/">CLLSA</a> have put together information on what vaccines patients should have.
Unfortunately, Shingrix is not yet available free in Ireland.
<a href="/CcoHse/">Dr Colm Henry, CCO HSE Ireland</a> <a href="/HSELive/">HSE Ireland</a> 
<a href="/hseNCCP/">NCCP</a> <a href="/padraigosull/">Pádraig O'Sullivan TD</a>
Acute Leukemia Advocates Network (ALAN) (@acuteleuk) 's Twitter Profile Photo

If you are a caregiver, remember: it’s okay to take a break! Caring for others can be incredibly rewarding but it can also be physically and emotionally draining. Scan the QR code and register you #BeLeukemiaAware #SelfCareFirst #MentalWellbeing #PrioritizeYourself #WebinarAlert

If you are a caregiver, remember: it’s okay to take a break! Caring for others can be incredibly rewarding but it can also be physically and emotionally draining.
Scan the QR code and register you
#BeLeukemiaAware #SelfCareFirst #MentalWellbeing #PrioritizeYourself #WebinarAlert
MDS Alliance (@mdsalliance) 's Twitter Profile Photo

Your voice matters! The #MDS Alliance global survey is live! If you're an MDS patient or carer, your experiences can shape the future of care. Help us advocate for better treatments and support. Take the survey: bit.ly/2024MDSGlobalS… #Survey2024 #MDSAwareness

Your voice matters! The #MDS Alliance global survey is live! If you're an MDS patient or carer, your experiences can shape the future of care. Help us advocate for better treatments and support.
Take the survey: bit.ly/2024MDSGlobalS…  
#Survey2024  #MDSAwareness
Lymphoma Coalition (@knowyournodes) 's Twitter Profile Photo

🧠 The emotional cost of lymphoma Caring for someone with lymphoma is emotionally challenging. According to Lymphoma Coalition’s Global Health Expenditure Report, 91% of care partners experience psychosocial stress due to their loved one’s diagnosis. 🎯 On Universal Health

🧠 The emotional cost of lymphoma

Caring for someone with lymphoma is emotionally challenging. According to Lymphoma Coalition’s Global Health Expenditure Report, 91% of care partners experience psychosocial stress due to their loved one’s diagnosis.

🎯 On Universal Health
MDS Foundation (@mdsfoundation) 's Twitter Profile Photo

Join us for a free webinar, MDS Nutrition: Fueling Your Body for Strength, on February 4, 2025. This virtual session will offer insights from Margaret N. Martin, RD, and Heather Knutson, RD, Board-Certified in Oncology Nutrition. Register today: bit.ly/49h0BWt

Join us for a free webinar, MDS Nutrition: Fueling Your Body for Strength, on February 4, 2025.

This virtual session will offer insights from Margaret N. Martin, RD, and Heather Knutson, RD, Board-Certified in Oncology Nutrition.

Register today: bit.ly/49h0BWt
Acute Leukemia Advocates Network (ALAN) (@acuteleuk) 's Twitter Profile Photo

✨ Take it one day, one moment, one action at a time. Progress isn’t about speed; it’s about consistency and determination 💬 What’s one small step you can take today toward your goals? Share below #OneStepAtATime #ProgressNotPerfection #KeepGoing #alan #december #patientadvocacy

✨ Take it one day, one moment, one action at a time. Progress isn’t about speed; it’s about consistency and determination
💬 What’s one small step you can take today toward your goals? Share below
#OneStepAtATime #ProgressNotPerfection #KeepGoing #alan #december #patientadvocacy
Know AML 🔴⚫️ (@know_aml) 's Twitter Profile Photo

Meet our final ambassador, Erik Aerts, president of The Haematology Nurses and Healthcare Professionals Group (HNHCP). Erik has an extensive knowledge of #AcuteMyeloidLeukemia ❤️ Catch up on his most recent interview, here: loom.ly/xl7xSqE #KnowAML

Meet our final ambassador, Erik Aerts, president of The Haematology Nurses and Healthcare Professionals Group (<a href="/hnhcp/">HNHCP</a>). Erik has an extensive knowledge of #AcuteMyeloidLeukemia ❤️ 

Catch up on his most recent interview, here: loom.ly/xl7xSqE  

#KnowAML
Lymphoma Coalition (@knowyournodes) 's Twitter Profile Photo

🌍 Access to treatment: A global challenge Access to specialists is critical for lymphoma care, yet Lymphoma Coalition’s Global Health Expenditure Report shows that 24% of patients in lower-income countries struggle to see a specialist, compared to just 8% in high-income

🌍 Access to treatment: A global challenge

Access to specialists is critical for lymphoma care, yet Lymphoma Coalition’s Global Health Expenditure Report shows that 24% of patients in lower-income countries struggle to see a specialist, compared to just 8% in high-income
Kræftens Bekæmpelse (@cancer_dk) 's Twitter Profile Photo

Rigtig godt nyt, at Folketinget har vedtaget en ny lov, der lemper kravene til sygemeldte, som har et job at vende tilbage til🙏En tidlig julegave til blandt andre kræftpatienter, der slipper for unødvendig opfølgning i kommunen🎁Nu ser vi frem til den varslede reform #sundpol

Rigtig godt nyt, at <a href="/folketinget/">Folketinget</a> har vedtaget en ny lov, der lemper kravene til sygemeldte, som har et job at vende tilbage til🙏En tidlig julegave til blandt andre kræftpatienter, der slipper for unødvendig opfølgning i kommunen🎁Nu ser vi frem til den varslede reform #sundpol
MDS Foundation (@mdsfoundation) 's Twitter Profile Photo

The vital work of The MDS Foundation continues far beyond this year, making your support for HopeWorks 2024 more important than ever. Together, we can make an even greater impact and touch more lives. Join us in this meaningful mission. 💙 Donate today: mdsdonate.org

The vital work of The MDS Foundation continues far beyond this year, making your support for HopeWorks 2024 more important than ever.

Together, we can make an even greater impact and touch more lives. Join us in this meaningful mission. 💙

Donate today: mdsdonate.org
Lymphoma Coalition (@knowyournodes) 's Twitter Profile Photo

✨ Warm wishes to all this holiday season. Gratitude is extended to every individual, organisation, and community working to improve the lives of those affected by lymphoma. May this time of year bring moments of reflection, connection, and hope.

✨ Warm wishes to all this holiday season. 
 
Gratitude is extended to every individual, organisation, and community working to improve the lives of those affected by lymphoma. 
 
May this time of year bring moments of reflection, connection, and hope.
Heidi Smollerup (@heidismollerup) 's Twitter Profile Photo

Kvinde med akut leukæmi kan ikke få forlænget sygedagpenge. Du læste rigtigt! Der er brug for at lovgivningen sørger for værdighed i sygedagpengesystemet tv2nord.dk/broenderslev/i… Jens Joel #arbejde Kræftens Bekæmpelse @sundpol

Lymphoma Coalition (@knowyournodes) 's Twitter Profile Photo

⏳ Faster Diagnosis, Better Outcomes In 2024, 68% of individuals with lymphoma and CLL received a diagnosis within three months of first seeking medical care – an increase from 61% in 2022 and 50% in 2020. This progress highlights the growing impact of awareness and early

Acute Leukemia Advocates Network (ALAN) (@acuteleuk) 's Twitter Profile Photo

#RareDiseaseDay is a global event aimed at raising awareness about the challenges faced by those living with rare diseases #RareDiseaseDay #ShineALightOnRare #SupportRareDiseases #RareButStrong #TogetherForRare #BeLeukemiaAware #AlanAcuteLeukemia #Alan #PatientAdovcacy #february

#RareDiseaseDay is a global event aimed at raising awareness about the challenges faced by those living with rare diseases
#RareDiseaseDay #ShineALightOnRare #SupportRareDiseases #RareButStrong #TogetherForRare #BeLeukemiaAware #AlanAcuteLeukemia #Alan #PatientAdovcacy #february
MPNAdvocatesNetwork (@gmpnan) 's Twitter Profile Photo

🩸Raising Awareness for MPNs on #RareDiseaseDay 🔬 MPNs are rare blood disorders that affect the way the body produces blood cells. We stand together to raise awareness, support those affected, and advocate for better research and care. #MPNAwareness #RareButStrong

CML AdvocatesNetwork (@cmlnet) 's Twitter Profile Photo

🔬 Did you know that #CML can affect children as well? This rare condition is known as Pediatric CML. For those diagnosed, the journey can be challenging. Unlike adult CML, pediatric CML cases require specialized treatment approaches, and research is still evolving to understand

🔬 Did you know that #CML can affect children as well? This rare condition is known as Pediatric CML. For those diagnosed, the journey can be challenging. Unlike adult CML, pediatric CML cases require specialized treatment approaches, and research is still evolving to understand
CML AdvocatesNetwork (@cmlnet) 's Twitter Profile Photo

We’ve just opened the registration desk in Bucharest, Romania for the 23rd CML Horizons! 🎉 🇷🇴 The team is all set and can’t wait to greet you as you arrive - come say hi, grab your badge, and let’s kick off an amazing weekend together! 💬💛 #CMLHZ25 #LearnShareGrow

We’ve just opened the registration desk in Bucharest, Romania for the 23rd CML Horizons! 🎉 🇷🇴
The team is all set and can’t wait to greet you as you arrive - come say hi, grab your badge, and let’s kick off an amazing weekend together! 💬💛
#CMLHZ25 #LearnShareGrow