#ENCALS2024 closed. Tack Sweden! Massive honour being recognised alongside an amazing young investigator Rubika Balendra. Thanks to everyone (pwALS, families, collaborator, healthcare professionals, funders etc.) for supporting our research UEA Research Euan MacDonald Centre MND Scotland

Ongoing research recruitment! Are you an informal #stroke #caregiver? Do you meet our criteria or know someone that does? Please share far and wide forms.gle/6PnDXTjoAhrKCz… #apathy #poststroke #ResearchOpportunity

Delighted to share that our new paper has been published and is available on open access Cat Ford Fergus Gracey The Barker / Williams-Gray Lab The meaning of apathy in Huntington's disease: A qualitative study of caregiver perspectives tandfonline.com/doi/full/10.10…

It is with immense sorrow that we are sharing the sad news that Euan MacDonald died today. Euan was an extraordinary man who brought hope and helped transform the lives of countless people living with MND & other disabilities. euanmacdonaldcentre.org/about/news/mes…

Association between self-perceived quality of life (& its subdomains) with disease-specific cognitive & behavioural impairment/difficulties in #ALS: new publication, interesting findings UEA Research UEA Clinical Psychology Psychology at Edinburgh Euan MacDonald Centre Penn State Research doi.org/10.1007/s00415…

Are you an informal #carer of a #stroke survivor? Have you noticed changes in #motivation? Can you help us to understand your experiences? Click the link or scan the QR to participate forms.gle/SezVCWRsYvnPBy… Carers Network Different Strokes OPSYRIS

Hi! As part of my doctoral thesis, I'm looking for some feedback on our research materials, if you're interested please email me at [email protected] #MND #MNDResearch #ClinicalPsychology #PPI #ALS #MNDstories #QualityofLife #MotorNeuronDisease #MotorNeuroneDisease #NHS

Pretty… pretty… pretty good Compassion Focused Therapy (CFT) Clinical Skills workshop CMF in Derby. Lots learnt & lovely people met! Looking forward to continuing to use CFT in practice. With thanks to Paul Gilbert OBE for the awesome delivery & team for the support

And congratulations to Dr. Zachary Simmons of the Hershey ALS Center as the co-honoree of the Forbes Norris Award! #alsmndsymp

We are now recruiting people with MND for this study! If you have any questions or would like to express your interest, please email me at [email protected] #MND #motorneuronedisease #ALS #mndresearch #clinicalpsychology #research #livedexperience #neurodegenerativedisease

New paper: apathy subtypes across time for people with #ALS. Observed changes & negative impacts relating to specific apathy subtypes. Thanks to all patients, their families & collaborators UEA Research Euan MacDonald Centre Research at CPFT. Funded by MND Scotland tandfonline.com/doi/full/10.10…

Over 20 years of research led NCISH to develop a list of 10 key elements for safer care for patients to reduce #suiciderates #NCISH2025

Absolutely excellent Postdoc Researcher job opportunity at The University of Edinburgh looking at the important area of assisted dying, neuropsychological changes and decision making for people with #MND #ALS. Please share widely MND Research Euan MacDonald Centre. See below: elxw.fa.em3.oraclecloud.com/hcmUI/Candidat…

Pre session for #ENCALS 2025 in Turin. Neuropsychology in #ALS working group. Great discussions about clinical practical applications in the field (seems like the way forward) for people with #ALS #MND MND Research MND Scotland Euan MacDonald Centre UEA Research

#ENCALS 2025 is in full swing. Talks on epidemiology (exposome/epigenetics) & outcome measures (ROADS). Do come see our poster on quality of life & apathy subtypes specifically from the perspectives (or self rating) of people with #ALS #MND. MND Scotland Euan MacDonald Centre UEA Research

Day 2 of #ENCALS 2025 begins. Starting off with some great talks relating to imaging, then followed by cognition (!) research in #ALS #MND. Then a sure to be lively artificial intelligence debate & its application to #ALS #MND! MND Scotland MND Research Euan MacDonald Centre UEA Research

Final #ENCALS 2025 day all done. Lovely Italian hosts, great talks & posters! Next year hosted in Madrid. Hopefully see everyone for the MND Association #ALS #MND Symposium with our colleagues to the West in San Diego, USA in December Euan MacDonald Centre MND Scotland MND Research UEA Research

Want to get involved in #MND #ALS research? 🔬 On our website you can get involved in research studies which are: 💊 testing new potential treatments 🩺 aiming to improve diagnosis and care 🧪 trying to understand the causes of MND More info: mndassociation.org/research/get-i…