🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

NF affects three times more people than muscular dystrophy, cystic fibrosis, Huntington’s, and Tay-Sachs combined—yet it’s still largely unknown. Invite your friends & family to follow us! #EndNF #CureNFWithJack #NFAwareness

Pediatricians are stunned by the possibility that vaccines proven to save kids’ lives could be banned under a second Trump administration. nbcnews.com/health/health-…

Calling early-stage clinician scientists! Be part of the cure for #Neurofibromatosis. Join the leaders shaping #NF1 research & care. Deadline: 19 days away! Apply now: Francis S. Collins Scholars Program | Neurofibromatosis Research | NTAP (n-tap.org) #NF1Therapies

I am so thankful for the amazing #neurofibromatosis community. Advancing care for rare diseases requires #collaboration and #openscience. The #NF community embraces this reality and Sage Bionetworks.bsky.social facilities the concatenation and repurposing of rare datasets.

The pediatric subspecialty workforce will not be able to be sustained much longer. Our children are in trouble doximity.com/newsfeed/1e894…

🎉New #SpecialIssue "Neurofibromatosis Type 1 (NF1) Tumor Spectrum" led by Dr. Jay Pundavela Jay Pundavela PhD, Dr. Kyle B. Williams Kyle Williams, PhD and Dr. R. Taylor Sundby Taylor Sundby, MD 🧬 is accepting submissions! ⏰ Deadline: 30 September 2025 🔍 More info here: mdpi.com/journal/curron…

Grateful to Children's Tumor Fdn and CureNFwithJack's generous support of our (Mayo Clinic-NIH Clinical Center -WashU Medicine) efforts to move our NF1 #liquidbx #cfdna assay from research to the clinic! Read more: tinyurl.com/4m8mr56h Jack Shern Aadel Chaudhuri, MD PhD Angela Hirbe

My dad @ScottSundby’s first fiction novel is out! A son, who shunned his family’s drug empire for a career in academia, is forced to use his literary talents to save the family business! Check it out below & review on Goodreads or Amazon! bookshop.org/p/books/wordsw…

This moment feels surreal. The funding of cancer research must continue. Cancer is not partisan. Ask for ongoing CDMRP support! ASCO Kidney Cancer KCCure The PCCTC Prostate Cancer Foundation

More than 98% of families in this country choose to vaccinate their young children. But now, vaccine policy is being shaped by the small, extreme minority that doesn’t. This decision doesn’t reflect, protect or support families.

An update from Dr. Sean O’Leary on this morning’s Advisory Committee on Immunization Practices (ACIP) meeting:

The NIH has been amazing for me, but I’m excited for the next chapter: oncodaily.com/blog/r-taylor-… R. Taylor Sundby: Excited to Open the Doors to My Own Lab at Nemours Children’s Hospital/Thomas Jefferson Medical School - OncoDaily #newPI #endNF1 #supportgold #liquidbx