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When Wendy Prigge Rauwerdink was diagnosed with ALS, her friends from Sheboygan North High' Class of '72 posed au naturel for a 2017 ALS awareness calendar. Even after her friend passed, her friends continue to support Robert Packard Center for ALS Research. Read more: giving.jhu.edu/story/packard-… #LouGehrig #ALS

Webinar Announcement! 💻 🗓️ On June 25th, join us as we dive into “Understanding the Role of Genetic Testing and Genetic Counseling for Individuals and Families Affected by ALS.” ➡️ Register Here: us06web.zoom.us/webinar/regist…

💡The latest study (▶️vibbio.tech/3KHe26n) from Prof. Sandrine Da Cruz discovered that FUS protein aggregates spread in a prion-like mechanism, contributing to neurodegeneration in frontotemporal dementia (FTD) and amyotrophic lateral sclerosis (ALS).

Members of the Packard team are in Sweden this week attending the ENC ALS Annual meeting. Several member of the Center's Scientific Advisory Board and our research network are presenting their work and moderating several sessions during the three day conference.

Packard on the Move: Day 2 at the Enacls Annual Meeting brought a spirited debate entitled: ALS Future: Targeted vs. Untargeted/Cocktail Treatments (featuring Dr. Angela Genge and Dr. Pamela Shaw) and a poster from Johns Hopkins Investigator Dr. Alyssa Coyne.

Congratulations Steve Gleason - "Live Impossible" on this well deserved honor! We will be tuning in tonight!

We are excited to be participating in the The ALS Association ALS Nexus conference this week in Dallas Texas. Packard Center Director, Dr. Jeffrey Rothstein, appeared in the morning panel discussing what’s next in drug discovery.

A key take-away from the ALS Nexus session, Prime Targets: What’s Next in ALS Drug Development: “Antisense is probably the fastest moving therapeutics from discovery to clinic."- Jeffrey Rothstein, M.D., Ph.D., Director, Robert Packard Center for ALS Research at Johns Hopkins

This morning, members of the Packard Center team and friends participated in the 10th Anniversary ALS Ice Bucket Challenge at the @ALSassociation Nexus Conference. What a great way to start the day! #ALSNexus

Become an ALS Research Ambassador! The 2024 Baltimore/Washington, DC Metro Area ALS-CRLI will take place September 19/20 in Baltimore. The deadline to apply is Friday, August 9, 2024. For more information and how to apply: packardcenter.org/apply-to-becom…

Steve McMichael was diagnosed with ALS in 2021. This past weekend he was inducted into the NFL Hall of Fame surrounded by his former Chicago Bears teammates. Included in the group was fellow HOF member & Packard Center board member Jim Covert. tinyurl.com/5pdcr2h4

Give the gift of hope on Tuesday, December 3, 2024. Make a gift to the Packard Center on Giving Tuesday. packardcenter.org/give. All gifts made will be matched dollar-for-dollar up to a total of $125,000.

During this special time of year, it is important to pause and reflect on those things that are most meaningful to us. At the Robert Packard Center for ALS Research, we are grateful for our dedicated community of supporters and partners.

Excited to be a part of the ALS/MND Alliance 2024 Alliance Meeting in Montreal this week. This week is all about bringing the global ALS community together.

Please share this with your undergraduate students interested in a paid neuroscience internship for next summer! A unique opportunity to work with BNI researchers across all disciplines!

We enjoyed hearing from our Hopkins colleague, Dr. Ambereen Mehta, who spoke today at the @Allied Professionals Forum. Dr. Mehta is a palliative care specialist at the Johns Hopkins Center for ALS Specialty Care and she presented on palliative care strategies for ALS clinicians.

Congratulations to Packard Center advisor Dr. Jonathan Glass (Emory University) on receiving the 2024 Forbes Norris award at the 35th Annual International On ALS/MND.

Dr. Jeff Rothstein announced the new Longitude Prize on ALS today at the Annual Int'l Symposium on ALS/MND. The Prize is a global initiative to incentivise the use of AI to transform drug discovery for the treatment of ALS. Packard is a proud to be a supporter of this project.

Excited for another day at the 35th International Symposium on ALS/MND. We've heard fascinating talks by several Packard Center-funded investigators and advisors and interacted new and existing partners.

Thank you to the ALS/MND Alliance, ALS Canada, and MND Association for a great week of science, collaboration and informative and thought-provoking conversations. We greatly appreciated the Canadian hospitality during our stay in beautiful Montreal! 🇨🇦