National Bleeding Disorders Foundation (@nbd_foundation) 's Twitter Profile
National Bleeding Disorders Foundation

@nbd_foundation

Dedicated to finding better treatments/cures for inheritable blood/bleeding disorders & preventing complications via education, advocacy, research. #WeAreNBDF

ID: 39823988

linkhttps://bleeding.org/ calendar_today13-05-2009 20:18:00

23,23K Tweet

7,7K Followers

1,1K Following

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We're proud to share that Dr. Keri Norris, NBDF’s SVP of Health Access and Strategic Innovation, has been named a Fierce DEI Award finalist in Leadership in Health Equity! 🎉 Winners will be announced June 18. 🔗 Read the full article: bit.ly/3ZbTOcO

We're proud to share that Dr. Keri Norris, NBDF’s SVP of Health Access and Strategic Innovation, has been named a Fierce DEI Award finalist in Leadership in Health Equity! 🎉

Winners will be announced June 18. 

đź”— Read the full article: bit.ly/3ZbTOcO
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Bayer’s hemophilia A therapy, Jivi®, just received FDA approval for kids aged 7–12. Backed by data from the Alfa-PROTECT and PROTECT Kids studies, this expands the use of the product, which was first approved by the FDA in 2018. 🔗 Learn more: bit.ly/44UcukW

Bayer’s hemophilia A therapy, Jivi®, just received FDA approval for kids aged 7–12. Backed by data from the Alfa-PROTECT and PROTECT Kids studies, this expands the use of the product, which was first approved by the FDA in 2018.

đź”— Learn more: bit.ly/44UcukW
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Moments like these are what make BDC unforgettable. From powerful sessions to meaningful connections. Be part of the experience. 📍Register now for #BDC2025: bit.ly/4279qi9

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Love is love. This Pride Month, we stand with the LGBTQ+ community in advocating for equality and acceptance. #PrideMonth2025 #EqualityForAll #NBDF #BleedingDisorders

Love is love. This Pride Month, we stand with the LGBTQ+ community in advocating for equality and acceptance.  

#PrideMonth2025 #EqualityForAll #NBDF #BleedingDisorders
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đź’¬ Join us for a powerful conversation with experts, clinicians, and a lived experience participant to learn how this work is reshaping VWD research and care. đź“… Date June 4, 2025 đź•’ Time: 2PM EST đź”— Register now: bit.ly/4mSA5cr

đź’¬ Join us for a powerful conversation with experts, clinicians, and a lived experience participant to learn how this work is reshaping VWD research and care. 

đź“… Date June 4, 2025
đź•’ Time: 2PM EST
đź”— Register now: bit.ly/4mSA5cr
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Pathway to Cures is accelerating innovation in the bleeding disorders space. Since 2023, P2C has reviewed over 200 biotech companies and invested in five with cutting-edge approaches to treatment and care. 🔬Learn more: bit.ly/3Z9c72g #BleedingDisorders #PathwayToCures

Pathway to Cures is accelerating innovation in the bleeding disorders space. Since 2023, P2C has reviewed over 200 biotech companies and invested in five with cutting-edge approaches to treatment and care.

🔬Learn more: bit.ly/3Z9c72g

#BleedingDisorders #PathwayToCures
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Mental health and chronic health conditions are closely connected. Learn how sleep, diet, technology, and physical activity can affect your mood—and discover practical tips to take control. 🔗 Read more: bit.ly/4mufOts #BleedingDisorders #Hemophilia #NBDF #Hemaware

Mental health and chronic health conditions are closely connected. Learn how sleep, diet, technology, and physical activity can affect your mood—and discover practical tips to take control.

đź”— Read more: bit.ly/4mufOts

#BleedingDisorders  #Hemophilia #NBDF #Hemaware
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New & Easier Registration! One link = access to ALL Wednesday Webinars. Stay informed, inspired, and connected—all year long—with just one quick sign-up. 🔗 Register once. Show up every time: bit.ly/4mSA5cr #WednesdayWebinars #BleedingDisorders #NBDF #WebinarSeries

New & Easier Registration!
One link = access to ALL Wednesday Webinars. 

Stay informed, inspired, and connected—all year long—with just one quick sign-up.

đź”— Register once. Show up every time: bit.ly/4mSA5cr

#WednesdayWebinars #BleedingDisorders #NBDF #WebinarSeries
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Join us for the Bleeding Disorders Conference 2025, where our community gathers to connect, learn, and grow. 📅 August 21–23, 2025 📍 Aurora, Colorado Explore the program, speakers, and more: bit.ly/4279qi9

Join us for the Bleeding Disorders Conference 2025, where our community gathers to connect, learn, and grow. 

📅 August 21–23, 2025
📍 Aurora, Colorado

Explore the program, speakers, and more: bit.ly/4279qi9
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After more than 30 years of serving the bleeding disorders community as HANDI, we’re proud to honor a visionary leader by renaming it the Neil Frick Resource Center (NFRC). 📚 Learn more about NFRC’s powerful story and lasting impact: bit.ly/4jZk8in

After more than 30 years of serving the bleeding disorders community as HANDI, we’re proud to honor a visionary leader by renaming it the Neil Frick Resource Center (NFRC).

📚 Learn more about NFRC’s powerful story and lasting impact: bit.ly/4jZk8in
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Early detection saves lives. This Men’s Health Week, let's promote open conversations about health and wellness. Men’s health matters. Let’s encourage men to prioritize their health and seek regular care. #MensHealth #MensHealthWeek #NBDF #BleedingDisorders

Early detection saves lives. This Men’s Health Week, let's promote open conversations about health and wellness. Men’s health matters. Let’s encourage men to prioritize their health and seek regular care.  

#MensHealth #MensHealthWeek #NBDF #BleedingDisorders
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Higher education with a bleeding disorder comes with unique challenges — but you’re not alone. HASI offers documents and support to make the transition easier. Learn more: bit.ly/4kXNZJa #NBDF #BleedingDisorders #HealthAccess

Higher education with a bleeding disorder comes with unique challenges — but you’re not alone. HASI offers documents and support to make the transition easier. 

Learn more: bit.ly/4kXNZJa

#NBDF #BleedingDisorders #HealthAccess
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🚨 The House budget bill proposes major Medicaid & ACA cuts—putting 13.7M+ at risk of losing coverage. NBDF is advocating to protect access for the bleeding disorders community. 🩸 Learn more: bit.ly/43Wjtrs

🚨 The House budget bill proposes major Medicaid & ACA cuts—putting 13.7M+ at risk of losing coverage.

NBDF is advocating to protect access for the bleeding disorders community.

🩸 Learn more: bit.ly/43Wjtrs
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Join NBDF CEO Phil Gattone and SVP of Advancement Beth Whitehouse for a dynamic conversation on uniting national and chapter efforts through collaborative fundraising and mission storytelling. Learn how we’re strengthening partnerships to support care and access at every level.

Join NBDF CEO Phil Gattone and SVP of Advancement Beth Whitehouse for a dynamic conversation on uniting national and chapter efforts through collaborative fundraising and mission storytelling. Learn how we’re strengthening partnerships to support care and access at every level.
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We’re not rare — we’re rarely recognized.” On World Hemophilia Day, one advocate living with VWD shares her powerful Hill Day experience. Read her story and see why continued federal support is vital to our bleeding disorders community. 🔗 Read here: bit.ly/45yLyY5

We’re not rare — we’re rarely recognized.” On World Hemophilia Day, one advocate living with VWD shares her powerful Hill Day experience. Read her story and see why continued federal support is vital to our bleeding disorders community.

đź”— Read here: bit.ly/45yLyY5
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🚨 URGENT: Tell the Senate—Don’t Cut Medicaid & Marketplace Insurance! A dangerous bill threatening health coverage for 16 million+ people, including many in the bleeding disorders community, is moving through Congress. We must speak up NOW. Take action: bit.ly/3TlhoQL

🚨 URGENT: Tell the Senate—Don’t Cut Medicaid & Marketplace Insurance!

A dangerous bill threatening health coverage for 16 million+ people, including many in the bleeding disorders community, is moving through Congress. We must speak up NOW.

Take action: bit.ly/3TlhoQL
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Join NBDF for a live virtual event: “Assessing the Wellbeing of Women with Bleeding Disorders: Focus on Bone and Mental Health.” Explore case studies, screening insights, and expert discussion on mental and bone health. 👉 Register: bit.ly/4dRwdUI

Join NBDF for a live virtual event: “Assessing the Wellbeing of Women with Bleeding Disorders: Focus on Bone and Mental Health.”

Explore case studies, screening insights, and expert discussion on mental and bone health.

👉 Register: bit.ly/4dRwdUI
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A single donation can save a life. This World Blood Donor Day, consider giving the gift of life. 🩸 #WorldBloodDonorDay #DonateBlood #NBDF #BleedingDisorders

A single donation can save a life. This World Blood Donor Day, consider giving the gift of life. 🩸  

#WorldBloodDonorDay #DonateBlood #NBDF #BleedingDisorders
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Happy Father’s Day to the incredible dads and father figures in our community! 💙 Your strength, guidance, and love make a difference every day. To the dads, mentors, and those who step up with care and support—we celebrate you today! 💙 #FathersDay #CommunityLove #ThankYou

Happy Father’s Day to the incredible dads and father figures in our community! 💙 Your strength, guidance, and love make a difference every day. To the dads, mentors, and those who step up with care and support—we celebrate you today! 💙

#FathersDay #CommunityLove #ThankYou
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NBDF proudly celebrates the New York City Hemophilia Chapter (NYCHC) for the incredible success of its 20th Annual Unite for Bleeding Disorders Walk, held June 1st. This year, the chapter raised an inspiring $202,341 🙌 👏 Congratulations, NYCHC, on 20 years!

NBDF proudly celebrates the New York City Hemophilia Chapter (NYCHC) for the incredible success of its 20th Annual Unite for Bleeding Disorders Walk, held June 1st. This year, the chapter raised an inspiring $202,341 🙌

👏 Congratulations, NYCHC, on 20 years!