🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

The Moyamoya Foundation #registry has a new home! It is now housed by SanfordCoRDS. Register today! #moyamoya #RareDisease

Enroll Now: cords.sanfordresearch.org/activation-form Your enrollment will help advance research to improve outcomes for moyamoya patients. Thank you for your consideration.

Did you know our Global Moyamoya Patient Registry is collecting data to advance research and improve outcomes for Moyamoya patients? You can enroll today: bit.ly/2hrrjlS

We are off to a great start, with 143 patients enrolled since our launch in Dec 22, 2024. We encourage more patients to participate to strengthen this valuable resource for advancing Moyamoya research. Enroll now: cords.sanfordresearch.org/activation-form FAQ: bit.ly/3DtQoKk

アメリカの組織が主導するもやもや病レジストリーが登録者を募集してます 試しに登録しましたが、質問数100問以上、辞書を片手に1時間以上かかりました 頭痛の頻度、2オピの経験、専門医との物理的距離など質問は多岐に渡りました #もやもや病　#もやの会　#患者会

We are gathering input on what topics the #moyamoya community would like to hear about from the scientific community regarding moyamoya care and research. Please follow this link: docs.google.com/forms/d/1wxFeR…. All data is de-identified and this is not part of a research project.

We've registered 200+ patients from 17+ countries. Don't miss out on important Global Moyamoya Patient Registry and other research related updates from the Moyamoya Foundation. Sign-up now to recieve all our email updates! moyamoya-foundation.org/notify-me

It’s #RareDiseaseDay! With ~1 in 12 affected, RDs represent a significant healthcare burden. The RD diagnostic odyssey is a call for improved RD awareness. The fact that still, only 5% of RDs have a therapy is a sobering reminder of the work we have to do. #RareDiseaseIsNotRare

Mayo Clinic Moyamoya, Aneurysm, and Stroke Event on May 3rd, 2025 from 11:00-2:00pm EST Scan the QR Code for Zoom or In-Person attendance. Mayo Clinic Kinne Auditorium/ Cannaday Building 4500 San Pablo Rd S, Jacksonville, FL 32224

Global Moyamoya Patient Registry is steadily growing. We invite ALL patients and caregivers to join and contribute to enhancing this important resource for Moyamoya research. Enroll today! cords.sanfordresearch.org/activation-form For more information visit our website: bit.ly/3DtQoKk

Yale School of Public Health UCSF Neurosurgery MGB Neurosurgery Yale Cancer Center #glioma #idh #oligodendroglioma Low Grade Glioma Registry gliomaregistry.org to join our study or just our email list 😎

REMINDER - Mayo Clinic - Moyamoya, Aneurysm, and Stroke Event on May 3rd, 2025 from 11:00-2:00pm EST To register scan a QR Code or follow a link below: In-Person: form.jotform.com/250614574515052 Zoom: mchealth.zoom.us/j/97959858480...

May is National Stroke Awareness Month Often Stroke is the first symptom of Moyamoya You can learn more about Stroke at American Stroke Association: bit.ly/4iJgNTp

REMINDER, event is this Saturday Moyamoya Foundation is excited to share information about Boston Children's - Moyamoya Family Day 2025 event on Saturday May 10, 2024 from 9am-12pm EST. To register In-person: BCHMoyamoya2025.eventbrite.com Virtual: bit.ly/BCHMoyamoya202…

May 6th, World Moyamoya Awareness Day It’s also a great day for Moyamoya Patients to enroll in the Global Moyamoya Patient Registry to help researchers! Enroll today: cords.sanfordresearch.org/activation-form FAQ: bit.ly/3DtQoKk #MoyamoyaAwarenes, #MoyamoyaResearch, #MoyamoyaRegistry

We invite ALL patients and caregivers to join and contribute to enhancing this important resource for Moyamoya research. You can enroll today using this link: cords.sanfordresearch.org/activation-form You can find step-by-step enrollment instructions on our website: bit.ly/3DtQoKk

With gratitude we welcome this Province of #Alberta declaration! Recognizing the barriers faced in a rare disease such as #cavernousmalformation, the need for #research towards treatment options and a cure remains a priority. This momentum is impactful!