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Excited to announce we are hiring a Research Project Manager.... An excellent opportunity for a highly motivated & organised individual capable of working under own initiative to drive forward patient focused rare disease research in Ireland. Full details bit.ly/RPM-JobDesc

Join us in urging #EUELECTIONS2024 candidates to champion the #RareDisease community in Europe! Together, we can shape a future where no one is overlooked. Read our glossary to get #RareAware, created in partnership with rare disease patients and families! rarediseaseresearch.ie/wp-content/upl…

So important that patients get access to a treatment that will improve their lives. Still looking for transition solutions in Ireland where this is available to children but not adults Rare Disease Clinical Trial Network, Ireland Rare Diseases Ireland Denis Naughten Irish Endocrine Society

⛵️| SAILING Dickson Waddilove sit in 2nd place at the end of Day Two in Marseille 💨 With an 8th place finish in the final race of the day. Two more days of the opening series remain. #teamireland #paris2024sailing

Exposure to human milk in early life associates with lower preteen adiposity, irrespective of duration #WBW2024 ⁦Sophie Callanan⁩ ⁦Rachel Crowley⁩ ⁦Ciara⁩ ⁦Dr Patrick Twomey⁩ ⁦UCD Perinatal Research Centre⁩ ⁦University College Dublin⁩ ⁦⁦NCRC⁩ pubmed.ncbi.nlm.nih.gov/39074558/

🧵Curious about what the RDCTN Journal Club is all about? 🤔 It’s not just another meeting—it’s a chance to explore research projects that are of interest for anyone passionate about #raredisease! This unique forum is chaired by Dr. Adam James. 1/3

Reopening journal club with a bang! UCD Clinical Research Centre @EJPRareDiseases St Vincent's University Hospital (SVUH) RCSI RAiN @M4RareDiseases UCD Medicine Irish Endocrine Society

Moved from in person joint Irish Endocrine Society Society for Endo meeting to online European Reference Network on Rare Bone Diseases network meeting - SPINNING trying to take up all the collaboration & network opportunities ERDERA Rare Disease Clinical Trial Network, Ireland

Are you a Rare Disease Researcher? Apply to join HRB - RD Catalyst Consortium UCD Medicine Join healthcare professionals, researchers, advocates & people living with rare diseases to boost RD research in Ireland. Apply by 12:00 noon, Nov 11 - Ref 017776 - ucd.ie/workatucd/jobs/

We're THRILLED to see an Irish Rare Disease researcher awarded this prestigious prize by the American Thyroid Association well done Dr Carla Moran! thyroid.org/about-american…

Here is one for the trainees Irish Endocrine Society

📢 Scientific and Medical Calls for Proposals - AFM-Téléthon 2025 📢 AFM-Téléthon launched its calls for proposals to support international research on neuromuscular disorders and rare genetic diseases. Deadlines available here 👉 afm-telethon.fr/en/health-prof…

Rare disease research conference! Final call for abstracts 📣 24th Feb 2025

Butter that's over 2000 years old at the National museum! Nobody wanted to try it.. Rare Disease Day treasure hunt, the sun has come out! #rare

Netsuke at Chester Beatty - wonderful tiny funny animal beings on our treasure hunt made us smile Rare Disease Day #rare

Animal samurai #ShowYourStripes for Rare Disease Day

A tree eating a bench! Rare and wonderful Óstaí an Rí | King’s Inns Rare Disease Day voted most weird thing today

My son Charlie was born with a severe learning disability. For 12 years we never knew what was wrong…..then we got a phone call out of the blue…. Today I’ve written about the amazing scientific discovery that changed our life thetimes.com/article/0bcc68…