Project FAVA (@projectfava) 's Twitter Profile
Project FAVA

@projectfava

Project FAVA: nonprofit working to drive medical research to treat the painful fibro adipose vascular anomaly, a rare disease connected to the PIK3CA mutation.

ID: 1148059502442418177

linkhttp://www.projectfava.org calendar_today08-07-2019 02:41:30

9 Tweet

76 Followers

27 Following

Project FAVA (@projectfava) 's Twitter Profile Photo
Project FAVA
@projectfava

6 years ago

We believe in a #PainFree future for all people living with FAVA. Do you? projectfava.org

Project FAVA (@projectfava) 's Twitter Profile Photo
Project FAVA
@projectfava

6 years ago

Project FAVA youtu.be/omZr-IeoYzA via YouTube

National Organization for Rare Disorders (NORD) (@rarediseases) 's Twitter Profile Photo
National Organization for Rare Disorders (NORD)
@rarediseases

5 years ago

NORD is proud to announce the launch of the COVID-19 Critical Relief Program for #raredisease community impacted by #COVID19. The program supports patients & families facing financial challenges & helps with essential non-medical expenses. Read more: rarediseases.org/nord-launches-…

C. van der Vleuten (@hecovannijmegen) 's Twitter Profile Photo
C. van der Vleuten
@hecovannijmegen

4 years ago

Sirolimus Leads to Rapid Improvement in Fibroadipose Vascular Anomalies ISSVA #FAVA

Sirolimus Leads to Rapid Improvement in Fibroadipose Vascular Anomalies <a href="/ISSVA_org/">ISSVA</a> #FAVA
Project FAVA (@projectfava) 's Twitter Profile Photo
Project FAVA
@projectfava

4 years ago

proserarediseaseday.kudoboard.com/boards/virtual… #RareDiseaseDay love for those living with FAVA and other PROS conditions

Project FAVA (@projectfava) 's Twitter Profile Photo
Project FAVA
@projectfava

4 years ago

What do you know about FAVA? Click to find out what you should know from the real experts: those suffering from it. #RareDisease #RareDiseaseDay Rare Disease Day @rarediseasesint National Organization for Rare Disorders (NORD) Global Genes

Guillaume Canaud (MD, PhD) (@canaudlab) 's Twitter Profile Photo
Guillaume Canaud (MD, PhD)
@canaudlab

3 years ago

Fantastic news today for patients with PIK3CA related disorders (PROS)! Alpelisib obtained FDA approval. This is for us a fantastic achievement. We started in 2016, identified alpelisib (BYL719) has a promising compound and developed a mouse model. 1/n fda.gov/drugs/resource…