Marie-Claire Seeley (@mcseeley) 's Twitter Profile
Marie-Claire Seeley

@mcseeley

Clinical Nurse, PhD, CEO of The Australian POTS Foundation, advocate for those with POTS and LongCOVID

ID: 361191746

linkhttp://potsfoundation.org.au calendar_today24-08-2011 11:55:13

293 Tweet

748 Followers

456 Following

Marie-Claire Seeley (@mcseeley) 's Twitter Profile Photo

Yesterday we walked 30 km to raise funds for POTS! It was a hard slog uphill but we made it! You can still donate until the end of October. Thank you for your support!! gofund.me/a9e592f2

Marie-Claire Seeley (@mcseeley) 's Twitter Profile Photo

Looking forward to presenting at the 35th International Symposium on the Autonomic Nervous System #AAS2024 in Santa Barbara! Cerebral hypoperfusion is a major issue in #POTS—targeted research & funding are essential to uncover its causes. Let’s drive progress! ADARC @AusPOTS

Looking forward to presenting at the 35th International Symposium on the Autonomic Nervous System #AAS2024 in Santa Barbara! Cerebral hypoperfusion is a major issue in #POTS—targeted research &amp; funding are essential to uncover its causes. Let’s drive progress! <a href="/ADARC_UoA/">ADARC</a> @AusPOTS
Marie-Claire Seeley (@mcseeley) 's Twitter Profile Photo

That’s a wrap for #AAS2024! Thrilled to have received the trainee poster prize for our work on cerebral hypoperfusion in #POTS. Grateful for the recognition and the research shared this year! ⁦ADARC⁩ ⁦American Autonomic Society⁩ ⁦SAHMRI⁩ ⁦RBRC Uni SA⁩

That’s a wrap for #AAS2024! Thrilled to have received the trainee poster prize for our work on cerebral hypoperfusion in #POTS. Grateful for the recognition and the research shared this year! ⁦<a href="/ADARC_UoA/">ADARC</a>⁩ ⁦<a href="/AASAutonomic/">American Autonomic Society</a>⁩ ⁦<a href="/sahmriAU/">SAHMRI</a>⁩ ⁦<a href="/RBRCUniSA/">RBRC Uni SA</a>⁩
Marie-Claire Seeley (@mcseeley) 's Twitter Profile Photo

All PhD applicants and #POTS researchers in Australia. Applications for the 2025 Australian POTS Foundation research grant and scholarship call close on the 20th December.

Marie-Claire Seeley (@mcseeley) 's Twitter Profile Photo

I was thrilled to receive a Trainee Award for our work on cerebral hypoperfusion in POTS at #AAS2024 Honored to highlight the connection between autonomic dysfunction and brain blood flow in #POTS ADARC Dennis H Lau @CelineGallaghe2 SAHMRI SA CVRN

Marie-Claire Seeley (@mcseeley) 's Twitter Profile Photo

Excited to present the Australian POTS Registry data at #ACTA2024! Highlighting the burden of disability & QoL impacts for those with #POTS . šŸ™ for the support of ⁦SAHMRI Heart⁩ ⁦Australian POTS Foundation⁩ ADARC Uni of Adelaide ⁦SA CVRN⁩ . Let’s drive change!

Excited to present the Australian POTS Registry data at #ACTA2024! Highlighting the burden of disability &amp; QoL impacts for those with #POTS . šŸ™ for the support of ⁦<a href="/SAHMRI_Heart/">SAHMRI Heart</a>⁩ ⁦<a href="/AustralianPots/">Australian POTS Foundation</a>⁩ <a href="/ADARC_UoA/">ADARC</a> <a href="/UniofAdelaide/">Uni of Adelaide</a> ⁦<a href="/SACVRN/">SA CVRN</a>⁩ . Let’s drive change!
Marie-Claire Seeley (@mcseeley) 's Twitter Profile Photo

Love this from ⁦Prof Brendan Crabb⁩ ⁦Dr Michelle Scoullar (she/her)⁩ et.al. ā€œincreased awareness of the biomedical basis of #longCOVID should prompt clinicians to take patients more seriously.ā€ insightplus.mja.com.au/2024/48/long-c…

Harry Spoelstra (@harryspoelstra) 's Twitter Profile Photo

Novel brain SPECT imaging unravels abnormal cerebral perfusion in patients with postural orthostatic tachycardia syndrome and cognitive dysfunction šŸ”„Elegant and interesting Australian study on POTS/Cognitive dysfunction(56 patients). #LC āž”ļøModerate to severe autonomic

Novel brain SPECT imaging unravels abnormal cerebral perfusion in patients with postural orthostatic tachycardia syndrome and cognitive dysfunction

šŸ”„Elegant and interesting Australian study on POTS/Cognitive dysfunction(56 patients). #LC

āž”ļøModerate to severe autonomic
Emmanuel (@ejustin46) 's Twitter Profile Photo

REVEALING the BRAIN'S HIDDEN STRUGGLE after SARS-COV-2 INFECTION : POTS (postural orthostatic tachycardia syndrome) Patients Show Reduced Cerebral Blood Flow Thanks thetranscendedman nature.com/articles/s4159…

REVEALING the BRAIN'S HIDDEN STRUGGLE after SARS-COV-2  INFECTION : 

POTS (postural orthostatic tachycardia syndrome) Patients Show Reduced Cerebral Blood Flow
Thanks <a href="/atranscendedman/">thetranscendedman</a>
nature.com/articles/s4159…
Marie-Claire Seeley (@mcseeley) 's Twitter Profile Photo

Thrilled to share our published study on cerebral hypoperfusion in #POTS! Findings highlight key implications for clinical management and future research into autonomic disorders. Read more: rdcu.be/d7UFW SAHMRI @CelineGallaghe2 Dennis H Lau ADARC #Dysautonomia

Harry Spoelstra (@harryspoelstra) 's Twitter Profile Photo

Cardiovascular outcomes in long COVID-19: a systematic review and meta-analysis šŸ”„Meta-analysis including nearly 10 million patients, only confirming what we already know: āž”ļøLong COVID-19 was associated with a higher risk of - thromboembolic disorders [HR 3.12 (1.60, 6.08)], -

Cardiovascular outcomes in long COVID-19: a systematic review and meta-analysis

šŸ”„Meta-analysis including nearly 10 million patients, only confirming what we already know:

āž”ļøLong COVID-19 was associated with a higher risk of 
- thromboembolic disorders [HR 3.12 (1.60, 6.08)],
-
S Blitshteyn MD, FAAN, FANA, Dysautonomia Clinic (@dysclinic) 's Twitter Profile Photo

While working on a new paper, I've been re-reading old papers on #POTS: one is from Dr. Low et al of Mayo Clinic who was one of the first to describe it. Years later we have crazy debates on what POTS is, with one senior researcher recently saying in a meeting that "it's a

While working on a new paper, I've been re-reading old papers on #POTS: one is from Dr. Low et al of Mayo Clinic who was one of the first to describe it. Years later we have crazy debates on what POTS is, with one senior researcher recently saying in a meeting that "it's a
Marie-Claire Seeley (@mcseeley) 's Twitter Profile Photo

New from Stanford Neurology & Neurological Sciences Among 491 individuals with no prior history of #autonomic disorders: šŸ”¹ 44% developed an autonomic disorder after COVID-19 šŸ”¹ 75% of these had new onset POTS link.springer.com/article/10.100…

Scientific Reports (@scireports) 's Twitter Profile Photo

Novel brain SPECT imaging unravels abnormal cerebral perfusion in patients with postural orthostatic tachycardia syndrome and cognitive dysfunction go.nature.com/3ElLqQa

Australian POTS Foundation (@australianpots) 's Twitter Profile Photo

🚨 New research supported by Australian POTS Foundation published @EurJCardNurs: Women with #POTS report worse autonomic symptoms than men, despite equal anxiety & healthcare use. Yet face longer diagnostic delays. Led by Marie-Claire Seeley Celine Gallagher Dennis H Lau šŸ”—bit.ly/4j3y0aH

Marie-Claire Seeley (@mcseeley) 's Twitter Profile Photo

Proud to share our latest work showing that women with POTS experience worse autonomic symptoms and longer diagnostic delays — despite similar anxiety and health-seeking behaviour as men. Time to address the clinician-side of the equation. See post šŸ‘‡ #POTS #WomensHealth

Marie-Claire Seeley (@mcseeley) 's Twitter Profile Photo

New šŸ‡¦šŸ‡ŗ data from our POTS registry: teens & adults experience POTS differently. - Teens: worse orthostatic symptoms - Adults: more gut & bladder issues Both report = poor QoL. Proud to author this work. šŸ‘‰ doi.org/10.5694/mja2.5… ADARC Dennis H Lau SAHMRI Australian POTS Foundation