Neuroendocrine Cancer UK #NotJustNECancer (@ncukcharity) 's Twitter Profile
Neuroendocrine Cancer UK #NotJustNECancer

@ncukcharity

Supporting the #Neuroendocrine Cancer community, incl diagnosis, access to best treatment & care - and stimulating research. Helpline 0800 434 6476

ID: 594032178

linkhttps://www.neuroendocrinecancer.org.uk calendar_today29-05-2012 18:56:40

11,11K Tweet

5,5K Followers

5,5K Following

Neuroendocrine Cancer UK #NotJustNECancer (@ncukcharity) 's Twitter Profile Photo

🎙️ New episode: Bridging Pharma and Patients in Neuroendocrine Cancer Care Neuroendocrine Cancer UK CEO, Catherine, talks with Tanya Hills, Boehringer Ingelheim, about collaboration, misconceptions, and the EP-NEC trial. Listen now: neuroendocrinecancer.org.uk/podcast/

kate (@katydearkate) 's Twitter Profile Photo

Slow 3K recovery run this evening 🏃🏻‍♀️🙏🏻✅ lovely day Chilling with Max and Lily tonight before early run with Tom tomorrow 🙏🏻🏃🏻‍♀️ ♥️thanks to everyone who has supported me All for Neuroendocrine Cancer UK #NotJustNECancer Kate 💙 #LetsTalkAboutNETs to raise awareness of these cancers. Please look at the info on the website 🙏🏻

Thor Halfdanarson (@oncothor) 's Twitter Profile Photo

Need an intro slide for a talk on systemic management of G3 NENs. Maybe this will work... I only get 12 minutes... If you want to see the final product as well as many other outstanding talks, check out the NANETS Regional Meeting in LA next weekend. nanets.net/regionals/los-…

Need an intro slide for a talk on systemic management of G3 NENs. Maybe this will work... I only get 12 minutes...

If you want to see the final product as well as many other outstanding talks, check out the <a href="/NANETS1/">NANETS</a> Regional Meeting in LA next weekend.

nanets.net/regionals/los-…
Julie Hallet (@halletjulie) 's Twitter Profile Photo

Symptoms & quality of life are key in #NETs care New tools🧰 from @asco for symtpom management in well-diff GEP-NETs ☑️carcinoid syndrome, carcinoid heart disease, carcinoid crisis & functional PNETs ☑️surgrery, liver-directed therapy & systemic 🔗📝ascopubs.org/doi/10.1200/OP…

Symptoms &amp; quality of life are key in #NETs care 

New tools🧰 from @asco for symtpom management in well-diff GEP-NETs
☑️carcinoid syndrome, carcinoid heart disease, carcinoid crisis &amp; functional PNETs
☑️surgrery, liver-directed therapy &amp; systemic 

🔗📝ascopubs.org/doi/10.1200/OP…
Neuroendocrine Cancer UK #NotJustNECancer (@ncukcharity) 's Twitter Profile Photo

Today on #InternationalNursesDay, we honour the impact of nurses , especially those supporting patients with neuroendocrine cancer. Your expertise, empathy, and advocacy change lives. Thank you, today and every day.

Today on #InternationalNursesDay, we honour the impact of nurses , especially those supporting patients with neuroendocrine cancer.

Your expertise, empathy, and advocacy change lives.

Thank you, today and every day.
Society for Endo (@soc_endo) 's Twitter Profile Photo

In celebration of #InternationalNursesDay, we’re proud to launch the 3rd edition of the Competency Framework for Adult Endocrine Nursing - "which comes with" an enhanced online learning platform offering comprehensive resources & mentoring opportunities for adult endocrine nurses

In celebration of #InternationalNursesDay, we’re proud to launch the 3rd edition of the Competency Framework for Adult Endocrine Nursing - "which comes with" an enhanced online learning platform offering comprehensive resources &amp; mentoring opportunities for adult endocrine nurses
Neuroendocrine Cancer UK #NotJustNECancer (@ncukcharity) 's Twitter Profile Photo

The neuroendocrine system bridges the nervous & endocrine systems, influencing everything from gut function to immune response. It’s also central to understanding complex cancers like neuroendocrine cancer.

The neuroendocrine system bridges the nervous &amp; endocrine systems, influencing everything from gut function to immune response.

It’s also central to understanding complex cancers like neuroendocrine cancer.
Neuroendocrine Cancer UK #NotJustNECancer (@ncukcharity) 's Twitter Profile Photo

After a lung neuroendocrine cancer diagnosis, Hayley was later diagnosed with DIPNECH - a rare condition needing ongoing surveillance. She’s learning, adjusting, and turning her experience into action for others. Read her story here: ow.ly/zPao50VT8FJ

NET Cancer Day (@netcancerday) 's Twitter Profile Photo

📌A major step in raising awareness about neuroendocrine cancer and the unmet needs of patients was made by Neuroendocrine Cancer UK #NotJustNECancer through supporting the Daily Express Cancer Care campaign. ☑️Read more about NCUK article: incalliance.org/ncuk-daily-exp… #LetsTalkAboutNETs

📌A major step in raising awareness about neuroendocrine cancer and the unmet needs of patients was made by <a href="/ncukcharity/">Neuroendocrine Cancer UK #NotJustNECancer</a> through supporting the Daily Express Cancer Care campaign. 
☑️Read more about NCUK article: incalliance.org/ncuk-daily-exp…
#LetsTalkAboutNETs
kate (@katydearkate) 's Twitter Profile Photo

Race day tomorrow for this amazing charity ❤️ Neuroendocrine Cancer UK #NotJustNECancer feel very honored to be running for them to raise awareness. I've trained hard for this it's not been easy. Thank you to everyone who has donated and read/shared information 🙏🏻♥️ tomorrow is only the start Kate 💙 #LetsTalkAboutNETs ❤️

Race day tomorrow for this amazing charity ❤️ <a href="/ncukcharity/">Neuroendocrine Cancer UK #NotJustNECancer</a> feel very honored to be running for them to raise awareness. I've trained hard for this it's not been easy. Thank you to everyone who has donated and read/shared information 🙏🏻♥️ tomorrow is only the start <a href="/KateNCUK/">Kate 💙 #LetsTalkAboutNETs</a> ❤️
Neuroendocrine Cancer UK #NotJustNECancer (@ncukcharity) 's Twitter Profile Photo

🎥 New webinar recording now available: Bill Harris & Elena Vrana (The Christie) outline the purpose, phases & patient value of clinical trials in neuroendocrine cancer — incl. a case study & advocacy insights. Watch here: youtu.be/DYBhHuFKhZM?si…

Neuroendocrine Cancer UK #NotJustNECancer (@ncukcharity) 's Twitter Profile Photo

Last week, Neuroendocrine Cancer UK CEO Catherine joined the Educational Exchange Ipsen Talk alongside colleagues from across the UK. Key topics: ✔️ Patient activation & empowerment ✔️ Shared decision-making ✔️ Tools to support NET patients Collaboration matters.

Last week, Neuroendocrine Cancer UK CEO Catherine joined the Educational Exchange Ipsen Talk alongside colleagues from across the UK.

Key topics:
✔️ Patient activation &amp; empowerment
✔️ Shared decision-making
✔️ Tools to support NET patients

Collaboration matters.
Neuroendocrine Cancer UK #NotJustNECancer (@ncukcharity) 's Twitter Profile Photo

Lung neuroendocrine cancer symptoms often mimic common respiratory conditions, leading to potential delays in diagnosis. Join our June webinar with Prof Was Mansoor (The Christie NHS) to learn more. 10/06/2025 - 6:00pm – 7:30pm. 🔗 ow.ly/nrMC50VZ3se

Lung neuroendocrine cancer symptoms often mimic common respiratory conditions, leading to potential delays in diagnosis.

Join our June webinar with Prof Was Mansoor (<a href="/TheChristieNHS/">The Christie NHS</a>) to learn more. 
10/06/2025 -  6:00pm – 7:30pm.

🔗 ow.ly/nrMC50VZ3se
Neuroendocrine Cancer UK #NotJustNECancer (@ncukcharity) 's Twitter Profile Photo

Atypical lung neuroendocrine cancer often presents with no symptoms, as patient Melanie Lucas shares in the Daily Express. Her diagnosis came via the NHS App. Her story highlights why earlier detection and mental health support are crucial. 📖 Read: express.co.uk/news/uk/205565…

Neuroendocrine Cancer UK #NotJustNECancer (@ncukcharity) 's Twitter Profile Photo

“If you think something is wrong with your body, keep telling the medics until someone listens to you.” Donna’s neuroendocrine cancer was missed on initial scans, but persistence led to diagnosis, surgery, and ongoing care. Read her story: ➡️ ow.ly/nS8E50W0JVn