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The first overall article about SYMPHONY is published online! doi.org/10.1111/jth.15…

“Responding to unmet needs and working towards embedding ethics into policy making should someday be considered business as usual and not require that we step out of our comfort zone” Dr Sharon Kaur #OGHB22

Just out: When is it impractical to ask informed consent? A systematic review pubmed.ncbi.nlm.nih.gov/35775421/ Sara Laurijssen Martine de Vries Wouter van Dijk Ewoud Schuit Rolf Groenwold Diederick E. Grobbee #researchethics #impracticable #informedconsent

New paper of Sofia di Martino and me: Embracing the European Regulation in The Netherlands: VGO implementation status, its threats and opportunities, #VGO #CTR #researchethics sciencedirect.com/science/articl…

Our #international #multidisciplinary team brings together 31 ethicists, methodologists, trialists, health providers, knowledge users, experts in knowledge translation and stakeholder engagement, patients & members of the public from Africa, Europe, North America & South America

Samen met een aantal experts en wetenschappers die werkzaam zijn in mondiale publieke gezondheid hebben we een brief opgesteld waarin we politici en bestuurders oproepen om de huidige opvangcrisis direct aan te pakken en vooruit te denken op toekomstige stromen van vluchtelingen.

After a fantastic first edition, Rieke van der Graaf and I are pleased to host our Global Health Ethics & Equity summer school again in Utrecht! Join us, Ṣẹ̀yẹ Abímbọ́lá Koiwah Koi-Larbi Amrish Baidjoe, Tarek Meguid @JudithvdKamp @ArnoldLubbers1 S Kaur & others (see next tweet) in July 2023!

📢Join us next 29 November to discuss #Tuberculosis platform trials hurdles, opportunities, and feasibility in LMICs with regulatory, ethics and community representatives. 🔎Check programme👉bit.ly/3gtSOgP 🖊️Register 👉bit.ly/3V0Nwbz #TB #clinicaltrials

Op 7 december presenteren Martine de Vries en ik ons preadvies voor de #NVBe "Waarom de global health ethiek in de Nederlandse bio-ethiek meer aandacht behoeft" nvbe.nl/wp-content/upl… met reacties van Brigit Toebes Amrish Baidjoe @MarcelFVerweij en Evelyn Brakema #globalhealthethics

Probleem van thuiszittende kinderen uit het speciaal onderwijs vanwege een wachtlijst is wel groter dan Zwolle alleen Habtamu de Hoop. Dit speelt door heel NL en met name bij VSO is het schrijnend. Een VSO in Amsterdam heeft al een wachtlijst van 150… destentor.nl/zwolle/kamervr…

20.000 thuiszitters zonder onderwijs! Laat dat even op u inwerken… Wij zijn het zat! Alle kinderen hebben recht op onderwijs, welke vorm dan ook! Daarom deze petitie: Spoedwet #ZeroThuiszitters Help ons een doorbraak te forceren en teken snel ❤️🙏 petities.nl/petitions/all?…

On today's front page of The BMJ, Rieke van der Graaf and I present a critical analysis of the new EU Clinical Trials Regulation on informed consent in cluster trials. bmj.com/content/382/bm…

Overcoming ethical and legal obstacles to data linkage in health research - "It is time to shift our focus from enforcing new laws, into making proper use of the existing legislation." Read More... ijpds.org/news/25-09-23-… #datalinkage #healthdata #dataprivacy #ethics

Amid increasingly complex and connected threats, from pandemics and climate change to conflicts, the #Netherlands remains an essential supporter of World Health Organization (WHO) and global public health. I was pleased to sign today a new partnership agreement with @MinisterVWS Kuipers in support of

⭐ 🌍 Between 15-19 July 2024, Rieke van der Graaf I will organize another edition of the #GlobalHealth Ethics & Equity summer school with many fantastic faculty members (eg Ṣẹ̀yẹ Abímbọ́lá, Amrish Baidjoe, @JudithvdKamp!). More info: utrechtsummerschool.nl/courses/life-s…

We are hiring. Come join us: werkenbijumcutrecht.nl/vacatures/phd-… #researchethics #bioethics #ai #PhD

Please read our new HealthPolicyPlanning paper: “Unfair knowledge practices in global health: a realist synthesis” doi.org/10.1093/heapol… We systematise the complaints literature in GH using epistemic injustice + pose/gaze + realist frameworks. HT: Prince Prince Claus Chair & Australian Research Council DECRA

New article on the moral relevance of the heartbeat in cardiac #organoids. We argue that the heartbeat’s pivotal role in other ethical debates does not translate into moral implications for #cardioids link.springer.com/epdf/10.1186/s… Jannieke Simons

🧬 What does “cure” mean for hemophilia? @liekebaas, Rieke van der Graaf, and SYMPHONY consortium explore the ambiguous use of “cure” in hemophilia, relating it to health and disease concepts. Should we define it clearly? Read more about it here: rpthjournal.org/article/S2475-… Elsevier Hematology

▶️ The final module in our Adaptive #ClinicalTrial Designs series is live! Watch Rieke van der Graaf, @Lennie333 & Eveline Verheijen discuss ethical, administrative, regulatory & logistical considerations in implementing adaptive designs. Read more 👉🏾 ecraid.eu/news/module-6-…