Marcela Ferrada (@maferradastrong) 's Twitter Profile
Marcela Ferrada

@maferradastrong

Impatient patient with a rare disease/Physician/Researcher/Advocate/#RelapsingPolychondritis #VEXAS “Where there is research there is hope” views my own

ID: 3422628418

calendar_today14-08-2015 17:34:36

184 Tweet

995 Followers

382 Following

Marcela Ferrada (@maferradastrong) 's Twitter Profile Photo

Whoever approves antifungal coverage from the insurance company might need to do a google search to confirm that fluconazole doesn’t cover invasive lung aspergillosis... since explaining it is VERY BAD to be immunocompromised and have a cavitary lung lesion was sufficient!

Laurent ARNAUD (@lupusreference) 's Twitter Profile Photo

✅ #PANLAR2024 What evidence-based data do we have 🔎 for guiding the treatment of relapsing #polychondritis? FREE DOWNLOAD 📥 at: doi.org/10.55563/cline…

✅ #PANLAR2024
What evidence-based data do we have 🔎 for guiding the treatment of relapsing #polychondritis?
FREE DOWNLOAD 📥  at: doi.org/10.55563/cline…
Eduardo Martín-Nares (@drlalonares) 's Twitter Profile Photo

👉🏼 Great session with the experts “Challenges in Rheumatology - The importance of recognizing and treating rare diseases” 🔹 VEXAS 🔹 Polychondritis 🔹 Amyloidosis #PANLAR2024 Marcela Ferrada Laurent ARNAUD Sebastian Magri Panlar PANLAR joven #VEXAS #polychondritis

👉🏼 Great session with the experts “Challenges in Rheumatology - The importance of recognizing and treating rare diseases”

🔹 VEXAS
🔹 Polychondritis
🔹 Amyloidosis

#PANLAR2024 

<a href="/maferradastrong/">Marcela Ferrada</a> <a href="/Lupusreference/">Laurent ARNAUD</a> <a href="/SebaUltraTrail/">Sebastian Magri</a> <a href="/PanlarLeague/">Panlar</a> <a href="/PanlarJ/">PANLAR joven</a> #VEXAS #polychondritis
Priyanjali Pulipati (@pulipati_) 's Twitter Profile Photo

For VEXAS, think SCAMP DOCSS for manifestations and treatment approach! Marcela Ferrada S- skin C- chondritis A- arthritis M- macrocytosis P- pulmonary D- DVT O- opportunistic infections C- cytopenias S- systemic inflammation S- side effects of meds

Marcela Ferrada (@maferradastrong) 's Twitter Profile Photo

#PANLAR2024 I loved every second of it. What an awesome community. Looking forward to be part of the ongoing collaboration and amazing projects!!!

Marcela Ferrada (@maferradastrong) 's Twitter Profile Photo

What an amazing talk !!!! 💪💪💪 as always! You are such a great teacher. Ty you so much Laurent and et al for writing this manuscript. If you missed the presentation I believe it will available later in YouTube.

Peter Grayson (@petercgrayson) 's Twitter Profile Photo

Many thanks to our French colleagues for hosting the first international VEXAS Congress in Paris. The only thing that was better than the science was the friendship. We had the best time with you! Sophie Georgin-Lavialle Benjamin Terrier Arsene Mekinian Bhavisha Patel Emma M. Groarke Marcela Ferrada

Marcela Ferrada (@maferradastrong) 's Twitter Profile Photo

It's an honor to be a part of this amazing group! I hope this is the beginning of a long-term collaboration that will definitely help a lot of patients! THANK YOU! ❤️💪❤️💪Filière de santé FAI²R Sophie Georgin-Lavialle Benjamin Terrier Arsene Mekinian Kosmider olivier Peter Grayson and DBeck were

Guy Katz, MD (@guykatzmd) 's Twitter Profile Photo

As of today, there is now an FDA approved treatment for #IgG4RD! Such an exciting time for patients living with IgG4-related disease. amgen.com/newsroom/press…