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(from 10 July 2021) Minister Reynolds has agreed that planned Independent Assessments will not go ahead. We're pleased that Ministers have listened to people with a disability, including requests from ME/CFS Australia, ME/CFS & Lyme Association WA, & ME/CFS South Australia Inc.

JOINT STANDING COMMITTEE NATIONAL DISABILITY INSURANCE SCHEME Independent Assessments Public Hearing. On 29 June 2021, ME/CFS Australia made a verbal submission to the #NDIS Inquiry into Independent Assessments. We continue to represent the interests of our community. #MECFS

(from 8 Aug 2021) ME/CFS Australia acknowledges Severe M.E. Day - a day of awareness & visibility for those living with severe Myalgic Encephalomyelitis (M.E.). Visit the new Severe ME Day Australia website for information & stories of lived experience. severemeday.org.au

(from 1 Sept 2021) SENATE INQUIRY INTO THE DSP Several submissions were submitted on behalf of the ME/CFS community. ME/CFS Australia and ME/CFS and Lyme Association of WA each made submissions on the issues experienced by Australians with ME/CFS. #MECFS

The new NICE guidelines, UK, were published on 29 October 2021. People with ME/CFS have welcomed the changed understanding of exercise programs & the way in which CBT may be used. NICE guidelines are influential in Australia. #mecfs nice.org.uk/news/article/n…

(from 29 Nov 2021) ME/CFS Australia recently made a submission to the Inquiry into Current Scheme Implementation and Forecasting for the NDIS. You can read our Submission on page 2, Number 41. #MECFS #NDIS bit.ly/2ZxJtw9

(from 4 May 2022) Today our spokesperson, Penelope McMillan, participated in a panel at the National Telehealth Summit, which brings together key stakeholders from health services, research, clinicians and government agencies. #MECFS #telehealth

12 May 2022 - We have 52 Australian buildings and landmarks organised for Light Up The Night 2022, as part of May 12th International ME/CFS Awareness Day. #May12th #LightUpTheNight4ME View the full list at may12th.org.au/light-up-the-n…

Keep up to date on May12th International Awareness Day in Australia by liking or following the official Facebook Page. #May12th #MECFS #MECFSAwarenessDay #LightUpTheNight4ME facebook.com/may12thaustral…

Visit the official May12th Australia website each year for May12th International Awareness Day in Australia. ME/CFS Australia is a proud supporter. #MECFS #MECFSAwarenessDay #LightUpTheNight4ME may12th.org.au

As healthy, productive lives continue to be upended by #LongCovid, ME/CFS Australia has been highlighting to politicians and the media, the significant percentage of those with Long COVID who will go on to develop the debilitating condition #MECFS.

Thank you to Queensland #MECFS advocates and 7NEWS Brisbane for this prime time segment on #May12th #LongCovid #mecfsawareness #mecfs #longcovidawareness youtube.com/watch?v=SprLbu…

Our member organisation ME/CFS South Australia is active on Twitter. You can find them here: x.com/mecfs_aust_sa ME/CFS South Australia

We welcome UK's 'Defining future ME/CFS research' report. Wide consultation to identify Top 10+ Research Priorities gives confidence that final priorities reflect urgent needs of #pwME UK report: psp-me.co.uk Photo: Lea Aring ME/CFS Priority Setting Partnership @NHMRC #MedTwitter #MEResearch

Thank you to our member organisation ME/CFS and Lyme Association of WA for setting up and loading on some old content to our (new but old) Twitter account today. For those wanting to follow their work or posts, they are active on Facebook at facebook.com/ME.CFS.Western…

ME/CFS Australia Ltd | Our official Twitter account is ME/CFS Australia | Myalgic Encephalomyelitis / Chronic Fatigue Syndrome #MECFS #pwME