Meighan Stone | @meighanstone.bsky.social (@meighanstone) 's Twitter Profile
Meighan Stone | @meighanstone.bsky.social

@meighanstone

Human rights at home & abroad ♿ Executive Director @LCCampaign. Past: President @MalalaFund, Senior Fellow @CFR_org, Fellow @Kennedy_School, @WFP & @ONECampaign

ID: 19864770

linkhttps://www.LongCOVIDCampaign.org calendar_today01-02-2009 16:32:27

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Meighan Stone | @meighanstone.bsky.social (@meighanstone) 's Twitter Profile Photo

Today's #disabled advocacy Hill ♿ transit joys: Me: "Here's how to take apart my powerchair" Uber: [ignores me, yanks chair for 10 mins so now late] Me: "Please drop me at this Senate building door, it's the only accessible entrance, I've used 100 times" Uber: "No I know better"

Meighan Stone | @meighanstone.bsky.social (@meighanstone) 's Twitter Profile Photo

📣#LongCOVID Community📣 Looks like Senate HELP Committee Senate HELP Committee GOP HELP Committee Dems will now have Secretary Kennedy testify at FY26 HHS budget hearing on Wednesday, May 14 at 1pm ET. Would you come to Washington DC to attend this critical hearing with LongCOVIDCampaign? help.senate.gov/hearings/heari…

LongCOVIDCampaign (@lccampaign) 's Twitter Profile Photo

THANK YOU #LongCOVID patient & renowned cellist & composer Joshua Roman for hitting the Hill today with LCC to meet Republican champions & leaders in Congress. We shared FY26 research & care needs, clinical trial priorities & why Novavax fall booster critical option for so many.

THANK YOU #LongCOVID patient &amp; renowned cellist &amp; composer <a href="/joshua_cello/">Joshua Roman</a> for hitting the Hill today with LCC to meet Republican champions &amp; leaders in Congress. We shared FY26 research &amp; care needs, clinical trial priorities &amp; why Novavax fall booster critical option for so many.
Meighan Stone | @meighanstone.bsky.social (@meighanstone) 's Twitter Profile Photo

Excited to share a #LongCOVID community win due to YOUR ADVOCACY! Long COVID researchers will now be able to apply to a $150million US govt CDMRP research program! Please tag in any researchers, to kick off: PolyBio Amy Proal, PhD Putrino Lab Prof. Akiko Iwasaki Michael Peluso, MD

LongCOVIDCampaign (@lccampaign) 's Twitter Profile Photo

THANK YOU to every #LongCOVID patient, caregiver & loved one, from red & blue states, for calling, emailing & meeting with Congressional leaders to share #LongCOVID research is a bipartisan priority. Today's Senate HELP hearing testimony is a result of your engagement & outreach.

Meighan Stone | @meighanstone.bsky.social (@meighanstone) 's Twitter Profile Photo

I'm often the only #LongCOVID patient able to attend Senate hearings like today's with Secretary Kennedy (walking in behind my wheelchair seating to testify at HELP Committee on FY26). But I always try my best to bring every patient & person advocating with LongCOVIDCampaign in the room too.

PolyBio (@polybiorf) 's Twitter Profile Photo

Also, if you email [email protected] we will send you a 1-pager on more trial details. These include 1) the exact biopsies being performed 2) the duration of time participants spend at NIH for the trial 3) compensation for participation. Thanks for sharing this info Meighan Stone | @meighanstone.bsky.social

LongCOVIDCampaign (@lccampaign) 's Twitter Profile Photo

#LongCOVID researchers: TOMORROW Weds May 28 12-1pm ET CDMRP webinar on funding opportunities via Peer Reviewed Medical Research Program, now that patient advocacy resulted in Long COVID added as research topic! DEADLINES COMING FAST: Letter of Intent June 9, Application July 21.

#LongCOVID researchers: TOMORROW Weds May 28 12-1pm ET CDMRP webinar on funding opportunities via Peer Reviewed Medical Research Program, now that patient advocacy resulted in Long COVID added as research topic! DEADLINES COMING FAST: Letter of Intent June 9, Application July 21.
Meighan Stone | @meighanstone.bsky.social (@meighanstone) 's Twitter Profile Photo

Very grateful to finally be emerging from month-long PEM crash after near-constant #LongCOVID Hill advocacy push since January. NAD+ has really been helping with crash recovery, anyone have any of your most recent or promising "Long COVID / PEM crash management" tips to share?

PolyBio (@polybiorf) 's Twitter Profile Photo

Looking for Boston-area healthy controls who are willing to put a little skin in the game for small fiber neuropathy research!  If you've had COVID and feel fully recovered, please use the contact information on this flyer to see if you qualify for this PolyBio-funded study at

Looking for Boston-area healthy controls who are willing to put a little skin in the game for small fiber neuropathy research!  If you've had COVID and feel fully recovered, please use the contact information on this flyer to see if you qualify for this PolyBio-funded study at
LongCOVIDCampaign (@lccampaign) 's Twitter Profile Photo

More alarming news on COVID impacts to kids: Harvard & Australian research team findings challenge "the assumptions of a universally mild pediatric COVID-19" & call for further investigation & monitoring in children to mitigate future cardiovascular risk. news-medical.net/news/20250616/…

zeynep tufekci (@zeynep) 's Twitter Profile Photo

We’re hiring at Princeton on AI and society, working with Arvind Narayanan or me depending on fit. I think it’s all a huge deal but am very unexcited by current AGI and/or AI safety discourse. I may also be hiring postdocs separately — depends on candidates. Email if interested.

Meighan Stone | @meighanstone.bsky.social (@meighanstone) 's Twitter Profile Photo

♿️Washington DC-area disabled folks♿️ Anyone have a good recommendation for power chair repair locally? First total malfunction & unsure where to go locally that's both a fair & good vendor. Bracing for some "durable medical equipment" insurance shenanigans. Thanks in advance!