NephCure (@nephcure) 's Twitter Profile
NephCure

@nephcure

Fighting for a world where all who are affected by rare, protein-spilling kidney disease are connected to new and better treatments — and one day, a cure.

ID: 1275081975968210945

linkhttp://nephcure.org calendar_today22-06-2020 15:03:41

1,1K Tweet

1,1K Followers

988 Following

SSC_Lab 🧬 (@sannacherchilab) 's Twitter Profile Photo

It was great to present an interactive session with Katarina Vukojevic at the 11th meeting of the Croatia School of Transplantation! Genetics meets anti-nephrin to help understanding recurrent FSGS! Lot of progress, some answers, some questions, and many open venues remain …

It was great to present an interactive session with Katarina Vukojevic at the 11th meeting of the Croatia School of Transplantation! Genetics meets anti-nephrin to help understanding recurrent FSGS! Lot of progress, some answers, some questions, and many open venues remain …
SSC_Lab 🧬 (@sannacherchilab) 's Twitter Profile Photo

Dr. Opeyemi Olabisi is an outstanding investigator in the field of #APOL1 kidney disease and #FSGS. His experience is also on #stemcells biology and #organoids and he will tell us how we can use these tools and platforms to gain insight into recurrent FSGS mechanisms of disease

NephCure (@nephcure) 's Twitter Profile Photo

“This is an amazing project,” Dr. Aliza Thompson, Deputy Director of the Division of Cardiology and Nephrology, said in regards to the PARASOL project. She now takes the stage at ASN, explaining more about the PARASOL findings. #ASNKidneyWeek #PARASOL

“This is an amazing project,” Dr. Aliza Thompson, Deputy Director of the Division of Cardiology and Nephrology, said in regards to the PARASOL project. She now takes the stage at ASN, explaining more about the PARASOL findings. 

#ASNKidneyWeek #PARASOL
NephCure (@nephcure) 's Twitter Profile Photo

That’s a wrap on American Society of Nephrology #KidneyWk ! A huge thank you to all the attendees, speakers, and organizers for making Kidney Week an unforgettable experience. Together, we’re creating a brighter future for kidney health worldwide!

That’s a wrap on <a href="/ASNKidney/">American Society of Nephrology</a> #KidneyWk ! A huge thank you to all the attendees, speakers, and organizers for making Kidney Week an unforgettable experience. Together, we’re creating a brighter future for kidney health worldwide!
Gbadegesin Lab (@gbadegesinlab) 's Twitter Profile Photo

Looking forward to having major stakeholders in the room to discuss clinical and research areas of need in rFSGS. Hopefully we can move the needle closer to effective and durable treatments American Society of Pediatric Nephrology International Society of Glomerular Disease NephCure 🙏🏽

Rare Diseases Clinical Research Network (@rarediseasesnet) 's Twitter Profile Photo

New research from the #NephroticSyndrome Study Network (NEPTUNE): ✅ Exploring How Residential #AirPollution Affects Disease Progression in Patients with Primary #GlomerularDisease Listen and read more: rarediseasesnetwork.org/news/research-…

Shannon (@cure4myjulia) 's Twitter Profile Photo

#GivingTuesday2024 PLEASE support NephCure they help us with #RKD like Julia’s #FSGS There is NO known cause or NO CURE yet. Without research we can’t find a cure or better tx options #donate #GivingTuesday

#GivingTuesday2024 PLEASE support <a href="/nephcure/">NephCure</a> they help us with #RKD like Julia’s #FSGS
There is NO known cause or NO CURE yet. Without research we can’t find a cure or better tx options #donate #GivingTuesday
NephCure (@nephcure) 's Twitter Profile Photo

25 years ago, rare kidney disease (RKD) was a lonely battle fought in the dark. NephCure turned on the light. Starting in 2000, we’ve been the leading voice creating hope for patients navigating RKD. The work isn’t done. But today, we stand 25 years closer to a cure for RKD.

25 years ago, rare kidney disease (RKD) was a lonely battle fought in the dark. NephCure turned on the light.
Starting in 2000, we’ve been the leading voice creating hope for patients navigating RKD.

The work isn’t done. But today, we stand 25 years closer to a cure for RKD.
NephCure (@nephcure) 's Twitter Profile Photo

Today is Rare Disease Day! This year, we're going to #LightUpForRare in honor of our rare kidney disease community - recognizing the challenges of their journey and reestablishing our commitment our rare kidney disease patients and families.

Today is Rare Disease Day! 

This year, we're going to #LightUpForRare in honor of our rare kidney disease community - recognizing the challenges of their journey and reestablishing our commitment our rare kidney disease patients and families.
NephCure (@nephcure) 's Twitter Profile Photo

During #NationalKidneyMonth, we're uniting patients, families, researchers, and physicians to drive RKD awareness and ensure those at risk or affected by these diseases receive the right education and support. Join us in creating a future without RKD. champ.ly/Ck9z-2sO

Tobias B. Huber (@tobias_b_huber) 's Twitter Profile Photo

Published today: JCI - Passive transfer of patient-derived anti-nephrin autoantibodies causes a podocytopathy with minimal change lesions. Nicola M. Tomas Felicitas Hengel jci.org/articles/view/…

RARE Revolution Magazine (@rarerevolutionm) 's Twitter Profile Photo

Join NephCure on 29 April, 7pm ET for a vital townhall discussion that will focus on urgency in raising awareness on APOL1-related kidney disease in Black communities, the importance of prevention and genetic testing, and advancements in research. Go to bit.ly/4471m3R

Join <a href="/nephcure/">NephCure</a> on 29 April, 7pm ET for a vital townhall discussion that will focus on urgency in raising awareness on APOL1-related kidney disease in Black communities, the importance of prevention and genetic testing, and advancements in research.

Go to bit.ly/4471m3R
Shikha Wadhwani (@swadhwanimd) 's Twitter Profile Photo

This is an incredible step forward for our #FSGS patients!! Huge shout out to everyone involved in #PARASOL ☂️ ✨ for paving the way for this NephCure International Society of Glomerular Disease announcements.asx.com.au/asxpdf/2025042…

NephCure (@nephcure) 's Twitter Profile Photo

Did you know that 13% of African Americans have the APOL1 gene changes that can cause APOL1 kidney disease? Help us spread awareness and education by registering for our APOL1 Awareness Town Hall below: us06web.zoom.us/webinar/regist…

Did you know that 13% of African Americans have the APOL1 gene changes that can cause APOL1 kidney disease?

Help us spread awareness and education by registering for our APOL1 Awareness Town Hall below:

us06web.zoom.us/webinar/regist…