While commonly recognized in early childhood, #Neurofibromatosis type 1 (NF1) is a lifelong, progressive condition that can vary in severity. From initial signs like café au lait spots to neurofibromas, see how this disease can manifest below. #NFAwarenessMonth

Enrollment Success! NTAP’s Natural History Study on cNFs has enrolled 495 participants. With goals to identify populations @ risk, study endpoints & create historical control for future clinical trials. TY to all of our participants for your commitment! #NFAwarenessMonth #EndNF

We're proud to sponsor the 2025 NF Conference in Washington, DC. --Visibility matters. --Collaboration drives breakthroughs. --Families living with NF deserve action. Please stop by our table to learn more. 💙 #NFCon25 #EndNF #NF1

Are you an early-career clinician scientist passionate about transforming care for people with NF1? The Francis Collins Scholars Program is a prestigious, fully funded opportunity - now accepting applications. Learn more at n-tap.org

Grateful for Dr. Karen Horton’s inspiring leadership at Johns Hopkins Radiology 🙌 and the Reames family for their support —she’s shaping the next generation of radiology leaders. #MedicalEducation #Radiology #FutureOfMedicine #ThankYou

The cancer center’s D. Wade Clapp, MD, and colleagues have published their latest findings in the Journal of Neuro-Oncology. Learn more: ow.ly/elPY50Win4s. #ResearchCuresCancer #NCIcomprehensive Journal of Neuro-Oncology

🧬 Help Advance Genomic Interpretation—Join a CAGI7 Challenge! Sage Bionetworks is excited to support the recently launched CAGI7 (Critical Assessment of Genome Interpretation) challenges—open to researchers, data scientists, and students who want to help predict the functional

We're excited to have Chetan Bettegowda from Johns Hopkins Neurosurgery join us this week for our #Neurosurgery Grand Rounds!

Pipeline of experts advances discovery in neurofibromatosis hub.jhu.edu/2025/07/15/pip… via The Hub Accepting applications now for the 2026 Francis Collins Scholars Program. #EndNF #NFResearch

Congrats! Excited to see the next generation of scientists driving discovery for the NF1 community. Make this summer count! 🔬🧬 #NF1 #Research #FutureScientists #SummerInterns #TeamScience

🚨 Double the funding, double the chance! Apply now for the DHART SPORE Developmental Research Program (DRP) & Career Enhancement Program (CEP) Awards. Don’t miss out! 🔗 Apply here: indianactsi.org/funding/opport… 🗓️ Deadline: August 13, 2025

🚨 Just 20 days left! 🚨 Apply by Aug 13 for up to $50K from the DHART SPORE DRP & CEP Awards to support NF1 & Rasopathy research. Open to clinical, population & basic science investigators. 🔗 dhartspore.org/about/developm… #NF1 #ResearchFunding #DHARTSPORE

🚨Updated Criteria! NTAP Johns Hopkins Medicine is funding early-career PhD (or equivalent) scientists focused on NF1 🧬 Learn more: NF1 Laboratory Scholars Program—mentorship, salary + project support! 🔗n-tap.org/who-we-are/new… · LOI due: Oct 20, 2025 #EndNF

Incredible time for the Francis Collins Scholars community! Our 7 summer interns shared powerful NF1 research on MPNST, optic gliomas, GI symptoms & neuropsychiatric profiles. Huge thanks to mentors & supporters! #FrancisCollinsScholars #NFResearch

App open thru 9/8! Junior faculty, fellows, postdocs & PhD students in #NFresearch—apply now for the NFYIF: a career-catalyzing event for mentorship, productivity & community info.ceconcepts.com/nfyif-001 #EndNF #Neurofibromatosis #YoungInvestigators #PostdocLife #PhDlife #ceconcepts

Fueling the next wave of NF research: Nearly $1.5M in Young Investigator Awards will drive cutting-edge science, smarter care & real solutions for NF1, NF2-SWN & SWN. Meet the early-career scientists shaping NF’s future: ctf.org/news/yia2025/

Great to host Vanessa L. Merker, PhD yesterday! She highlighted how many with NF1 lack access to specialty clinics-and how decentralized trials + virtual interventions can help bridge the gap. Exciting work on NF1-health surveillance & proposed mobile apps for pain management.#EndNF #research

Are you an early-career clinician-scientist? Ready to make an impact on NF1 research? Join us for an information session on the Francis Collins Scholars Program. Wednesday, October 1, 2025 @ 10 AM EST 🔗 Register here: forms.office.com/r/nGqDFnN2B3 #Research #EndNF #NF1

1 day way! Join us tomorrow at 10AM for the Francis Collins Scholars Information session.

NF1 Researcher? NTAP launched a Scholars program to support early-career PhD-level scientists. LOIs are due on October 20th. Apply today!