Maddy Warren (@queenofdialysis) 's Twitter Profile
Maddy Warren

@queenofdialysis

Market Access, Advocacy & Policy Consultant, kidney patient campaigner, skydiver, TEDx speaker, amateur theatre🏋🏼‍♀️🏇🐈💃25 years thriving on home #dialysis

ID: 411376778

linkhttp://www.youtube.com/playlist?list=PLcJQwb_6plTwhSKzDAKcDZ3cN_kpAloKM calendar_today13-11-2011 10:11:32

4,4K Tweet

4,4K Followers

3,3K Following

Kidney Care UK @kidneycareuk.bsky.social (@kidneycareuk) 's Twitter Profile Photo

📣 Today, we released our new report on transplant care in the UK kidneycareuk.org/about-us/polic… 🚨 The fact that 6,250 people are waiting for a #KidneyTransplant is shocking. It's the highest the list has been in a decade, & a 10% rise over the last year. We need action to change this

📣 Today, we released our new report on transplant care in the UK kidneycareuk.org/about-us/polic…

🚨 The fact that 6,250 people are waiting for a #KidneyTransplant is shocking. It's the highest the list has been in a decade, & a 10% rise over the last year. We need action to change this
Adrian Brown PhD RD (@brownadey) 's Twitter Profile Photo

ATTENTION! Do you work in #kidneyfailure or #transplantation in the UK. Do you help people with #obesity & #kidneyfailure on dialysis? If so please complete our NEW survey on how kidney services help people to lose weight. Have your say & please RT link: redcap.idhs.ucl.ac.uk/surveys/?s=883…

ATTENTION! Do you work in #kidneyfailure or #transplantation in the UK. Do you help people with #obesity & #kidneyfailure on dialysis? If so please complete our NEW survey on how kidney services help people to lose weight. Have your say & please RT link:

redcap.idhs.ucl.ac.uk/surveys/?s=883…
Kidney Research UK (@kidney_research) 's Twitter Profile Photo

We're calling for urgent action to address social and economic inequalities. Our #TimeToAct report on #KidneyInequalities shows how age, sex, education, location or lack of wealth persist, and can lead to higher risk of kidney disease👇 bit.ly/3xWLseB

We're calling for urgent action to address social and economic inequalities. Our #TimeToAct report on #KidneyInequalities shows how age, sex, education, location or lack of wealth persist, and can lead to higher risk of kidney disease👇

bit.ly/3xWLseB
Maddy Warren (@queenofdialysis) 's Twitter Profile Photo

People are paying 1000s to have plasmapheresis as a wellness treatment. WTF!!! They’ll be marketing #dialysis next to healthy people as a kidney detox 😭😭😭 theguardian.com/wellness/artic…

Maddy Warren (@queenofdialysis) 's Twitter Profile Photo

Does anybody know if it’s standard policy in Mexico if you’re a visitor dialysing there you have to be accompanied by someone at all times during #dialysis in case of emergency? Bit tricky when you’re travelling solo 🙈😂 & also I’ve dialysed solo at home 25 years w/no issues

Nephrology Journal Club (@nephjc) 's Twitter Profile Photo

NephJC is ten years old! Help us celebrate by by donating to keep NephJC reader supported and free of industry support. nephjc.com/pledge-drive-24

Maddy Warren (@queenofdialysis) 's Twitter Profile Photo

I do not see any #kidney content on here anymore nor any of my #dialysis friends’ posts - just rubbish and ads 😢 are people still using X or where is #nephtwitter these days? I miss how much I used to learn and find out on here (photo for the algorithm my swim yesterday ❤️)

I do not see any #kidney content on here anymore nor any of my #dialysis friends’ posts - just rubbish and ads 😢 are people still using X or where is #nephtwitter these days? I miss how much I used to learn and find out on here (photo for the algorithm my swim yesterday ❤️)
Nikhil Shah MBBS DNB(IM, Neph)🇨🇦 (@dr_nikhilshah) 's Twitter Profile Photo

Hey Maddy, Maddy Warren I have stopped depending on the algorithm/feed for X. Created lists of genuine people I look at for nephro content and I still get what I am here for. Works well for me. x.com/i/lists/186462… x.com/i/lists/123544… #NephPearls #NephTwitter

Hey Maddy, <a href="/queenofdialysis/">Maddy Warren</a> 
I have stopped depending on the algorithm/feed for X.
Created lists of genuine people I look at for nephro content and I still get what I am here for. Works well for me. 
 
x.com/i/lists/186462…
 
x.com/i/lists/123544…

#NephPearls #NephTwitter
Nephrology Journal Club (@nephjc) 's Twitter Profile Photo

Nominations for #NephJCKidneys awards are open until 9/20/24 🗳️ Let's spot the talented, worthy people in our community! Is there anyone we cannot miss from the list? nephjc.com/news/2022/9/18…

Maddy Warren (@queenofdialysis) 's Twitter Profile Photo

My sad post attracted loads of great suggestions for keeping track of #kidney content on X so sharing below. I feel heartened that our community is still here ❤️ I use instagram a lot these days to post #dialysis life & also LinkedIn when I remember - pls do follow/share yours!

Maddy Warren (@queenofdialysis) 's Twitter Profile Photo

Who’s coming to Dialysis Society conference? I will be co-facilitating a workshop on home HD training techniques & tips on Weds afternoon, we would love to see you there. Will also be sharing my extensive guide to tackling self-needling phobia #homedialysis #vascularaccess

Who’s coming to <a href="/DialysisSociety/">Dialysis Society</a> conference? I will be co-facilitating a workshop on home HD training techniques &amp; tips on Weds afternoon, we would love to see you there. Will also be sharing my extensive guide to tackling self-needling phobia #homedialysis #vascularaccess
National Institute for Health and Care Research (@nihrresearch) 's Twitter Profile Photo

Dialysis is a life-saving treatment for people with #KidneyFailure, but it can also be intensive & gruelling. Our new #NIHRevidence Collection brings together examples of research that could improve care. ➡️ evidence.nihr.ac.uk/collection/dia… Maddy Warren Diary of a Kidney Warrior

Dialysis is a life-saving treatment for people with #KidneyFailure, but it can also be intensive &amp; gruelling.

Our new #NIHRevidence Collection brings together examples of research that could improve care.
➡️ evidence.nihr.ac.uk/collection/dia…

<a href="/queenofdialysis/">Maddy Warren</a> <a href="/diaryofakidneyw/">Diary of a Kidney Warrior</a>
Maddy Warren (@queenofdialysis) 's Twitter Profile Photo

It was a pleasure to join this KDIGO EDTNA/ERCA session highlighting the key role nurses play in identification & management of common symptoms in #dialysis. An effective MDT approach with patients & nurse leaders at the heart is crucial for better QoL & reduced symptom burden

It was a pleasure to join this <a href="/goKDIGO/">KDIGO</a> <a href="/EDTNAERCA/">EDTNA/ERCA</a> session highlighting the key role nurses play in identification &amp; management of common symptoms in #dialysis. An effective MDT approach with patients &amp; nurse leaders at the heart is crucial for better QoL &amp; reduced symptom burden
Fabrice HURÉ - Dialyse - E-Santé - SportSanté (@lmdslefilm) 's Twitter Profile Photo

A LIFE JOURNEY BEYOND SPORT! #dialysis #inclusion 📷 A new Article: "The diagonal of my dreams", an adventure that matches my passion for sport, but also my commitment to long night hemodialysis (HDLN). 👉vivresamaladierenale.com/un-parcours-de…

A LIFE JOURNEY BEYOND SPORT! #dialysis #inclusion 📷
A new Article: "The diagonal of my dreams", an adventure that matches my passion for sport, but also my commitment to long night hemodialysis (HDLN).
👉vivresamaladierenale.com/un-parcours-de…
KDIGO (@gokdigo) 's Twitter Profile Photo

There is still time to register for the next ISN-KDIGO webinar tomorrow, November 19, at 9:00 AM CET. Register: ow.ly/IbkU50U5waj Don't miss this opportunity to learn evidence-based strategies for improving the dialysis experience, making treatment more tolerable, and

There is still time to register for the next ISN-KDIGO webinar tomorrow, November 19, at 9:00 AM CET.  

Register: ow.ly/IbkU50U5waj 

Don't miss this opportunity to learn evidence-based strategies for improving the dialysis experience, making treatment more tolerable, and