Patient Pathways are important tools for defining the best care for #patients Watch our expert explain the patient #pathway on venous #malformations in detail and achieve proper #diagnosis. Click the link ➡️ buff.ly/3GZ686m #MedTwitter #vascularanomalies #RareDisease

The VASCA winter #meeting in Brussels was wonderful! Read our latest #article to get all the info and the highlights from the meeting! Click the link for more ➡️ buff.ly/3jLONpC #vascularanomalies #RareDisease #events #news

Stay informed!📚 Dive into the special issue on the European Journal of Medical Genetics from #VASCERN with insightful articles from our rare disease working groups. Get ready to learn something new! #KnowledgeIsPower #rarediseases #rarediseaseawareness #medicine #research

May is NF Awareness Month, a time for the NF community to harness their power, drive awareness & educate those around them. This year we will be organizing meet ups in Dublin and Cork, having a publicity campaign & lighting up buildings across the country in blue and green.

The VASCERN-VASCA Diagnostic and Management Pathways for Venous Malformations now published in JoVA, the Journal for Vascular Anomalies. I hope useful to many clinicians taking care of #vascular anomalies. #VASCAPA, #HEVAS, #VASCERN, #ReVAMP, #VACure journals.lww.com/jova/Fulltext/…

🙌We are incredibly proud of the #patient advocates from our Vascular Anomalies working group! Their abstract on the VASCA magazine has been published in the Orphanet Journal of Rare Diseases OrphanetJournal at BMC. Click the link to learn more👉buff.ly/3P2g8RV #sharecarecure

David O’Donovan – brilliant reconstructive surgeon was held in the highest regard by colleagues and patients alike irishtimes.com/obituaries/202…

📢 Exciting news! Discover our essential do's and don'ts for managing severe/rare infantile #hemangiomas. It is a must-read, packed with valuable insights to help parents and caregivers navigate managing this disease confidently. Download and share➡️ buff.ly/446Q64D

📚Calling all medical students & interns in #European universities! The 1st edition of the #VASCERN Summer School is here. This Summer School offers a unique hybrid format with on-site classes in Paris. 📅 Deadline to apply: Nov. 19, 2023 ℹ️ More info: bit.ly/3RKD0Xs

#ResearchHighlight Promising Sirolimus treatment breakthrough for life-threatening head and neck lymphatic malformations. This study offers hope for improved quality of life. Read more here👉 bit.ly/498Fghx #MedicalResearch #RareDisease #LymphaticMalformation

Due to an ongoing incident in Parnell Square, patients are advised not to travel to the hospital this evening unless absolutely necessary. The hospital is fully operational at this time.

📽️#Throwback to our insightful webinar on managing Severe & Rare Infantile #Hemangioma. Learn about key 'red flags‘ & management and follow-up recommendations. A vital resource for clinicians treating this rare condition. Watch & learn➡️ bit.ly/48k2VKa #rarediseases

#ResearchHighlight: Our VASCA Working Group paper on the diagnosis and management of #VenousMalformations offers expert consensus patient pathways to help clinicians toward efficient diagnostics and management of patients. Give it a read👉bit.ly/49BZW0X #rarediseases

Interested in #genetic #testing for #Vascular Anomalies? #VASCERN VASCA studied medical literature and curated genes known to have #somatic / #mosaic pathogenic variants associated with vascular anomalies.link.springer.com/article/10.118… #VASCAPA #HEVAS #CMTC #VASCERN #REVAMP #ESHG #ASHG

What a journey at #VASCERNDays2024! Day 2 brought case discussions, impactful RDWG sessions, & our ePAG representatives discussing patient-centered care. A big thank you to all who joined us in person & online! 🙏 Together, we’re building a stronger foundation for vascular

💙 Ever felt alone on your health journey? The 2nd Edition of the VASCA Magazine is here to remind you that you’re not. Read it on our website ➡️ vascern.eu/app/uploads/20… #RareDisease #VascularAnomalies #PatientStories #HealthCommunity

🩺Kaposiform Hemangioendothelioma (KHE) is rare, but expert #care shouldn’t be. Our new patient pathway provides step-by-step guidance for #diagnosis & #treatment to improve care outcomes. 👉 Access now: bit.ly/KHEpathway #RareDisease #VascularHealth #PatientCare

👶 What should you do if your baby’s #InfantileHemangioma ulcerates? We’ve got expert-backed DO's✅and DON'Ts❌to help your baby heal safely. Swipe through to learn more, and download the full factsheet here➡️bit.ly/4gA1yMh #RareDiseases #InfantCare #VascularHealth

🎉Exciting news! We are proud to welcome young doctors as third representatives across our Rare Disease Working Groups. These passionate professionals bring fresh energy to improve patient care. Read more👉bit.ly/4a78aiV #RareDiseases #VascularHealth #MedTwitter

Join Team NF Ireland for the Vhi Women’s Mini Marathon 2025💙 Walk, jog, or run with us on 1st June 2025 in Dublin and help raise vital funds for NF Ireland. 🎽 Sign up & get your fundraising pack today. 📩DM us or email [email protected] for the registration link💙 #NFIreland