ROS1DERS UK (@ros1dersuk) 's Twitter Profile
ROS1DERS UK

@ros1dersuk

A group for all ROS1+ patients and carers in the UK to provide support and offer information. UK Charity No: 1212647

ID: 1363595985969119249

calendar_today21-02-2021 21:07:50

66 Tweet

132 Followers

229 Following

UKALK+ (@ukalk1) 's Twitter Profile Photo

Currently watching the Lung Cancer Europe webinar on Clinical trials. Very disappointing & disturbing trend across Europe with 60,000 fewer places for patients. Clinical trials offer hope to #lungcancer patients when approved treatments have stopped working. We need to do better.

Currently watching the <a href="/LungCancerEu/">Lung Cancer Europe</a> webinar on Clinical trials. Very disappointing &amp; disturbing trend across Europe  with 60,000 fewer places for patients. Clinical trials offer hope to #lungcancer patients when approved treatments have stopped working. We need to do better.
Hidehito HORINOUCHI (@hhorinouchi) 's Twitter Profile Photo

🔥 Journal of Clinical Oncology ASCO 🆙 ✅TRUST: Taletrectinib in ROS1+ NSCLC 🎯TKI-naïve/pretreated: ORR 88.8/55.8%, Intracranial-ORR 76.5/65.6%, mPFS 45.6/9.7mo 👥 Maurice Perol Nathan A. Pennell MD, PhD, FASCO Misako Nagasaka Enriqueta Felip Dr. Caicun Zhou #LCSM OncoAlert The ROS1ders, Inc. ROS1DERS UK ascopubs.org/doi/full/10.12…

🔥 <a href="/JCO_ASCO/">Journal of Clinical Oncology</a> <a href="/ASCO/">ASCO</a> 🆙
âś…TRUST: Taletrectinib in ROS1+ NSCLC
🎯TKI-naïve/pretreated: ORR 88.8/55.8%, Intracranial-ORR 76.5/65.6%, mPFS 45.6/9.7mo
👥 <a href="/MP_3855/">Maurice Perol</a> <a href="/n8pennell/">Nathan A. Pennell MD, PhD, FASCO</a> <a href="/MNagasaka/">Misako Nagasaka</a> <a href="/EnriquetaFelip/">Enriqueta Felip</a> Dr. Caicun Zhou
#LCSM <a href="/OncoAlert/">OncoAlert</a> <a href="/ros1cancer/">The ROS1ders, Inc.</a> <a href="/ros1dersuk/">ROS1DERS UK</a>
ascopubs.org/doi/full/10.12…
The Oncologist (@oncjournal) 's Twitter Profile Photo

This review summarizes a practical approach to the management of metastatic ROS1 fusion-positive NSCLC, integrating the most up-to-date, evolving evidence behind ROS1 inhibitors and beyond. #ROS1 #LCSM JessicaJLinMD doi.org/10.1093/oncolo…

This review summarizes a practical approach to the management of metastatic ROS1 fusion-positive NSCLC, integrating the most up-to-date, evolving evidence behind ROS1 inhibitors and beyond. #ROS1 #LCSM JessicaJLinMD
doi.org/10.1093/oncolo…
Dr Adam Januszewski (@adamjanuszewski) 's Twitter Profile Photo

🚨Sac-TMT vs. docetaxel in metastatic EGFRmut Lung cancer. RR: 45% vs 15% OS: NR with HR 0.49 PFS: 6.9 vs 2.8 months HR 0.30 Great data. We are fortunate to have MK2870 trial for 3rd line oncogenic driven lung Ca Barts Cancer Centre - good option for patients in UK!

🚨Sac-TMT vs. docetaxel in metastatic EGFRmut Lung cancer.

RR: 45% vs 15% 
OS: NR with HR 0.49
PFS: 6.9 vs 2.8 months HR 0.30

Great data. We are fortunate to have MK2870 trial for 3rd line oncogenic driven lung Ca <a href="/Bartscancer/">Barts Cancer Centre</a> - good option for patients in UK!
ROS1DERS UK (@ros1dersuk) 's Twitter Profile Photo

We’ve just launched our new website! We are fighting for a rare lung cancer that’s been ignored for too long in the UK. We’re a brand new charity (no: 1212647) and need your help to kickstart our mission 🙏 Please consider donating: ros1ders-cancer.uk/donate/

ROS1DERS UK (@ros1dersuk) 's Twitter Profile Photo

Last week ROS1ders UK was UK Parliament to talk about - Inadequate access to life-saving drugs for UK ROS1+ cancer patients - Awareness of this overlooked cancer Grateful to MPs like Sarah Edwards for Tamworth, @DrNeilShastriHurstMP, Martin Vickers & Paula Barker for extending support

Last week ROS1ders UK was <a href="/UKParliament/">UK Parliament</a> to talk about
- Inadequate access to life-saving drugs for UK ROS1+ cancer patients
- Awareness of this overlooked cancer

Grateful to MPs like <a href="/SarahEdwardsTam/">Sarah Edwards for Tamworth</a>, @DrNeilShastriHurstMP, <a href="/MartinVickers/">Martin Vickers</a> &amp; <a href="/PaulaBarkerMP/">Paula Barker</a> for extending support
Nuvalent (@nuvalent) 's Twitter Profile Photo

Today, we shared positive topline results for zidesamtinib in TKI pre-treated patients with advanced ROS1+ NSCLC from our global Phase 1/2 ARROS-1 clinical trial. Learn more here: investors.nuvalent.com/2025-06-24-Nuv…

Catherine.sap (@catherinesap) 's Twitter Profile Photo

ROS1+ Patients (UK) – Next-Line TKIs As discussed, I kindly request Dr. Newsom Davis (Tom Newsom-Davis) to share the following information with oncologists: UK ROS1-positive patients currently have two next-line treatment options: Option 1) NVL-520: An Expanded Access Program

ROS1+ Patients (UK) – Next-Line TKIs
As discussed, I kindly request Dr. Newsom Davis (<a href="/tnewsomdavis/">Tom Newsom-Davis</a>) to share the following information with oncologists:

UK ROS1-positive patients currently have two next-line treatment options:

Option 1)  NVL-520: An Expanded Access Program
Catherine.sap (@catherinesap) 's Twitter Profile Photo

Are you a parent living with lung cancer? We are inviting parents of young people aged 11–24, along with their children, to take part in an online survey about wellbeing and support needs for families affected by lung cancer. Your insights will help improve and shape the support

Are you a parent living with lung cancer?

We are inviting parents of young people aged 11–24, along with their children, to take part in an online survey about wellbeing and support needs for families affected by lung cancer.
Your insights will help improve and shape the support
Lung Cancer Europe (@lungcancereu) 's Twitter Profile Photo

The UK is now the first country to allow bedside manufacture of personalised cancer therapies. It’s a major regulatory shift with global implications that could mean faster, more flexible delivery of treatments built from a person’s own cells. For #lungcancer, that’s the

The UK is now the first country to allow bedside manufacture of personalised cancer therapies.

It’s a major regulatory shift with global implications that could mean faster, more flexible delivery of treatments built from a person’s own cells.

For #lungcancer, that’s the