#MEAction Scotland (@meactionscot) 's Twitter Profile
#MEAction Scotland

@meactionscot

MEAction Scotland is an affiliate of #MEAction, an international network of people working towards health equality for #MillionsMissing with ME.

ID: 855863899064762368

linkhttp://www.meaction.net/connect calendar_today22-04-2017 19:20:29

6,6K Tweet

2,2K Followers

699 Following

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Tomorrow's a key event in #MEAwarenessWeek - Blue Sunday, the tea party for ME 🫖 Run by Anna Redshaw for 13 years 💙 More info on Anna's website: the-slow-lane.com/blue-sunday-20… We would be so grateful if you choose to support us by selecting #MEAction UK on the donations page. Thanks!

Tomorrow's a key event in #MEAwarenessWeek - Blue Sunday, the tea party for ME 🫖 Run by Anna Redshaw for 13 years 💙

More info on Anna's website: the-slow-lane.com/blue-sunday-20…
We would be so grateful if you choose to support us by selecting #MEAction UK on the donations page. Thanks!
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We are pleased that our response to the recent opinion piece, 'Patients with severe ME/CFS need hope and expert multidisciplinary care' in the BMJ has been published but disappointed by it's commissioning & publication. ow.ly/vsOE50VVoEx #VerySevereME #MillionsMissing

We are pleased that our response to the recent opinion piece, 'Patients with severe ME/CFS need hope and expert multidisciplinary care' in the BMJ has been published but disappointed by it's commissioning & publication.

ow.ly/vsOE50VVoEx

 #VerySevereME #MillionsMissing
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Our thanks to everyone who took part in Blue Sunday, held a tea party or quietly enjoyed some tea and cake. We send special thanks to everyone who sent us a donation. 🧁🫖💙 #pwME #MECFS #LongCovid #MyalgicEncephalomyelitis #ChronicIllness #BlueSunday2025 #TeaPartyForME2025

Our thanks to everyone who took part in Blue Sunday, held a tea party or quietly enjoyed some tea and cake. We send special thanks to everyone who sent us a donation.  🧁🫖💙

 #pwME  #MECFS #LongCovid #MyalgicEncephalomyelitis #ChronicIllness #BlueSunday2025 #TeaPartyForME2025
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Success for #MEAction Scotland Campaign!! The Scottish Government withdraws outdated guideline and endorses NICE. The Scottish Government has withdrawn the Scottish Good Practice Statement on ME/CFS. Thanks to Jenni Minto MSP for her support. #MillionsMissing #MyalgicEncephalomyelitis

Success for #MEAction Scotland Campaign!!

The <a href="/scotgov/">Scottish Government</a> withdraws outdated guideline and endorses NICE. The Scottish Government has withdrawn the Scottish Good Practice Statement on ME/CFS. 

Thanks to <a href="/jenni_minto/">Jenni Minto MSP</a> for her support.

#MillionsMissing  #MyalgicEncephalomyelitis
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We have a limited amount of #MillionsMissing t-shirts left for sale! They're £15 & come in S (35-37"), M (38-40"), L (41-43") & XL (44-46") Fabric is cotton with Lycra in the collar. To buy, email [email protected] with your name, address & size, & we'll send a payment link.

We have a limited amount of #MillionsMissing t-shirts left for sale!
They're £15 &amp; come in S (35-37"), M (38-40"), L (41-43") &amp; XL (44-46")
Fabric is cotton with Lycra in the collar.

To buy, email scotland@meaction.net with your name, address &amp; size, &amp; we'll send a payment link.
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The APPG held its most recent meeting of the Parliament on Wednesday 14 March. This was the first joint-meeting with the APPG on Long Covid, also Chaired by Jo Platt MP. ow.ly/r0FR50WbqZr #MillionsMissing #pwME #pwLC

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Breaking News! Good Morning Scotland interviewed Dr Sjoerd Beentje & #MEAction Scotland volunteer Karima Rahman about University of Edinburgh research that found changes in the blood between people with and without ME. Interview 7.14am. ow.ly/viHc50WcG5g #pwME

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Exciting News!!! A biomarker would be a game changer for ME. Researchers are crying out for more funding to follow up exciting work. We need Wes Streeting & Ashley Dalton MP to commit money to the ME/CFS Delivery Plan for the #MillionsMissing with ME. ow.ly/iXPo50WcGWr

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We have asked BBC News to change the headline of this article and replace Chronic fatigue with ME. ow.ly/ULr950WcVhG #MillionsMissing #pwME

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The DHSC confirmed that, 'the ME/CFS Final Delivery Plan is due to be published shortly, following the publication of the 10-Year Health Plan.' We are deeply disappointed at yet another delay and will continue to push for a firm date. ow.ly/Xfwg50WijVm #MillionsMissing

The DHSC confirmed that, 'the ME/CFS Final Delivery Plan is due to be published shortly, following the publication of the 10-Year Health Plan.'  We are deeply disappointed at yet another delay  and will continue to push for a firm date.
ow.ly/Xfwg50WijVm

#MillionsMissing
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We have been asked to share the following update about Karen Gordon. Karen's father asks you all to, 'Please keep sharing this petition and telling people about Karen’s situation.' ow.ly/HBTP50Wr48F #MyalgicEncephalomyelitis #VerySevereME #pwME

We have been asked to share the following update about Karen Gordon.

Karen's father asks you all to, 'Please keep sharing this petition and telling people about Karen’s situation.'

ow.ly/HBTP50Wr48F

#MyalgicEncephalomyelitis #VerySevereME #pwME
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Scotland’s ‘invisible’ patients and carers ‘falling between the cracks’ in health service Read the latest report from Neurological Alliance of Scotland here ow.ly/RI9250Wsxmo #NeurologicalConditions #TodaysChallengeTomorrowsHope #MyalgicE #MyalgicEncephalomyelitus

Scotland’s ‘invisible’ patients and carers ‘falling between the
cracks’ in health service

Read the latest report from <a href="/NeuroAlScotland/">Neurological Alliance of Scotland</a> here ow.ly/RI9250Wsxmo
#NeurologicalConditions #TodaysChallengeTomorrowsHope #MyalgicE #MyalgicEncephalomyelitus
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A press release has been issued by the DHSC about the ME/CFS Delivery Plan due to be published today. We will give our feedback once we have read the published version of the plan. ow.ly/RpIn50Wt8xA #MyalgicEncephalomyelitis #pwME #pwLC #disability

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This morning, Sarah Boothby and Dr Binita Kane spoke to BBC Breakfast giving their reaction to the publication of the Department of Health and Social Care (DHSC) Delivery Plan for ME. Listen by clicking on the link below (item starts at 1:13:18) bbc.co.uk/iplayer/episod…

This morning, Sarah Boothby and Dr Binita Kane spoke to BBC Breakfast giving their reaction to the publication of the Department of Health and Social Care (DHSC) Delivery Plan for ME. Listen by clicking on the link below (item starts at 1:13:18)
bbc.co.uk/iplayer/episod…
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Sean O'Neill writes in The Times and The Sunday Times of his deep disappointment at the contents of the ME Delivery Plan. Wes Streeting has the power to implement a service for the severe and very severe and stop the needless deaths of people with ME. ow.ly/9Fnh50WtRl7

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Listen below to Dr Charles Shepherd (ME Association) and Janet Sylvester (#MEAction Scotland) talking about the DHSC Delivery Plan on Radio Scotland this morning #MyalgicE #DeliveryPlan #DepartmentOfHealthAndSocialCare #MyalgicEncephalomyelitis