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With great sorrow, we announce today the passing of pioneering stem cell scientist and former Australian of the Year, Alan Mackay-Sim AM. We offer our deepest condolences to his family and friends — ow.ly/HpEE50MhTrb

We know 2023 is gonna be a good one, when it starts with generous acts like this effort we experienced from the legends at Murdoch Children's Research Institute (MCRI) and AIBN Research Many thanks to the Jain family, for giving one more family's samples to our #SPG56 research🙏 🔬 🧬 ourmoonsmission.org/a-third-patien…

And seemingly out of the blue, an empath at the ABC has come across our 2021 interview & posted it as a #storystream A heartwrenching reminder of the day of the diagnosis, but importantly, how we've built a ladder of hope out of that pit of despair... abc.net.au/radio/programs…

#ShowYourStripes for Rare Disease Day Last year, dozens of locations globally donned their brightest stripes for Our Moon's Mission & this year, we invite YOU & your community to join us! Pleaee retweet & DM if you'd like more info 🌈 🌙 #RareDiseaseDay2023 #GeneticCuresForKids

28 Feb is Rare Disease Day & for Our Moon's Mission it was peak of successful month long rainbow striped awareness raising campaign, both locally & globally, feeling love from Australia to Ireland, the US & beyond 🙏 #ShowYourStripes #RareDiseaseDay #CureSPG56 #GeneticCuresForKids

On #InternationalWomenDay, Our Moon's Mission salutes & thanks incredible female researchers in our team who harness their passion for science & discovery, & funnel it into research to identify & develop a treatment for the #RareDisease SPG56. #WomenInResearch #GeneticCuresForKids

HUGE NEWS for SPG56 families and hope for all children living with rare disease! $1M to help #CureSPG56 through gene therapy and organoid research! ➡️ aibn.uq.edu.au/article/2023/0… #CureSPG56 #GeneticCuresForKids #MRFF #MedicalResearchFutureFund AIBN Research youtu.be/HlHzHOEdwzI

Exciting news!! This month we've been chosen as one of PayPal Australia featured charities. What does this mean? PayPal make it easy to support Our Moon's Mission when you shop online, by providing option to set us as your favourite charity & donate $1 each time you checkout with PayPal🌙

Meet Ant Cornforth, A Cork native who's taking on a grueling 106km challenge to raise funds to find a cure for 5-year-old Aussie Tallulah Moon Whitrod, who’s battling a rare genetic disease back in Australia 🇦🇺⬇️ Our Moon's Mission facebook.com/donate/3135398… #MilestoneMountainMission

Such a highlight of Our Moon's Mission year- meeting tactfully funny and thought-provoking Karni Liddell at today's St Andrew's Anglican College #BusinessBreakfastSeries #DeadsetLegend #MotivationalSpeaker #Journalist #SocialWorker #Podcaster #Paralympian #AdvocateForWhatsRight

Tonight is a serendipitous night as the Hunter's Moon rises, marking largest supermoon of 2024! 🌕 As we go to auction our beloved family home with @RayWhiteGroup Darwin to #FundTheCure, it's perfect moment to showcase our #GlobalMoonWalkForOMM video 🌙 youtu.be/7K5Y_S9xbDU?si…

Stoked that #TallulahsArmy will be flying the #RareDisease flag of hope and love at Coldplay's #moonmusic tour in Melbs. Lets #cureSPG56 🧬✨ #MoonMusicForTheCure #SkyFullOfStars bringing #Magic for #GeneTherapy instagram.com/reel/DBYPexbp9…

When superheros like Melissa Rudy use superpowers like Fox News to help save kids and cure #RareDisease and connect 'rare families' in need foxnews.com/health/family-…

🌙 We’re stoked #TallulahsArmy legend Boyzmels78 just got her her #MoonMagic shirts for Coldplay gig in Melbs on 31 Oct! 🎶🌕 Let’s summons this #MoonMagic and #DanceForACure! 🌌 Join the mission, #CureSPG56 to save our girl & donate to Mel shorturl.at/dFnDv 💜 🌕🧬

Still glowing from the Shimmering Moon Gala! ✨💛 We raised an epic $85K to cure SPG56, fueled by the crowd's electric energy + inspiring words from Karni Liddell & @ErnstWolvetang. Together, we’re building #TallulahsArmy. Thank you! 💛 #SMG2024 #OurMoonsMission #CureSPG56