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UnitedHealthcare has dropped Memorial Sloan Kettering Cancer Center from its network, leaving 20,000 cancer patients (including me) without access to our doctors and life-saving treatment starting July 1. Cancer patients cannot simply “go elsewhere.” Finding new specialists

Very significant ruling: Federal appeals court broadens ability of states to regulate ERISA health plans.

Obama finally said the quiet part out loud: if he had blacklisted reporters, arrested student protestors, or weaponized the government against dissent, the system would’ve lost its mind. But Trump does it; and half the country shrugs. That’s not democracy. That’s cult

We had a great meeting with Department of Health Care Services, Medi-Cal Behavioral Health – Policy Division. Thank you for your collaboration as we work to ensure equitable access to behavioral health treatment across CA. These conversations are key to advancing care for the #bleedingdisorders community!

Knowing your status is power. This National HIV Testing Day, take the first step toward protecting your health. Early detection saves lives. Get tested, stay informed, and take control of your health. #HIVTestingDay #KnowYourStatus #NBDF #BleedingDisorders

When you worship power, compassion will look like a sin and cruelty will look like a strength.

Wherever you fall on the political spectrum, there is something in this bill for you to dislike.

It is a broken society that mistreats the poor and the vulnerable in order to satisfy the wealthy and the powerful. It is a broken Christianity that supports this injustice rather than oppose it.

Urgent: We need to act NOW to stop the so-called “One Big Beautiful Bill” from becoming law. Call or email your Representative and urge them to vote NO on H.R. 1. Lives depend on it. Take action: bit.ly/3TlhoQL

The Senate just passed the One Big Beautiful Bill Act, a dangerous bill that puts the health and future of our bleeding disorders community at risk. 📧 Email your Representative: win.newmode.net/hemophiliafede… #BleedingDisorders #Hemophilia #RareDisease #SaveMedicaid #SaveMediCal

Now is the time for Rep. David Valadao to show he opposes harmful Medicaid cuts | Opinion fresnobee.com/opinion/editor…

Prayers for my friend and her family.

📣Senate Passes H.R. 1 — It Is Time to Activate Despite strong advocacy, it was with deep disappointment that we watched as the Senate passed the budget reconciliation bill, H.R. 1. Many within the rare disease community rely on Medicaid for vital healthcare services who will be

We know that many in our community are deeply concerned. We share those concerns and will continue to fight for access to care for all who are impacted.

Meet 2025 BDCC Future Leader Bella Li! In the clip below, Bella speaks up about why she started to advocate for others and how Future Leaders helped her gain the confidence to tell her story. Fore more info- bdcouncilca.org/future-leaders…

Living all of this. Exhausting but necessary. The medical system will not stay on stop of things and your parents will not be able to do it themselves

JUST IN: The American Academy of Pediatrics, the American College of Physicians and other major national public health groups just filed a lawsuit against RFK Jr. to defend science-backed vaccine policy. huffpost.com/entry/trump-ir…

Whether there is an actual list is beside the point. There are multiple ways of investigating who was & was not a participant in Epstein's perverted abuse. The fact that law enforcement agencies are handicapped by politicians into throwing up their hands is the real scandal.

This is outrageous!