🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

Happy #ThrowbackThursday! Today, we're reminiscing about our Boardman, Ohio walk from last year. We’ll continue sharing more pictures as we lead up to this year's event. Tag yourself or someone you know and share! Register for this year's walk here: raceroster.com/.../99054/numb….

youtu.be/8UFC6jOBwKQ?si… We hope everyone had a fantastic Father's Day weekend! With both Father's Day and Mother's Day for 2025 now behind us, we want to focus on the parents of children with NF. our panelists will offer valuable insights, share tips and tricks.

Today we are exploring, NF2-Related Schwannomatosis (NF2-SWN). NF2-SWN is a rare genetic disorder that affects approximately 1 in 25,000 individuals and impacts all populations equally. This informative infographic was created by NF2-SWN warrior, Abbi Evans.

Don’t miss out on the chance to showcase your team spirit: the deadline to add a custom logo to the Boardman event T-shirt is fast approaching. Register 10 or more team members, and your custom logo will be proudly featured on the back of the shirt. raceroster.com/events/2025/99…

Happy #ThrowbackThursday ! We continue our walk down memory lane with our Boardman, Ohio walk from last year. Want to join in the fun this year? Sign up for our walk on July 19 to make a difference! raceroster.com/events/2025/99…

Happy Friday! Have a wonderful weekend! #tgif #nfnetwork

Today, we are revisiting our webinar presented by NF Central Plains, titled "Food and NF: Two Insights into Diet and Its Effect on NF." youtu.be/nDIJF0LQc10?si….

If you want to create a real impact in raising awareness and fostering advancements for NF, there are numerous ways you can contribute. Read more here... nfnetwork.org/fundraising/wa…

As of today, SpringWorks Therapeutics is officially a Healthcare company of Merck KGaA, Darmstadt, Germany. Together, we remain focused on helping patients with rare tumors live longer, better lives. Learn more: emdgroup.com/en/news/spring…

The rolling enrollment deadline has been extended, and this study will now remain open for enrollment until December 2025. For more information and to check eligibility details, please visit their website at tinyurl.com/3eja5fcv #NF1 #Boston #Neurofibromatosis

Hey Ohio! As we prepare for the holiday weekend, remember that today is the last day to secure your walk perks before enjoying the fireworks! Today is the final day to order your T-shirt and guarantee it arrives in your preferred size, so sign up now! raceroster.com/events/2025/99…

Be among the first to enjoy the new imagine inclusion playground, games for all ages. And icy treats! No charge - just rsvp to [email protected] #neurofibromatosis #omahanebraska #omaha

Join us for our exciting inaugural NF Strong Wellness Event, a free, engaging two-part series for all NF families in Georgia! Sign up today! bit.ly/4lhIS62 #neurofibromatosis #wellness #WellnessChallenge #Georgia #atlanta

We want to share a heartfelt story about a courageous young lady whose bravery and smile brings hope and strength to herself and those around her. See the video here: youtu.be/EXabG6Jyz6A?si… #neurofibromatosis #NF1 #taylorswift

Hey Ohio! We are less than two weeks away! Ready to make a difference for NF this year? Sign up for our Walk coming up on July 19! raceroster.com/.../99054/numb…

Social media is full of "lifehacks." But how about ones specifically for those living with neurofibromatosis? Watch this educational webinar with Dr. Kaleb Yohay as he discusses several tips & tricks for the NF community. youtu.be/3rEvwCRLc6c?si…

We are T-Minus 12 Days away from this event. It’s a great event to help a great cause. All proceeds will go to the Neurofibromatosis Network. We will have a basket raffle and a 50/50 drawing. Please use the link to signup below. share.scoreholio.com/O8GNyCSKXSb

Meet Dr. Angela Hirbe of the Washington University Neurofibromatosis (NF) Center. She has been awarded a grant for her study titled "Define the Global Dysregulation That Occurs in Cells with Chr8Q Gain (MPNST)." Read more about her and her study here: tinyurl.com/jj6wpaa2

Yesterday, our Boardman Walk Chair, Jenn, proudly received a generous donation from NF1 warrior Michelle and the incredible Eagle care team in Cleveland, OH. We are immensely grateful for their kindness!