PAVFCOS
@pavfcos
A collaboration of patients and clinicians developing a core outcome set for pouch fistula. To register go to website or email: [email protected]
ID: 1486698413609652224
https://delphimanager.liv.ac.uk/pavfcos/Delphi 27-01-2022 13:51:43
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First round of PAVFCOS delphi study is live! Please register at delphimanager.liv.ac.uk/pavfcos/Delphi St Mark's Hospital RedLionPouchSupport IA Pouch Group Crohn's & Colitis Foundation Phil Tozer Sue Clark Nusrat Iqbal Charlene Sackitey
๐ฃ Calling all Colorectal surgeons, gastroenterologists, radiologists & nurse specialists treating pouch fistula -please take part in our Delphi study. ๐ 2 surveys, 10 minutes to complete. ๐จ Email [email protected] ๐ delphimanager.liv.ac.uk/pavfcos/
Peter Higgins @drtifftaft Yes, absolutely we do๐Call out sheet for patients. Please retweet and join our Delphi Study๐ Patient views are the most important part of COS. ๐ 2 surveys, 10 minutes to complete. ๐จ Email [email protected] ๐ delphimanager.liv.ac.uk/pavfcos/
๐ฃ Call out to patients to join the Pouch fistula QoL study๐. Please get in touch via Twitter or email [email protected] if you can spare 10 minutes to complete an online questionnaire RedLionPouchSupport IA (Ileostomy and Internal Pouch Association) St Mark's IBD Patient Panel Crohn's & Colitis UK ACPGBI-PLG PAVFCOS Phil Tozer