Patient-Led Research Collaborative (@patientled) 's Twitter Profile
Patient-Led Research Collaborative

@patientled

Patient-led research and advocacy for #LongCovid and infection-associated chronic conditions!

ID: 1330038435722260490

linkhttps://linktr.ee/patientled calendar_today21-11-2020 06:40:56

2,2K Tweet

26,26K Followers

636 Following

Hannah Davis (@ahandvanish) 's Twitter Profile Photo

Awesome collaboration finds 2 distinct ME/CFS clusters: "Instability & obstructions at the craniocervical junction may contribute to impaired movement & production of CSF, in turn altering MMP or cytokine levels in either cluster." academic.oup.com/jimmunol/advan… #mespine #longcovid 1/

Awesome collaboration finds 2 distinct ME/CFS clusters:

"Instability & obstructions at the craniocervical junction may contribute to impaired movement & production of CSF, in turn altering MMP or cytokine levels in either cluster."
academic.oup.com/jimmunol/advan… #mespine #longcovid 1/
Hannah Davis (@ahandvanish) 's Twitter Profile Photo

Awesome new paper by the incredible Jeff Wood, Tess Falor, Ph.D. | Renegade Research and team (including Dr. David Kaufman). "Brainstem dysfunction as a potential etiology of ME/CFS and Long COVID": preprints.org/manuscript/202… #LongCovid #pwME

charlos (@loscharlos) 's Twitter Profile Photo

ā€œEBV was for years dismissed as a mild rite of passage.. But that view has been changing rapidly since a 2022 study provided strong evidence EBV is a trigger for multiple sclerosis.. Researchers also believe EBV plays a role in.. certain cancers.. a hidden driver of #LongCovidā€

ā€œEBV was for years dismissed as a mild rite of passage.. But that view has been changing rapidly since a 2022 study provided strong evidence EBV is a trigger for multiple sclerosis.. Researchers also believe EBV plays a role in.. certain cancers.. a hidden driver of #LongCovidā€
Patient-Led Research Collaborative (@patientled) 's Twitter Profile Photo

We're hosting a Patient-Led Research Fund (PLRF) webinar on July 9, 1–4:30PM ET! Hear results from 10 PLRF-funded biomedical studies (on microclots, T cell exhaustion, trials, & more), all selected by a panel of patient-researchers. Register: us02web.zoom.us/webinar/regist… #LongCOVID

We're hosting a Patient-Led Research Fund (PLRF) webinar on July 9, 1–4:30PM ET!

Hear results from 10 PLRF-funded biomedical studies (on microclots, T cell exhaustion, trials, & more), all selected by a panel of patient-researchers.

Register: us02web.zoom.us/webinar/regist…
#LongCOVID
Tess Falor, Ph.D. | Renegade Research (@tessfalor) 's Twitter Profile Photo

Join us on July 9th! I'm a patient rep on the foraminal stenosis and microbial metabolites ones. This should be a fun meeting getting updates from everyone. It's really cool seeing the projects we chose starting to get interesting results! I'm grateful to Patient-Led Research Collaborative that I

Hannah Davis (@ahandvanish) 's Twitter Profile Photo

We're hosting a webinar on the results of our Patient-Led Research Fund - 10 biomedical studies all selected by patients! Please join! us02web.zoom.us/webinar/regist… #LongCovid

Danielle Beckman (@danibeckman) 's Twitter Profile Photo

I just registered! This is going to be such a great opportunity to catch up on the #LongCovid and #MECFS research supported by Patient-Led Research Collaborative Register for free here: us02web.zoom.us/webinar/regist…

RTHM (@rthm_health) 's Twitter Profile Photo

ā‰ļøšŸ“¢ Calling those with #LongCOVID who have had a Pemgarda infusion — how did it affect your symptoms compared to your pre-infusion baseline? If you had improvements or worsening, let us know in the comments how long they have lasted. Please share šŸ™#pwLC Patient-Led Research Collaborative

Solve ME/CFS Initiative (@plzsolvecfs) 's Twitter Profile Photo

Register today for our webinar ā€œThe ADDRESS-LC Trial: Studying the Impact of Bezisterim on Brain Fog and Fatigue in People with #LongCovid.ā€ Sign up here: us02web.zoom.us/webinar/regist…

Register today for our webinar ā€œThe ADDRESS-LC Trial: Studying the Impact of Bezisterim on Brain Fog and Fatigue in People with #LongCovid.ā€  
Sign up here: 
us02web.zoom.us/webinar/regist…
Solve ME/CFS Initiative (@plzsolvecfs) 's Twitter Profile Photo

Join panelists Michael Peluso, MD (UC San Francisco) Penny Markham (BioVie Inc) & Ezra Spier (Patient-Led Research Collaborative) who will discuss the implications of the trial for people with # MECFS & other #IACCIs. Attendees with Long Covid will learn more about how to get involved.

charlos (@loscharlos) 's Twitter Profile Photo

Very excited for the results of this !! Pretty incredible Patient-Led Research Collaborative was able to get 10 high impact studies off the ground for just $5M. Given the scale of this public health crisis, would love to see someone fund a new slate of #LongCovid studies through PLRF every year..

LongCovidJourney.com (@longcovidjourne) 's Twitter Profile Photo

charlos Patient-Led Research Collaborative Huge thanks to Patient-Led Research Collaborative — turning $5M into 10 high-impact #LongCovid studies is incredible. Grateful for this patient-led model that delivers real, evidence-based progress. We need more of it.

Guty Schnauzer (@guty2370) 's Twitter Profile Photo

Excelente oportunidad para estar enterado de los resultados de nuevas investigaciones #LongCovid #MECFS RegĆ­strate gratis šŸ‘‡

Rehabilitation Science Research Network for COVID (@uoftcovidrehab) 's Twitter Profile Photo

Patient-Led Research Collaborative is hosting a free webinar next week, where the results and latest progress from biomedical studies funded by the Patient-Led Research Fund (PLRF) will be presented! When: Thursday July 9th, 2025 | 1PM - 5PM ET Where: Register on Zoom us02web.zoom.us/webinar/regist…

<a href="/patientled/">Patient-Led Research Collaborative</a> is hosting a free webinar next week, where the results and latest progress from biomedical studies funded by the Patient-Led Research Fund (PLRF) will be presented!

When: Thursday July 9th, 2025 | 1PM - 5PM ET 
Where: Register on Zoom us02web.zoom.us/webinar/regist…