🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

Quick research update on our project into the integral movement method for hypermobility. Our published abstract is already available & we are so close to finalising all the data. Fingers crossed for 2024 publication of all the results. #hypermobility

NOW OPEN! Applications are live for the patient group pairing scheme. Apply now! 😀🦓

This is just incredible - less pain, less medication. Replaced with a daily 20 minute class with me online in The Zebra Club. This is an inspiring story. Thanks so much for sharing 🙏🏻. #hypermobility

There are 6 lessons now available to complete of the Mental Health and Rare Disease course! 💜💡 To complete, go to learn.m4rd.org! 🦓 Made in collaboration with Rareminds learn.m4rd.org

Patient advocacy can be hard with an invisible chronic illness that’s also fatiguing & causes brainfog. Maggie Buckley winner of the The Nancy Rogowski Advocate of the Year Award The Ehlers-Danlos Society this year shared her advice. Full interview in thread.

£14,000 to install centenary stone at Stormont. £150,000 to install welcome signs in Enniskillen and Omagh. Maybe spend our money on things we actually need and want?

Exciting times ahead as I start out as Senior Manager for involvement and comm dev and great to be part of #BeingBelfast.

Let's just eat the cake mix as it is. #EddieIzzardRemixTour starts TOMORROW!!! Are you coming? Tickets at eddieizzard.com/shows - The Beekeepers

Can you imagine the impact of losing a sibling! For two amazing people I know, Bill (in the video) & Lucy, the @M4RareDiseases CEO, it has driven them to change the status quo for people with rare. 🦓💪💛 #1in17 #rareaware #daretothinkrare #rareni Genetic Alliance UK Cambridge Rare Disease Network (CamRARE)

Mae Murray Foundation is making beaches across Northern Ireland more accessible. It provides beach wheelchairs and walking frames to allow disabled people to enjoy the seaside. Vote for them in the #NLAwards by tweeting #NLAMaeMurray. Mae Murray Foundation supported by Sport NI. [9/18]

Let’s share this far and wide Michaela Hollywood MBE PKU UK & Ireland Carol McCullough 🦓 ⚡🐬🗿 @speccymcspec An Fear Ciúin Carers NI Christine Collins MBE IPPOSI Andrea Curtin PKU Association IE Rare Disease UK Genetic Alliance UK MSA Trust Health Research Charities Ireland - HRCI Alison McCaw Rhoda Walker

📢📢Open Botanic is back for 2024! 🎉🎉 Join us on Botanic Avenue on Sunday 15 September 2024! Open Botanic is a free event with lots of games, activates, stall and food! readymag.website/u3041803433/47…