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Flying Delta home from a meeting on #SickleCell & #thalassemia. Delta We LOVE the 🩷 for breast cancer but can we please turn September RED for #SickleCellAwarenessMonth?Payal Desai, MD Seethal Jacob, MD, MS Sharl Azar, MD John Joseph Strouse The Cure Sickle Cell Initiative (CureSCi) Sickle Cell Disease Coalition Elna Saah,MD SCDAA?

King AA, et al. Parent education and biologic factors influence on cognition in sickle cell anemia. Am J Hematol. 2014 Feb;89(2):162-7. doi: 10.1002/ajh.23604

Are you ready to learn more about #genetherapy for #sicklecelldisease. Join ASTCT in Boston to learn the science and the implementation for this transformative treatment for #SCD #sicklecell. Register now! astct.org/Meetings/Gene-…

Access to #sicklecellcenters if you are living with #sicklecelldisease should also be a right and it is our goal to make #SCDspecialists and #SCDcenters more available. Do you have #SCD? Check us out to find a recommendation #sicklecellcenter. sicklecellcenters.org

#MedStudents & trainees: have you heard about HIP? HIP = Hematology Inclusion Pathway. HIP supports hematologists whose voices are underrepresented in our field. Get support to start your #hematology journey: ow.ly/WvNj50Tpr5R #ASHTrainee #RepresentationMatters

Excitement is building as we prepare to attend SCDAA Annual National Convention next week in Atlanta, GA. We're eager to connect and learn with everyone in attendance! Let us know in the comments how we can connect with you while there.

Thank you ⁦Terumo Blood and Cell Technologies⁩ for the incredible opportunity to lead an international Delphi Panel to advance the management of pregnant women with sickle cell disease. Our work has only begun. ⁦Sickle Cell Disease Coalition⁩ ⁦SickleQueenT⁩ linkedin.com/posts/mickael-…

National Alliance of Sickle Cell Centers is having a #SickleCell happy hour

Who is coming to #ASH2024? There is a lot of #sicklecell on the menu including a #scdcenter presentation on Sunday!

PK-guided dosing of hydroxyurea for children with #sicklecelldisease is one more way we need to personalize medication and treatments in #SCD

Dr. Josu de La Fuente Josu de la Fuente presenting on alloHSCT in #sicklecelldisease at #ASH2024

Join the HIP community to network and celebrate awardees and their mentors! The reception follows the oral presentations. #ASH24 #ASHKudos #ASHDEI 🥇

Happy happy happy to all who celebrate today and everyday! Much love, NASCC National Alliance of #Sicklecell Centers. All we want for Christmas 🎄 (and Chanukah 🕎) is for every person living with #sicklecelldisease to have access to a #sicklecellcenter.

We need to work together to get the therapies that people with #sicklecelldisease need! Today we meet at the The White House to discuss #genetherapy so we can get #SCD transformed!! #WhiteHouseCGT

Can we get our ethical vectors and moral compasses aligned for cell and gene therapy and #RareDisease including #sicklecelldisease National Alliance of Sickle Cell Centers

I am so happy to learn about the Rare Disease Legislative Caucus and to hear from Amy Klobuchar and Rep. Doris Matsui at the #whitehouseCGT forum and hope to talk to you more about #sicklecelldisease

#RareDiseaseDay2025 highlights unseen struggles of the survivors. #SickleCellDisease, a life-threatening rare genetic disorder, remains underrepresented in research & care. HemexDx is committed to #earlydiagnosis of SCA. Let’s raise #awareness & drive innovation!

We have to improve #accesstocare by increasing #sicklecellcenters so people living with #sicklecelldisease have #healthcare and #healthopportunies for better #healthoutcomes