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What we hope is happing now for #ALS... U.S. FDA: We like the improvements we are hearing about from patients in the #NurOwn trial & EAP. The CSF biomarker data looks very promising. Let's talk Brainstorm. BrainStorm: We'll be right over #FDA with our #NDA. C Lebovits FDA Biologics

Reino Unido abre un programa de terapia génica contra la ELA debida a mutaciones en C9orf72 #ELA #ALS #MND ALS News Today ALS/MND Alliance fundela.es/noticias/inves…

ALS-THE FORGOTTEN DISEASE ALS ACCESS No More Excuses ALS Watchdogs! Sean Mino Maurice Benard Eric Braeden Once again ALS-THE FORGOTTEN DISEASE Merck is asking the FDA to Approve CoVid19 Medication Brainstorm asked for Approval of NuOwn Denied PLEASE FDA BOTH ARE IMPORTANT Help ALS!! #NUROWN4LIFENOW

I've had this reoccurring nightmare where I'm lost in an unfamiliar building on a cliff...searching for the way while being chased. When I wake, I'm racing against the #ALS clock...trying to find a way to #NurOwn! FDA Biologics U.S. FDA With a reality like this, who needs nightmares?

It’s amazing how swiftly the U.S. FDA has responded to #COVID with #vaccines and #medications with no long term, drug-out trials or years worth of data to prove effectiveness while #ALS patients die every 90 minutes for the last 152 years. #EndALS #ItsTime #NurOwnNow

ALS-THE FORGOTTEN DISEASE ALS ACCESS No More Excuses ALS Watchdogs! Sean Mino Maurice Benard Eric Braeden President Donald J. Trump Victims have been tortured mentally knowing that NurOwn works yet FDA will NOT APPROVE Many give up READY TO DIE Richard Fought to live Victims are Dying while Advocating #NUROWN4LIFENOW

Only 1 day left until #ECTRIMS2021. Only 2 days left until the Phase 2 Clinical Trial Data of #NurOwn in Progressive #MS will be presented at the 37th Congress of the European Committee for Treatment and Research in Multiple Sclerosis.

2 yrs ago, Elsie asked why #ALS Assn wasn't advocating for #NurOwn & using 💰 from #IceBucketChallenge to help? Elsie died b4 she could celebrate: Vacations Birthdays Weddings Holidays We cannot let another generation of pALS #DieWaiting when we know #NurOwnWorks #notimetodie

We are on the ALS Titanic. There are lifeboats but we aren’t allowed to use them! PLEASE let us use the lifeboats @senrobportman Sherrod Brown Let us have NurOwn! Cosponsor S1813-the ACT for ALS. Day 72 of begging for our lives.

ALS-THE FORGOTTEN DISEASE ALS ACCESS No More Excuses ALS Watchdogs! Eric Braeden Maurice Benard How many people will hear I'M SORRY YOU HAVE ALS today? How many will take their LAST BREATH ALS is the Silent Pandemic Worldwide Every 4m 1 Dies & 1 Diagnosed FDA Stop the Dying Help NOW #NUROWN4LIFENOW

El Gobierno Veta a los afectados de E.L.A Nos dejan MORIR sin una vida digna.Que se haga viral, les llegue se les caiga cara de vergüenza si es que la tienen. Gobierno de España Pedro Sánchez Inés Arrimadas Informativos Telecinco Todo es verdad Risto Mejide Antena 3 Noticias EFE Noticias

ALS-THE FORGOTTEN DISEASE ALS ACCESS No More Excuses ALS Watchdogs! Dr. Janet Woodcock Eric Braeden Maurice Benard Imagine being put in a Straight-Jacket legs & feet bound, voice silenced 24/7 this is ALS SCARED YET CoVid19 Vaccine is Approved in just month FDA WHY NOT SAVE ALS VICTIMS #NUROWN4LIFENOW

Hoy hace dos años que volví a nacer gracias a la traqueostomía. Estoy mucho mejor que los dos años antes de la operación... Vuelvo a tener vida, y disfruto del día a día. Como dice mi gran amigo Jordi Sabaté Pons VIVA LA VIDA #JuntosVenceremosELA #ELA #ALS

Wow. The two responses are VERY different. WHY? ALSA asks for $, sends us glossy forms on making a will & naming ALSA as beneficiary. I’ve never been encouraged to LIVE, but have info on how to DIE. They show clear bias against PALS gaining access to #NurOwn. I must ask: WHY?

There's no light at the end of the tunnel with #ALS. A bad day physically is often the start of worse days to come. There's no weathering the storm. You're suck in a bad dream. When treatments like #NurOwn & #Tofersen work for some, U.S. FDA must approve. Let's end the suffering!!

We have a meeting Monday to go over my will (sorry The ALS Association not with your people). I love my family. I want to live! I can't fathom giving $ to an org that sits on tens of millions in rainy day funds. Look outside! #ALS is an epic storm! Patients need #NurOwn! #NurOwnWorks

Our grandchildren will never know us without your help @senrobportman Sherrod Brown Please cosponsor S1813 - the ACT for ALS. Please please urge the FDA to approve NurOwn immediately. Day 82 of begging for our lives.

ALS-THE FORGOTTEN DISEASE ALS ACCESS No More Excuses ALS Watchdogs! Dr. Janet Woodcock Eric Braeden Maurice Benard Dr. Woodcock you Don't Understand the HORRORS of ALS Reading about it is NOT LIVING IT Medical Journals really don't explain DYING a little every hour of everyday NEED HELP #NUROWN4LIFENOW