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Having #LongCovid or another chronic illness leads to so much loss. I've lost so many things in my life due to this debilitating disease. I wanted to share a few.🧵

Heard two people say "post-COVID" and "back in the pandemic" today and wow I am so tired of this rampant pandemic denialism. Thousands of people have died this year already. I guess preventable death and disablement is the status quo now.

The mortality rates for HIV, hep C and polio are zero if we count them in the same way we count Covid deaths - within 30 days of infection. Covid kills some quickly and others slowly - via organ damage, immune dysfunction & blood clots. We can’t live with Covid. #LongCovid

"The mortality of AIDS and hepatitis C is ZERO if measured as COVID mortality is measured: 30 days after acute infection. Serious question for doctors, experts and academics: Why is COVID the exception with respect to measuring long-term consequences?"

1) This is the executive order that establishes Trump as dictator. It’s also how Trump is going to get around the court orders and defy them. By forcing federal employees to do it or be fired. So now the president alone interprets law. There’s a lot to cover, so let’s begin⬇️

Notice the measles test is being done outdoors and HCW is wearing an N95 respirator. Measles AND Covid are AIRBORNE. All healthcare providers should be wearing N95 or better protection. 👇😷

How much does it cost to feed a child with SNAP benefits? $6 per day.   How much does the GOP Budget give away to the rich? $6 million — per billionaire.   The American people won’t forget the GOP's betrayal.

#JourneeInternationaleDesDroitsDesFemmes, nous voulons exprimer notre profonde gratitude envers toutes les femmes touchées par le #CovidLong, ainsi que les proches aidantes (épouses, mamans, amies, enfants de malades...) et les bénévoles dévouées de notre association.

We follow the advice. We pace, we rest. We try supplements. We meditate. We seek tests and trials... But none of this is enough. We can't do this on our own. On #LongCovidAwarenessDay the government must commit to properly investing in finding treatments for #LongCovid.

One of my doctors is a PhD that studies Long COVID. He uses data from RECOVER. They have cohorts of people who, when they started collecting the data, were never infected with COVID. At some point, they became infected. About 10% consistently develop Long COVID

1/ Reading a powerful story about Anna, a 48-year-old lawyer and mother in Gothenburg, Sweden, who's navigating life with post-COVID. Her journey highlights the long and challenging road to recovery. #LongCCovid #LongCovidAwareness

Fatigue with chronic illness is nothing like ordinary tiredness, but healthy people often aren’t able to grasp that concept. It’s something that needs to be experienced in order to understand it. However, many doctors have weighed in on what that fatigue often feels like. Here

💔 Des centaines de milliers de personnes atteintes d’#EM (Encéphalomyélite Myalgique), mais aucune reconnaissance, aucun traitement adapté. 🫥Des malades alités, oubliés, invisibles. #JournéeMondialeEMSFC #12Mai

Tomorrow’s my birthday. If you’ve been following, do me a solid and share this. It’s all I want for my 45th. 45 million views would be nice ;)

Anthropologist Margaret Mead said the first sign of civilization in an ancient culture is a femur that had been broken and then healed. She theorized that in the animal kingdom, if you break your leg, you die because you are unable to run from danger, hunt, and survive. But a

This

New blog entry on the relative strengths of Far-UVC and air purifiers. Kindly repost wherever you can on various platforms, if we do, mods tend to delete it. nukit222.com/blogs/info/far…

“Far-UVC and air purifiers aren't competing technologies- they're complementary ones.” — Nukit

Wes Streeting says he wants to listen to disabled people re #WelfareReformBill. So listen to us now: bin the bill, start over and involve sick & disabled people and organisations from the start. Not as an afterthought. #BinTheBill #TakingThePip #StopTheCuts #bbclaurak

One of the reasons I don't review Far UV technology is because I don't have a way to quantify its efficacy. I can't affordably measure the UV spectra or intensity of the lights. Nor can test how effectively that spectra and intensity kills germs. Instead, I have to just trust