METUPUK (@metupukorg) 's Twitter Profile
METUPUK

@metupukorg

Advocacy,campaigning & activism group aiming to turn metastatic breast cancer(MBC) into a chronic illness & support MBC patients #BusyLivingWithMets #DarkerPink

ID: 763893824045379584

linkhttp://www.metupuk.org.uk calendar_today12-08-2016 00:24:14

16,16K Tweet

4,4K Followers

3,3K Following

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METUPUK Trustee Emma shares what it’s like watching her sister Helen face Metastatic Breast Cancer. A true poster girl for #BusyLivingWithMets, Helen keeps going while advocating for treatment and trials. Everyone living with MBC deserves more time - and less inequality. #METUPUK

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METUPUK’s Founder Jo shares how her breast cancer evolved from triple positive to triple negative - and why ongoing biopsies and testing matter. Changes in cancer biology can affect treatment. Come back later today for Part 2 of Jo’s story. #MetastaticMay #METUPUK

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Part 2: Jo shares how her breast cancer changed from triple positive to triple negative - showing why ongoing biopsies and genomic testing matter. Receptor changes impact treatment, yet no national data tracks this. METUPUK continues to campaign for better awareness and action.

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Busy Living with Mets or on our knees waiting for the next treatment line... The public view of Metastatic Breast Cancer is more important than many realise - especially when it comes to campaigning for access to treatment, better interventions, and even practical matters like

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It’s the final day of #MetastaticMay - a month full of powerful content, shared stories, and vital conversations. Thank you for being part of it, for sharing our messages, and for supporting METUPUK. Now in its fifth year, we’re turning our focus to our biggest goal yet: UK-Wide

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Today is #SecondsOnThe2nd - our monthly reminder to spotlight the red flag signs and symptoms of Metastatic Breast Cancer. These symptoms aren’t often included in breast cancer awareness campaigns  but they need to be. For some people, they’re the first signs that their cancer

Today is #SecondsOnThe2nd - our monthly reminder to spotlight the red flag signs and symptoms of Metastatic Breast Cancer.

These symptoms aren’t often included in breast cancer awareness campaigns  but they need to be. For some people, they’re the first signs that their cancer
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Today we remember Mary Huckle - a fierce advocate, a guiding light, and a beloved member of our METUPUK volunteer group. Diagnosed with breast cancer in 2007 and with Metastatic Breast Cancer in 2014, Mary lived with the disease for nearly 16 years - 9 of those with Metastatic

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What’s next for MBC research and innovation? We spoke to Professor Sacha Howell, a leading Breast Cancer researcher based in Manchester, to hear his thoughts on what’s coming down the pipeline for Metastatic Breast Cancer. In this short interview, Sacha discusses: - The

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Can Metastatic Breast Cancer be cured? Whether MBC is a first diagnosis or a recurrence after early-stage treatment, it cannot be cured. That’s a hard truth - and one that’s often misunderstood. However, for some subtypes, there are treatments that can help keep the disease

Can Metastatic Breast Cancer be cured?
Whether MBC is a first diagnosis or a recurrence after early-stage treatment, it cannot be cured. That’s a hard truth - and one that’s often misunderstood.

However, for some subtypes, there are treatments that can help keep the disease
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Being a caregiver can be overwhelming, emotional, and uncertain - but it can also be full of love, humour and shared strength. Andy shares his honest advice as a husband and caregiver to Carole, who is living with Metastatic Breast Cancer. From the importance of making time for

Being a caregiver can be overwhelming, emotional, and uncertain - but it can also be full of love, humour and shared strength.

Andy shares his honest advice as a husband and caregiver to Carole, who is living with Metastatic Breast Cancer.

From the importance of making time for
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“What does Enhertu mean to you?” We asked members of the METUPUK community to share their experiences with Enhertu – a treatment that has offered hope, stability, and in some cases, life-changing milestones. For some, Enhertu brought No Evidence of Active Disease (NEAD) for the

“What does Enhertu mean to you?”

We asked members of the METUPUK community to share their experiences with Enhertu – a treatment that has offered hope, stability, and in some cases, life-changing milestones.

For some, Enhertu brought No Evidence of Active Disease (NEAD) for the
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The language used around Metastatic Breast Cancer (MBC) is often clinical, complex, and inconsistent - but for patients, getting to grips with that terminology is essential. Whether it’s understanding what “Stage 4” really means, recognising that Metastatic Breast Cancer is

The language used around Metastatic Breast Cancer (MBC) is often clinical, complex, and inconsistent - but for patients, getting to grips with that terminology is essential.

Whether it’s understanding what “Stage 4” really means, recognising that Metastatic Breast Cancer is
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From personal experience and the wider MBC community, we know there are critical gaps in GP knowledge - especially around recognising red flag symptoms. As Welsh patients and METUPUK volunteers, we’re determined to lead on MBC awareness and Red Flag education. But being heard

From personal experience and the wider MBC community, we know there are critical gaps in GP knowledge - especially around recognising red flag symptoms.

As Welsh patients and METUPUK volunteers, we’re determined to lead on MBC awareness and Red Flag education. But being heard
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Metastatic Breast Cancer research is underfunded - and patients are paying the price. Despite 30% of early-stage breast cancer patients going on to develop Stage 4 (MBC), research funding doesn’t reflect that reality. US analysis shows only around 13% of breast cancer research

Metastatic Breast Cancer research is underfunded - and patients are paying the price.

Despite 30% of early-stage breast cancer patients going on to develop Stage 4 (MBC), research funding doesn’t reflect that reality. US analysis shows only around 13% of breast cancer research
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Where you live shouldn’t determine the treatments you can access. Equity of access is one of METUPUK’s key objectives - yet right now, major disparities in drug availability exist across the UK. From Enhertu for HER2 Low to Piqray and Elacestrant, your postcode can impact

Where you live shouldn’t determine the treatments you can access.

Equity of access is one of METUPUK’s key objectives - yet right now, major disparities in drug availability exist across the UK. From Enhertu for HER2 Low to Piqray and Elacestrant, your postcode can impact
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Many assume Metastatic Breast Cancer only occurs after a primary diagnosis - but that’s not always the case. A proportion of people are diagnosed de novo - at Stage 4 from the start. Often, it’s symptoms like bone pain or a persistent cough that lead to further tests and reveal

Many assume Metastatic Breast Cancer only occurs after a primary diagnosis - but that’s not always the case.

A proportion of people are diagnosed de novo - at Stage 4 from the start. Often, it’s symptoms like bone pain or a persistent cough that lead to further tests and reveal
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METUPUK is one of the 26 health charities in the Charities Medicines Access Coalition (CMAC). We are co-signatories on the statement below calling for increased transparency and clear evidence that patient impact is at the heart of the VPAG discussions and negotiations. Thanks to

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Miranda “Mizzie” Ashitey  8 June 1982 – 26 June 2025  We are deeply saddened by the death of our friend and supporter Miranda “Mizzie” Ashitey. A proud advocate, gamer, runner, skydive-jumper, music lover, and passionate voice for representation, Miranda was a vital force in

Miranda “Mizzie” Ashitey 
8 June 1982 – 26 June 2025 

We are deeply saddened by the death of our friend and supporter Miranda “Mizzie” Ashitey.

A proud advocate, gamer, runner, skydive-jumper, music lover, and passionate voice for representation, Miranda was a vital force in
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It’s the 2nd of the month, which means it’s time for another #SecondsOnThe2nd - our regular spotlight on the lesser-known signs and symptoms of Metastatic Breast Cancer (MBC). Too often, these red flag symptoms are missing from breast cancer awareness messaging but they matter.

It’s the 2nd of the month, which means it’s time for another #SecondsOnThe2nd - our regular spotlight on the lesser-known signs and symptoms of Metastatic Breast Cancer (MBC).

Too often, these red flag symptoms are missing from breast cancer awareness messaging but they matter.
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“I was just 39. A mum of three. Told I had two to three years to live.” This is what Metastatic Breast Cancer really looks like. Endless appointments, devastating uncertainty, and stolen time - time that should be spent living, not advocating for the basics. This isn’t rare.

“I was just 39. A mum of three. Told I had two to three years to live.”

This is what Metastatic Breast Cancer really looks like. Endless appointments, devastating uncertainty, and stolen time - time that should be spent living, not advocating for the basics.

This isn’t rare.