Myaware (@myawareuk) 's Twitter Profile
Myaware

@myawareuk

Myaware is the only UK national registered charity supporting people with myasthenia. We fund research, specialist nurses and advisors #Ihaveheardofmyasthenia

ID: 297361922

linkhttp://www.myaware.org calendar_today12-05-2011 11:45:10

3,3K Tweet

1,1K Followers

107 Following

Myaware (@myawareuk) 's Twitter Profile Photo

On Saturday, Myaware attended the CMS Day in Oxford. Our Support Coordinator Tracey and Welfare Officer Charlie were there to represent us. A big thank you to the brilliant team at Oxford for hosting and for making us feel so welcome. #CMS #myasthenia #rarediease📷

On Saturday, Myaware attended the CMS Day in Oxford. Our Support Coordinator Tracey and Welfare Officer Charlie were there to represent us.
A big thank you to the brilliant team at Oxford for hosting and for making us feel so welcome.
#CMS #myasthenia #rarediease📷
Myaware (@myawareuk) 's Twitter Profile Photo

Fabulous Fundraiser Friday shout out to Kayleigh who took part in the Plymouth half marathon on Sunday and raised an incredible amount for myaware. After weeks of struggling with an ankle injury which hindered her training, she went on to complete it in an incredible 2hrs 9mins!

Fabulous Fundraiser Friday shout out to Kayleigh who took part in the Plymouth half marathon on Sunday and raised an incredible amount for myaware. After weeks of struggling with an ankle injury which hindered her training, she went on to complete it in an incredible 2hrs 9mins!
Myaware (@myawareuk) 's Twitter Profile Photo

Who are you bringing to the Festival? Tag them in the comments below and make sure you GRAB your tickets fast: buytickets.at/myaware #myawarefamilyfunfestival2025 #fundraiser #nottsparks #nottinghamarboretum #eventfundraising #myasthenia #august #summerplans

Who are you bringing to the Festival? Tag them in the comments below and make sure you GRAB your tickets fast: buytickets.at/myaware

#myawarefamilyfunfestival2025 #fundraiser #nottsparks #nottinghamarboretum #eventfundraising #myasthenia #august #summerplans
Myaware (@myawareuk) 's Twitter Profile Photo

Did you know you can turn old stamps into funds for myaware? Simply cut out the stamp to remove it from the envelope and send them to: Myaware, PO Box 16992, Sutton Coldfield, B73 9YA. Please note you will need to put a stamp on the envelope – this is not a freepost address.

Did you know you can turn old stamps into funds for myaware? Simply cut out the stamp to remove it from the envelope and send them to: Myaware, PO Box 16992, Sutton Coldfield, B73 9YA. Please note you will need to put a stamp on the envelope – this is not a freepost address.
Myaware (@myawareuk) 's Twitter Profile Photo

💬 LEMS, CMS & MG — what’s the diff? At Myaware, we support all 3 — but they often get confused or overlooked #MyastheniaGravis #LEMS #CMS #RareDisease #NeuroAwareness #Autoimmune #Myaware #WhatsTheDiff #Neuromuscular #SupportNotStigma

💬 LEMS, CMS & MG — what’s the diff?
At <a href="/MyawareUK/">Myaware</a>, we support all 3 — but they often get confused or overlooked #MyastheniaGravis #LEMS #CMS #RareDisease #NeuroAwareness #Autoimmune #Myaware #WhatsTheDiff #Neuromuscular #SupportNotStigma
Myaware (@myawareuk) 's Twitter Profile Photo

"Fabulous Fundraiser Friday" shout out goes to Tom who took part in the incredible Marathon Des Sables challenge. He did this as a surprise for his sister in law Vicky and has raised an incredible amount for myaware. Thank you so much Tom, Vicky and everyone who supported you!!!

"Fabulous Fundraiser Friday" shout out goes to Tom who took part in the incredible Marathon Des Sables challenge. He did this as a surprise for his sister in law Vicky and has raised an incredible amount for myaware. Thank you so much Tom, Vicky and everyone who supported you!!!
Myaware (@myawareuk) 's Twitter Profile Photo

We invite you to take part in My Quiz for myasthenia awareness month this June. Bring people together for fun and fundraising – one question at a time! What's your favourite quiz round? Find out more here myaware.org/myquiz

We invite you to take part in My Quiz for myasthenia awareness month this June.

Bring people together for fun and fundraising – one question at a time! What's your favourite quiz round?

Find out more here myaware.org/myquiz
Myaware (@myawareuk) 's Twitter Profile Photo

"Fabulous Fundraiser Friday" shout out goes to Daniel who took part in the Plymouth Half Marathon, and to David who ran the Hackney Half Marathon. They both smashed their fundraising targets, raising an incredible amount for myaware. Thank you so much to Daniel and David!

"Fabulous Fundraiser Friday" shout out goes to Daniel who took part in the Plymouth Half Marathon, and to David who ran the Hackney Half Marathon. They both smashed their fundraising targets, raising an incredible amount for myaware. Thank you so much to Daniel and David!
Myaware (@myawareuk) 's Twitter Profile Photo

We can't wait for Myasthenia Awareness Month to begin next week & are excited to see our wonderful members and supporters already taking part in fundraising events like My Cake Bake to raise much needed funds and awareness. Plan your Cake Bake here myaware.org/my-cake-bake-2… 😊🍰🍰

We can't wait for Myasthenia Awareness Month to begin next week &amp; are excited to see our wonderful members and supporters already taking part in fundraising events like My Cake Bake to raise much needed funds and awareness. Plan your Cake Bake here myaware.org/my-cake-bake-2…
😊🍰🍰
Myaware (@myawareuk) 's Twitter Profile Photo

Whether it’s miles, muffins or multiple choice – you can help raise funds this June! 👉MyMiles: myaware.org/my-miles 👉MyCakeBake: myaware.org/my-cake-bake-2… 👉MyQuiz : myaware.org/myquiz Make a donation to our MAM Appeal: myaware.org/appeal/myasthe…

Myaware (@myawareuk) 's Twitter Profile Photo

This MAM Appeal 2025, we are promoting understanding of self-advocacy in healthcare. Your generous donations will help to ensure we can continue to create vital resources, like the self-advocacy guides which can be downloaded from our website. To donate: myaware.org/donate/myasthe…

This MAM Appeal 2025, we are promoting understanding of self-advocacy in healthcare.
Your generous donations will help to ensure we can continue to create vital resources, like the self-advocacy guides which can be downloaded from our website. To donate: myaware.org/donate/myasthe…
Myaware (@myawareuk) 's Twitter Profile Photo

Fabulous Fundraiser Friday shout out goes to Tonia and Neidin who took part in the Dublin Vhi Women's Mini Marathon to raise much needed funds for myaware. Thank you so much to Tonia, Neidin and everyone who supported you - and to all of you completing challenges for myaware.

Fabulous Fundraiser Friday shout out goes to Tonia and Neidin who took part in the Dublin Vhi Women's Mini Marathon to raise much needed funds for myaware. Thank you so much to Tonia, Neidin and everyone who supported you - and to all of you completing challenges for myaware.
Myaware (@myawareuk) 's Twitter Profile Photo

We are absolutely delighted by how many of you are getting involved during myasthenia awareness month. It's not too late to take part and My Quiz is a great way to get involved. What's your favourite quiz round? Find out more here myaware.org/myquiz

We are absolutely delighted by how many of you are getting involved during myasthenia awareness month. It's not too late to take part and My Quiz is a great way to get involved. What's your favourite quiz round?

Find out more here myaware.org/myquiz
Carers Week (@carersweek) 's Twitter Profile Photo

It's #CarersWeek! Join us in saying ‘We care about equality for carers’ this week and every week! Thank you to our headline sponsor TSB and everyone taking part.

It's #CarersWeek!

Join us in saying ‘We care about equality for carers’ this week and every week!

Thank you to our headline sponsor <a href="/TSB/">TSB</a> and everyone taking part.
Myaware (@myawareuk) 's Twitter Profile Photo

🌟 Carers Week x MAM 2025 🌟 Behind every person living with myasthenia is often a loved one who provides emotional, physical and practical support. This #CarersWeek (10–16 June), we’re shining a light on the invisible support that is the visible strength of our community. 💚

🌟 Carers Week x MAM 2025 🌟

Behind every person living with myasthenia is often a loved one who provides emotional, physical and practical support. This #CarersWeek (10–16 June), we’re shining a light on the invisible support that is the visible strength of our community. 💚
Myaware (@myawareuk) 's Twitter Profile Photo

£1,680 has already been raised for us through Unity Lottery. Thank you! £25,000 weekly jackpot. To play: myaware.org/unity-lottery For gambling opt out and advice: myaware.org/self-exclusion…

£1,680 has already been raised for us through Unity Lottery. Thank you!  £25,000 weekly jackpot.  To play: myaware.org/unity-lottery For gambling opt out and advice: myaware.org/self-exclusion…
Myaware (@myawareuk) 's Twitter Profile Photo

£4692 has been raised during the MAM Appeal 2025, thank you! Your generous donations will help to ensure we can continue to create vital resources, like the self-advocacy guides which can be downloaded from our website. To donate: myaware.org/appeal/myasthe…

£4692 has been raised during the MAM Appeal 2025, thank you! Your generous donations will help to ensure we can continue to create vital resources, like the self-advocacy guides which can be downloaded from our website. To donate: myaware.org/appeal/myasthe…
Myaware (@myawareuk) 's Twitter Profile Photo

Did you know you can donate funds to myaware when selling items on eBay? When listing your item, select the ‘Donate a portion to charity’ option in the listing flow. • Select myaware from the list of available charities: myaware.org/Pages/FAQs/Sit…

Did you know you can donate funds to myaware when selling items on eBay?
When listing your item, select the ‘Donate a portion to charity’ option in the listing flow.
• Select myaware from the list of available charities: myaware.org/Pages/FAQs/Sit…
Myaware (@myawareuk) 's Twitter Profile Photo

£1,886 already raised through Unity Lottery. 94 weekly players. Could you help us reach 110 players? £25,000 weekly jackpot. To play: unitylottery.co.uk/causes/myaware/ For gambling opt out and advice: myaware.org/unity-lottery

£1,886 already raised through Unity Lottery. 94 weekly players. Could you help us reach 110 players?  £25,000 weekly jackpot.  To play: unitylottery.co.uk/causes/myaware/ For gambling opt out and advice: myaware.org/unity-lottery