🧭 Navigating Grief & Genetic Testing 🧬 How does genetic testing intersect with grief? 🎧 Tune in to this special bonus episode of the #RememberMePodcast with our very own Erynn Gordon here: …ulin-information-navigator.webflow.io/resources/how-… #FTD #GeneticTesting #GriefJourney #ProgranulinNavigator

We’re attending the #AAGP2025 in Phoenix, AZ 📅 March 14-16, 2025 🎯 Sheraton Phoenix Downtown, Phoenix, AZ Come find us at our booth—we’d love to connect and share how we’re supporting individuals and families affected by #FTD 💜 #PrograngulinInformationNavigator

🩶 🧬 Why Genetic Testing & Clinical Trials Matter: Meet Betsy Hall and learn about her journey with GRN-FTD🩶🧬 Watch her full story and learn how you can make a difference: 🔗 lnkd.in/g6RX5SeB #ProgranulinInformationNavigator #clinicaltrials #EndFTD

🧬Thinking about genetic testing for #FTD? If you have a family history of FTD, you may have questions about when—and whether—to get tested. We break down what presymptomatic #genetictesting involves, the benefits and risks, and what to expect. Start here: l8r.it/cfsm

April is #ParkinsonsDiseaseAwarenessMonth – but did you know that symptoms of Parkinson’s and #FTD overlap?⁠ Both conditions affect movement, cognition, and behavior. Talk to your doctor about the possibility of FTD or Parkinson’s disease if experiencing these symptoms.

🤝Help your patients navigate #genetictesting and #ClinicalTrials for Frontotemporal Degeneration (#FTD). We offer clear, accessible resources designed to support providers in guiding families and individuals. Learn how: 📷progranulinnavigator.org/providers #Neurology #ProviderResources

Heading to #AFTD2025? Progranulin Information Navigator will be exhibiting there. Stop by our booth! We’re here to answer your questions about #GeneticTesting, #clinicalresearch opportunities, and #FTDSupport for the #FTDCommunity. 📲Get event info: theaftd.org/education-conf… #FTDSupport #FTD

Thinking about joining a clinical trial for FTD? 🧬 You're not alone—we break down the steps to help you feel informed and supported. Start here 👉 progranulinnavigator.org/individuals-an… #FTD #GeneticTesting #ClinicalTrials #Neurodegeneration #FamilySupport #FTDResearch

📣 Attending #APA2025 in LA? Learn how Progranulin Information Navigator supports families + individuals facing #FTD with free genetic counseling, clinical trial info & more.📍Stop by booth #1502 to connect—#psychiatrists play a key role in early, accurate diagnosis. #Neurodegeneration #EndFTD

Thinking about a clinical trial for FTD? 🧠 Symptoms like behavior or language changes are often misdiagnosed. Trials help drive progress. Learn more: bit.ly/4dRzYJV #FTD #ClinicalTrials #EndFTD #GeneticTesting

🧠 Is your loved one acting in unfamiliar or out-of-character ways? It could be Frontotemporal Degeneration (#FTD)—an underrecognized form of dementia in people under 60. Learn what to watch for and how to get help, including free genetic testing.👉 bit.ly/4kkPMGO

We’re headed to #AAIC2025! Visit Progranulin Information Navigator at Booth #641 to learn how we're supporting FTD families with free genetic testing, counseling & research tools. 📅 July 27–31 | 🏬 Toronto, CA 🤝 Let’s Navigate FTD Together. 🔗 progranulinnavigator.org #FTD #AlzheimersAwareness

🧬 Thinking about genetic testing? Learn about: 📅 Timing for insurance 🛡 Coverage options 📖 GINA protections 👨‍👩‍👧 Family history impact 🔗 progranulinnavigator.org/resources/thin… #FTD #GeneticTesting #InsurancePlanning

🧬 Thinking about genetic testing? Learn about: 📷 Timing for insurance 📷 GINA protections 📷 Family history impact 📷 progranulinnavigator.org/resources/thin… #FTD #GeneticTesting #InsurancePlanning

💙 It’s #FTDAwarenessWeek 💙 FTD is often misunderstood — Symptoms usually start with changes in behavior, language, or personality—not memory. We provide access to free genetic counseling, testing & research connections. Join us this week. 👉 progranulinnavigator.org #EndFTD

🔬 #FTD research needs you. Families make progress possible — participation in studies drives treatments forward. Find opportunities in our searchable research directory: progranulinnavigator.org #FTDAwarenessWeek2025 #endftd

🧠 Every study moves us forward. Alector’s Phase 3 trial of latozinemab for 𝘎𝘙𝘕-FTD did not significantly slow disease progression, but it’s an important step in #progranulin research + our shared effort to better understand #FTD 📑 progranulinnavigator.org/resources/news #FTDResearch #EndFTD

“𝐓𝐡𝐨𝐬𝐞 𝐰𝐨𝐫𝐝𝐬 𝐜𝐡𝐚𝐧𝐠𝐞𝐝 𝐞𝐯𝐞𝐫𝐲𝐭𝐡𝐢𝐧𝐠.” After years of confusion, one wife finally had an answer: her husband’s changing behavior was FTD caused by a GRN mutation. 🔗 progranulinnavigator.org/resources/when… #FTD #Progranulin #GeneticTesting #EndFTD

🎧 New on the #RememberMePodcast: @ProgranulinNav shares expert insight on the role of #genetictesting in #FTD — when to consider it, what to expect, and how results can guide care and research. Also featuring @CureGRN, @CureMAPTFTD & @End_the_Legacy. 🔗 progranulinnavigator.org/resources/shou…

🧠 Investigator Spotlight: Therapeutic Optimization Dr. Roberson is revealing how modifying #progranulin impacts the efficacy of gene therapy in mouse models — insights to drive therapies for progranulin-related disease. Grateful to all our featured investigators this month. 💙