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Inaugural edition of the IBD India Newsletter, coming soon! #makeIndiaIBDaware

A resource created by patients with IBD living in India, for patients with IBD living in India. Translation into regional languages underway!

Day 3 - #CrohnsAndColitisAwarenessWeek x #InternationalDayOfPersonswithDisabilities Persons with IBD and/or ostomies are not included in the Rights of Persons with Disabilities (RPwD) Act of India, and do not receive any accommodations. tinyurl.com/invisiblerpwd

As a professional woman, and an IBD parent, it is a mistake to not laser focus on scientific advances and improving outcomes for IBD patients. There is an opportunity cost to studying, writing, and conference time on these types of topics, and that is not talking about what

5 years ago, we saw lack of an IBD patient movement in India as an opportunity to create a local, community led effort to change things. People who view advocacy as a business however saw a market to capitalize on. Equity and inclusion are a facade. Hope things improve in future.

My attempts to make something of myself with Crohn's, Ostomy and Cancer in an unaccommodating ecosystem have stripped me of everything I identified with. How strong can one be? I'm only human. Sometimes, maybe a lot of times, skill and hard work aren't enough. #makeIndiaIBDaware

🌟 Thank you, Christina Raj, Saurabh Singh, Nikhil Jayswal, Srijan Mittal, & Nadir Aman, for your powerful insights on #raredisease realities at #BridgingRare 2024. Your voices inspire action! 🔗 View visuals: buff.ly/46DlB8g #PatientCare #IndoUSrare #Bridge4Rare

Getting a #colonoscopy when you #IBD carries a distinct set of challenges and trauma compared to the average person receiving a colon cancer screening scope. How best to support patients + loved ones: lightscameracrohns.com/2024/12/23/the…

Much thanks to EFCCA for covering my journey as a patient and a founder/director IBD India in their Feb 2025 magazine. And extra thanks for producing one of the most accurate version of my story. Page 32 at efcca.org/sites/default/…

A new generation of cancer-preventing vaccines could wipe out tumors before they form. Learn more on #WorldCancerDay: scim.ag/8o0 News from Science

Colonization is NOT over! ⚡️ We are heading from the frying pan into the fire 😰 Happy to share our latest publication - - we warn against the dangers of neo-colonization by the local elites and suggest solutions I am sure this will resonate with all Global South Health

In the latest EFCCA Magazine, CCYAN alum Nikhil Jayswal shares his journey of living with #IBD in India—an experience that led him to found IBD India. 🇮🇳 Read more: efcca.org/sites/default/…

When patients are not heard by their doctors there can be devastating consequences. So why does this happen & what can be done to address it? On the cover, Dr Rageshri Dhairyawan explores this question. Read her full essay & more: hubs.li/Q036Khk-0 Dr Rageshri Dhairyawan

None better than Seb to talk about underrepresented populations in IBD research #ECCO2025 Difficult to choose the best slides, thanks Seb

As my health continues to deteriorate, I'm worried whether IBD India will sustain, but I'm a bit more hopeful since past few days, as more community members are taking steps and asking questions about what needs to be done for things to change. I hope the spirit sustains.

Great writing and one of the best things I've read in a long time. "For solidarity, I search for disability stories. But I feel lonelier than ever when I find them." "These social media stories make it appear that disabled people who can access community are the majority."

Cancer is the worst. Scientists captured an image of how cancer cells create nanotubes to literally "hijack"mitochondria from immune cells.

It’s my observation that DDW2025 is once again a massive compilation of old, known concepts—at least based on posts here (after going the last two years, I decided to skip this year). I understand that these presentations have utility for practitioners, especially younger ones,

The Physical Turing Test: your house is a complete mess after a Sunday hackathon. On Monday night, you come home to an immaculate living room and a candlelight dinner. And you couldn't tell whether a human or a machine had been there. Deceptively simple, insanely hard. It is the

Working on this toolkit was a great learning experience for me as well as an opportunity to share my learnings on building peer support groups in resource-constrained settings. Please check out the toolkit and share.