🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

Thanks for your continued support Sue Webber MSP 💜💙 🙂

Tomorrow's a key event in #MEAwarenessWeek - Blue Sunday, the tea party for ME 🫖 Run by Anna Redshaw for 13 years 💙 More info on Anna's website: the-slow-lane.com/blue-sunday-20… We would be so grateful if you choose to support us by selecting #MEAction UK on the donations page. Thanks!

We are pleased that our response to the recent opinion piece, 'Patients with severe ME/CFS need hope and expert multidisciplinary care' in the BMJ has been published but disappointed by it's commissioning & publication. ow.ly/vsOE50VVoEx #VerySevereME #MillionsMissing

Our thanks to everyone who took part in Blue Sunday, held a tea party or quietly enjoyed some tea and cake. We send special thanks to everyone who sent us a donation. 🧁🫖💙 #pwME #MECFS #LongCovid #MyalgicEncephalomyelitis #ChronicIllness #BlueSunday2025 #TeaPartyForME2025

Exciting news from DecodeME the ME/CFS Study. #MillionsMissing #pwME #DisabilitySOS #LongCovid

Success for #MEAction Scotland Campaign!! The Scottish Government withdraws outdated guideline and endorses NICE. The Scottish Government has withdrawn the Scottish Good Practice Statement on ME/CFS. Thanks to Jenni Minto MSP for her support. #MillionsMissing #MyalgicEncephalomyelitis

We have a limited amount of #MillionsMissing t-shirts left for sale! They're £15 & come in S (35-37"), M (38-40"), L (41-43") & XL (44-46") Fabric is cotton with Lycra in the collar. To buy, email [email protected] with your name, address & size, & we'll send a payment link.

The APPG held its most recent meeting of the Parliament on Wednesday 14 March. This was the first joint-meeting with the APPG on Long Covid, also Chaired by Jo Platt MP. ow.ly/r0FR50WbqZr #MillionsMissing #pwME #pwLC

Breaking News! Good Morning Scotland interviewed Dr Sjoerd Beentje & #MEAction Scotland volunteer Karima Rahman about University of Edinburgh research that found changes in the blood between people with and without ME. Interview 7.14am. ow.ly/viHc50WcG5g #pwME

Exciting News!!! A biomarker would be a game changer for ME. Researchers are crying out for more funding to follow up exciting work. We need Wes Streeting & Ashley Dalton MP to commit money to the ME/CFS Delivery Plan for the #MillionsMissing with ME. ow.ly/iXPo50WcGWr

We have asked BBC News to change the headline of this article and replace Chronic fatigue with ME. ow.ly/ULr950WcVhG #MillionsMissing #pwME

The DHSC confirmed that, 'the ME/CFS Final Delivery Plan is due to be published shortly, following the publication of the 10-Year Health Plan.' We are deeply disappointed at yet another delay and will continue to push for a firm date. ow.ly/Xfwg50WijVm #MillionsMissing

We have been asked to share the following update about Karen Gordon. Karen's father asks you all to, 'Please keep sharing this petition and telling people about Karen’s situation.' ow.ly/HBTP50Wr48F #MyalgicEncephalomyelitis #VerySevereME #pwME

Scotland’s ‘invisible’ patients and carers ‘falling between the cracks’ in health service Read the latest report from Neurological Alliance of Scotland here ow.ly/RI9250Wsxmo #NeurologicalConditions #TodaysChallengeTomorrowsHope #MyalgicE #MyalgicEncephalomyelitus

A press release has been issued by the DHSC about the ME/CFS Delivery Plan due to be published today. We will give our feedback once we have read the published version of the plan. ow.ly/RpIn50Wt8xA #MyalgicEncephalomyelitis #pwME #pwLC #disability

This morning, Sarah Boothby and Dr Binita Kane spoke to BBC Breakfast giving their reaction to the publication of the Department of Health and Social Care (DHSC) Delivery Plan for ME. Listen by clicking on the link below (item starts at 1:13:18) bbc.co.uk/iplayer/episod…

Sean O'Neill writes in The Times and The Sunday Times of his deep disappointment at the contents of the ME Delivery Plan. Wes Streeting has the power to implement a service for the severe and very severe and stop the needless deaths of people with ME. ow.ly/9Fnh50WtRl7

Listen below to Dr Charles Shepherd (ME Association) and Janet Sylvester (#MEAction Scotland) talking about the DHSC Delivery Plan on Radio Scotland this morning #MyalgicE #DeliveryPlan #DepartmentOfHealthAndSocialCare #MyalgicEncephalomyelitis