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Rare patients and families cannot afford delays or obstacles to receiving quality healthcare. Take action NOW and urge Congress to prioritize several pieces of lifesaving rare disease legislation this #RareDiseaseDay. All it takes is one minute: bit.ly/41ytHhR

How will you you support on Rare Disease Day this year? 💜🌍 Sharing a personal story, joining an event, or simply starting a conversation, every action is a step closer to equity for the 300 million people living with rare diseases. Find out more: rarediseaseday.org

🎙 Rare Disease Day Stories 🎧 This episode explores Noah's journey with neuropathic corneal pain and Meesmann's dystrophy. Despite pain and vision loss, he remained undiagnosed for years, highlighting the issues within the healthcare system Listen here: open.spotify.com/episode/0dwQwo…

Have you heard of Williams Syndrome? Algas was diagnosed at 8 months with this rare genetic disorder. After 4 heart surgeries, he continues to inspire! His journey led to the creation of Centre-Alliance—supporting kids with rare diseases. 💙 Read More: rarediseaseday.org/news/launch-of…

💜🌍 Today is Rare Disease Day! 🌍💜 Together, we stand with the 300 million people worldwide living with rare diseases. In uniting on this day we can raise awareness, advocate for change, and promote a more equitable future! ⚖️ Learn more: rarediseaseday.org

🧬 En el #DíaMundialEnfermedadesRaras, destacamos el compromiso del equipo de Genética del Hospital Sant Joan de Déu Barcelona ES con la formación. Con +7.000 enfermedades raras y diagnósticos que aún tardan 4 años, actualizarse en Genética es clave para mejorar la atención y el apoyo a las familias.

🌍 #RareDiseaseDay: #MoreThanYouCanImagine. ESMO Rare Cancers, new #OpenAccess journal, supports sharing knowledge & data to improve care for patients w/ rare cancers. Because #RareCancers are more common than one might think 🔗ow.ly/sJuM50V85Tg #ESMODailyReporter

💜🌍 Today is #RareDiseaseDay! 🌎💜 The EC has launched new material celebrating the dedication and expertise of the #ERNs that make a tangible difference to the lives of patients with #RareDiseases and their families! Rare Disease Day EURORDIS-Rare Diseases Europe #ERNeu eurobloodnet.eu/news/633/the-e…

En el grupo de Biomedicina Molecular, Celular y Genómica hacemos un gesto por el día de las enfermedades raras Un abrazo a todas las cebras!!! 🦓🦓🦓🦓🦓❤️❤️❤️❤️ IIS La Fe HospitalLaFe Asociación Nacional Investigadores Hospitalarios CIBERER FEDER | Enfermedades Raras Asociación Valenciana de Enfermedad de Huntington Asociación Valenciana de Enfermedad de Huntington Noah Higón Bellver Asociación Corea de Huntington Española (ACHE)

🇮🇹 In Italia oltre 2 milioni di persone convivono con una #malattiarara. Il Telefono Verde Malattie Rare supporta i pazienti e le loro famiglie fornendo le info necessarie ad affrontare e conoscere la patologia. 📞800.89.69.49 o visita 🔗malattierare.gov.it #UNIAMOleforze #RareDiseaseDay2025

Hoy 28 feb es el Día Mundial de las #EnfermedadesRaras: Las ER suponen un desafío global para la ciencia y la medicina, afectan a más de 300 millones de personas en todo el mundo. FEDER | Enfermedades Raras CSIC

Today we publish More than you can imagine: improving the lives of people with genetic, rare and undiagnosed conditions. We make a case for the renewal of the UK Rare Diseases Framework and starts the discussion about what it may look like. ow.ly/tA7C50V8ech

Timely publication of National Rare Disease Office HSE Ireland research in collaboration with Rare Diseases Ireland RARE Ireland "People living with rare diseases reported a need for psychological supports at all stages of their patient journey." Jennifer Carroll MacNeill TD link.springer.com/content/pdf/10…

💜🌍 Today is Rare Disease Day! 🌍💜 Together, we stand with the 300 million people worldwide living with rare diseases. In uniting on this day we can raise awareness, advocate for change, and promote a more equitable future! ⚖️

📍 #Rarediseaseday at Hôpital Bichat Claude-Bernard, AP-HP with @FAVAMult, engaging healthcare professionals on rare vascular diseases & the power of 👉ERNs in specialised care 👉Strengthening collaboration 👉Awareness & access for better patient outcomes #RareDiseases

Rare Disease Day - A Day to Raise Awareness & Drive Action🌟 In 2025, initiatives across multiple continents are bringing attention to rare diseases in diverse and impactful ways. 🖇️Check out what our member oganizations are preparing: irdirc.org/rare-disease-d…

Today is #RareDiseaseDay – a global event raising awareness for people living with rare diseases world wide Rare Disease Day Thank you Olivia Chow & City of Toronto 🇨🇦 for the official proclamation recognizing Rare Disease Day in Toronto!

We’re already planning for Rare Disease Day 2026—and your feedback can help shape it! Tell us what worked, what didn’t, and what you’d love to see next year 👇 🔗 form.jotform.com/250644590758365 #RareDiseaseDay #FeedbackMatters

How do YOU use our tools to raise awareness? 🌍✨ Have you tried any of the #RareDiseaseDay toolkits? We’d love to hear your experience! 💙 Share your thoughts in our quick survey: go.rarediseaseday.org/g1OZ1R

🚨 There's still time to share your thoughts! 🚨 The feedback survey closes Sunday, 6 April. Your input helps make #RareDiseaseDay even better. 💙 👉 Share your thoughts here: go.rarediseaseday.org/g1OZ1R #RareDiseaseDay #YourOpinionMatters