Rhoda Walker (@rhodajwalker) 's Twitter Profile
Rhoda Walker

@rhodajwalker

Family girl, people person, EDSer, community development facilitator and volunteer. Swing dancer, music lover, absorber of weird facts, joiner of dots

ID: 536801283

calendar_today25-03-2012 22:55:21

419 Tweet

117 Followers

234 Following

Jeannie Di Bon (@jdibon) 's Twitter Profile Photo

Quick research update on our project into the integral movement method for hypermobility. Our published abstract is already available & we are so close to finalising all the data. Fingers crossed for 2024 publication of all the results. #hypermobility

Quick research update on our project into the integral movement method for hypermobility. Our published abstract is already available & we are so close to finalising all the data. Fingers crossed for 2024 publication of all the results. #hypermobility
Jeannie Di Bon (@jdibon) 's Twitter Profile Photo

This is just incredible - less pain, less medication. Replaced with a daily 20 minute class with me online in The Zebra Club. This is an inspiring story. Thanks so much for sharing 🙏🏻. #hypermobility

MedicsforRareDisease (@medicsforrare) 's Twitter Profile Photo

There are 6 lessons now available to complete of the Mental Health and Rare Disease course! 💜💡 To complete, go to learn.m4rd.org! 🦓 Made in collaboration with Rareminds learn.m4rd.org

There are 6 lessons now available to complete of the Mental Health and Rare Disease course! 💜💡

To complete, go to learn.m4rd.org! 🦓
Made in collaboration with <a href="/RaremindsUK/">Rareminds</a> 
learn.m4rd.org
Jeannie Di Bon (@jdibon) 's Twitter Profile Photo

Patient advocacy can be hard with an invisible chronic illness that’s also fatiguing & causes brainfog. Maggie Buckley winner of the The Nancy Rogowski Advocate of the Year Award The Ehlers-Danlos Society this year shared her advice. Full interview in thread.

Patient advocacy can be hard with an invisible chronic illness that’s also fatiguing &amp; causes brainfog. <a href="/MaggieBuckley1/">Maggie Buckley</a> winner of the The Nancy Rogowski Advocate of the Year Award <a href="/TheEDSociety/">The Ehlers-Danlos Society</a> this year shared her advice. Full interview in thread.
Dermot Devlin he/him (@castledd) 's Twitter Profile Photo

£14,000 to install centenary stone at Stormont. £150,000 to install welcome signs in Enniskillen and Omagh. Maybe spend our money on things we actually need and want?

C Fordyce (@c_fordyce) 's Twitter Profile Photo

Exciting times ahead as I start out as Senior Manager for involvement and comm dev and great to be part of #BeingBelfast.

Exciting times ahead as I start out as Senior Manager for involvement and comm dev and great to be part of #BeingBelfast.
Eddie Izzard (@eddieizzard) 's Twitter Profile Photo

Let's just eat the cake mix as it is. #EddieIzzardRemixTour starts TOMORROW!!! Are you coming? Tickets at eddieizzard.com/shows - The Beekeepers

Rhoda Walker (@rhodajwalker) 's Twitter Profile Photo

Can you imagine the impact of losing a sibling! For two amazing people I know, Bill (in the video) & Lucy, the @M4RareDiseases CEO, it has driven them to change the status quo for people with rare. 🦓💪💛 #1in17 #rareaware #daretothinkrare #rareni Genetic Alliance UK Cambridge Rare Disease Network (CamRARE)

National Lottery Good Causes (@lottogoodcauses) 's Twitter Profile Photo

Mae Murray Foundation is making beaches across Northern Ireland more accessible. It provides beach wheelchairs and walking frames to allow disabled people to enjoy the seaside. Vote for them in the #NLAwards by tweeting #NLAMaeMurray. Mae Murray Foundation supported by Sport NI. [9/18]

Mae Murray Foundation is making beaches across Northern Ireland more accessible. It provides beach wheelchairs and walking frames to allow disabled people to enjoy the seaside. Vote for them in the #NLAwards by tweeting #NLAMaeMurray. <a href="/maemurrayfdn/">Mae Murray Foundation</a> supported by <a href="/_SportNI/">Sport NI</a>. [9/18]
Forward South Partnership (@forwardsouthpb) 's Twitter Profile Photo

📢📢Open Botanic is back for 2024! 🎉🎉 Join us on Botanic Avenue on Sunday 15 September 2024! Open Botanic is a free event with lots of games, activates, stall and food! readymag.website/u3041803433/47…

📢📢Open Botanic is back for 2024! 🎉🎉

Join us on Botanic Avenue on Sunday 15 September 2024!

Open Botanic is a free event with lots of games, activates, stall and food! 
readymag.website/u3041803433/47…