🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

Rare Disease Day will take place this month, on 28 February. People all around the world will raise awareness of different rare conditions. This is also a day for the #BHD and #osteosarcoma communities to raise awareness. Find out more here: lght.ly/3j3nj3i

Want to learn more about clinical trials? In two weeks time National Comprehensive Cancer Network (NCCN) will host a webinar to tell us all about clinical trials. Find out more 👇

🙌 We can't wait for #RareDiseaseDay! Here's how you can help us raise awareness around BHD and osteosarcoma: 📕 Learn about BHD & osteosarcoma 📣 Share your story of living with a rare condition 💜 Show support on social media Find out more : lght.ly/a08dk2h

Did you know that BHD is a condition that can lead to lung cysts and skin bumps? Learn more here 👇 #RareDiseaseDay

Join National Organization for Rare Disorders (NORD) in celebrating the Faces of Rare. Their Faces of Rare wall features people who live with rare conditions. If you live with #BHD or #osteosarcoma, you can also join the wall to share your story. Find out more 👇 lght.ly/4fogeb4

💬 For #RareDiseaseDay, Bionews is bringing together voices from across the rare disease community for a series of powerful conversations with Dr. Al Freedman, one of the world’s leading therapists specialising in rare diseases. Find out more here: lght.ly/g5ip

📖 Did you know that you can share your story with the #RareDiseaseDay team? 💜 We encourage patients to share their story to help raise awareness of conditions like #BHD and #osteosarcoma. View other peoples stories and share your own: lght.ly/7b9ca05

What is the rare disease Birt Hogg-Dube syndrome (BHD) that we support? Watch our explainer video to find out more about symptoms, how it affects the body, and how you can get tested to identify monitoring the symptoms. Visit vimeo.com/861570601 #RareDiseaseDay

Happy #RareDiseaseDay! 💜 Today, we stand with the rare disease community to raise awareness of Birt-Hogg-Dubé syndrome (BHD) and osteosarcoma. Learn more about our organisation and how we aim to help the rare disease community through research here: lght.ly/8gjh77c

Excited to hear more about the latest research and developments for rare disease at the Francis Crisk 4th Rare Disease Conference The Francis Crick Institute

The Cambridge University Student Respiratory Society​ and LifeArc are hosting a symposium on the 12 March to discuss rare respiratory diseases. The aim of the conference is to highlight these diseases to medical students. Zoom Meeting cam-ac-uk.zoom.us/j/81320570580... #PhD #RareDisease

Today is International Women's Day. We want to recognise all of the women who have impacted those with rare diseases including patients, researchers, clinicians, and staff. Thank you for being outstanding in your field. It is an honour to be part of your journey #WomensDay

As a medical research charity, we fund research that focuses on rare diseases. This include BHD - a condition that can affect the kidneys. To keep research going, we need your help. Find out about research projects we currently fund and donate today: lght.ly/ce830md

📝 Sarcoma UK is running its National Sarcoma Survey to gather vital insights from those affected by #sarcoma. Your experiences can help shape support services, research and policy change. Survey closes on 31 March. Share your voice today: lght.ly/lgb2ei2

We funded Professor Mark Lowdell's research project which looks at natural killer cells and kidney cancer in BHD. Read about his research project here: lght.ly/o95m9ci #KidneyCancerAwarenessMonth

If you're interested in learning more about the skin and BHD, join BHD Foundation's next Meet the Expert webinar! 👇

A study funded by the Myrovlytis Trust which we supported found up to 1 in 3,000 people could be carrying a faulty gene that significantly increases their risk of a punctured lung, see bit.ly/42nODan for more UK Biobank Cambridge University Hospitals NHS Cambridge University NHS East Genomics Genomics England

Sending best wishes for a Happy Easter from all at the Myrovlytis Trust. Our offices will be closed on Friday 18 and Monday 21 April 2025. You can find out more about the Trust by visiting lght.ly/d84g72k

🧬 New research funded by Myrovlytis Trust uncovers how many people may carry genetic variations linked to BHD. 🔎 In this special blog for #NationalDNADay, we break down the findings and explain what it means for the patient community. Read it here: thebhdfoundation.org/blog/447-genet…