Pregnancy is hard enough. Why does the choice feel like it is between getting healthcare and getting privacy? @AspenPolicyHub alum Alex Rosenblat shows that even when you try to make the right choices, you can still lose your data.

Great piece by ⁦Alex Rosenblat⁩ on the insidious ways your personal data can be collected — and how hard it is to say no. statnews.com/2023/04/07/med…

Chilling. Alex Rosenblat’s account of her efforts to protect her privacy should remind us not to lose sight of the basics: we still don’t have coherent, expansive data privacy protections in the US, even in health care settings. statnews.com/2023/04/07/med…

Holding companies accountable for compromising consumers’ sensitive health data will continue to be a top priority for FTC.

We are hiring an Interim Director/Interim Associate Director! The Interim Director will act as co-lead for the Hub working on policies/programs and supporting fellows as they learn to engage in the policy process. Full-time extension possible. Apply here: bit.ly/3KXIglc

In an excerpt from the new anthology “Supervision: On Motherhood and Surveillance,” Hannah Zeavin unpacks the thorny history of nanny cams and baby monitors, and the moral and political compromises many parents are willing to make to feel protected. wired.com/story/how-pare…

On this week's episode of the First Opinion Podcast, I talked to Alex Rosenblat about her quest to find a mysterious consent form she knew she had not signed: statnews.com/2023/05/10/dig…

JOB! Come to Georgetown University to help Meg Jones and me create an innovative, interdisciplinary new course. Our students will work with nonprofits and government agencies to poke and prod technologies, trying to answer questions to help serve the common good. georgetown.wd1.myworkdayjobs.com/en-US/Georgeto…

Are you familiar with the coercion built into medical privacy consent forms? Alex Rosenblat tracked down her own medical information to display the amorphous harm caused by invasions of privacy. Listen: trib.al/okMNJ4H

Love this helpful expertise for civilians, thanks Jon Keegan 🇺🇦 and Jesse

In 2018, Robert “Skeeter” Salim found out he had cancer under his tongue. His insurance wouldn’t approve payment for the proton therapy his doctor recommended. But Blue Cross didn’t know who Salim was. ProPublica 🧵

It’s alive!! *The Privacy Fallacy: Harm and Power in the Information Economy* is out today in paperback, hardcover, & eBook cambridge.org/core/books/pri…

Very excited to get a copy of the Privacy Fallacy, Ignacio Cofone!

Electronic medical records make sense--if they're safe. We were promised they would be. Guess what. wired.com/story/plaintex…

Enormous thank you to Sue Glueck, whose last day at Microsoft was Friday. Sue has been an *incredible* champion of the interdisciplinary tech policy community. She’s launched so many of the places and people making the world better. #thanksue 💜

Air Canada must honor refund policy invented by airline’s chatbot trib.al/s84FkPu

A thing I learned in the NBERs this week: Robust home internet access helps moms especially stay in the workforce with flexible jobs. State bans on municipal broadband networks -- passed at the behest of internet service providers -- get in the way. nber.org/papers/w32257

Have you tried to opt out of voluntary uses of your data at the doctor’s office, or struggled to get timely access to your own healthcare records from a hospital? I want to hear from you for a research project. You can sign up here forms.gle/tR6UL96uHCrtY2… or get in touch

🙌 We’re proud to spotlight Aspen Policy Academy alum Alex Rosenblat, whose latest The Markup article reveals the real-world barriers patients face accessing their own medical records, even during her child’s surgery. 📖 Read it here: themarkup.org/hello-world/20…