Sail for Epilepsy - Phil Haydon (@sailforepilepsy) 's Twitter Profile
Sail for Epilepsy - Phil Haydon

@sailforepilepsy

Neuroscientist with TBI induced epilepsy, sailing the world's oceans to inspire, raise awareness, raise funds for research & educate. #sail4epilepsy

ID: 995013716172247043

linkhttps://sailforepilepsy.org calendar_today11-05-2018 18:52:11

455 Tweet

440 Followers

409 Following

Sail for Epilepsy - Phil Haydon (@sailforepilepsy) 's Twitter Profile Photo

"Now that I’ve gotten some rest I’m reflecting on the past 5 days. I’m not actually sure what day it is, but what I do know is that there are key moments that rise to the top of my mind, when I think back." Enjoying the Moment: bit.ly/43tKcKp #sail4epilepsy #bermuda12

"Now that I’ve gotten some rest I’m reflecting on the past 5 days. I’m not actually sure what day it is, but what I do know is that there are key moments that rise to the top of my mind, when I think back." Enjoying the Moment: bit.ly/43tKcKp #sail4epilepsy #bermuda12
Sail for Epilepsy - Phil Haydon (@sailforepilepsy) 's Twitter Profile Photo

A key part of any Sail For Epilepsy voyage is sharing it with our followers, especially our Virtual Shipmates. What tools does Phil use for this while he's sailing hundreds of miles offshore? Garmin Marine Garmin Iridium Thales Group #sail4epilepsy youtu.be/jehq5S1U-oI

Sail for Epilepsy - Phil Haydon (@sailforepilepsy) 's Twitter Profile Photo

Less than one day until the double-handed return race from Bermuda to Newport: bit.ly/3X4Yxut "It looks like the first 24h will be sporty with winds at 22kts gusting to the mid 30s and then they will subside, a little." #sail4epilepsy #epilepsyawareness #bermuda12

Less than one day until the double-handed return race from Bermuda to Newport: bit.ly/3X4Yxut
"It looks like the first 24h will be sporty with winds at 22kts gusting to the mid 30s and then they will subside, a little." #sail4epilepsy #epilepsyawareness #bermuda12
Sail for Epilepsy - Phil Haydon (@sailforepilepsy) 's Twitter Profile Photo

Last night was spectacular for the stars & planets. I always enjoy finding the North Star & think of all our Virtual Shipmates that we’ve met in port stops and taught how to find this same star. As the morning broke we were back to clouds. bit.ly/3NadJSE #sail4epilepsy

Sail for Epilepsy - Phil Haydon (@sailforepilepsy) 's Twitter Profile Photo

Meet one of our Virtual Shipmates, Jared, & his family! Phil and Jared first connected by live video while Phil was sailing across the Atlantic Ocean and we've been inspired by his positive attitude despite facing continued challenges: bit.ly/3NTp7DK #sail4epilepsy

Meet one of our Virtual Shipmates, Jared, & his family! Phil and Jared first connected by live video while Phil was sailing across the Atlantic Ocean and we've been inspired by his positive attitude despite facing continued challenges: bit.ly/3NTp7DK #sail4epilepsy
Sail for Epilepsy - Phil Haydon (@sailforepilepsy) 's Twitter Profile Photo

Looking forward to attending this event as a special guest and meeting the local epilepsy community. If you live in the area, I hope you can join us. Visit bit.ly/44AT7dn to buy tickets and learn more. #sail4epilepsy

Sail for Epilepsy - Phil Haydon (@sailforepilepsy) 's Twitter Profile Photo

Thanks to TalkAboutIt.org for the inspiring conversation about #epilepsy and ways we can all set goals and overcome challenges. Have a watch and please share! #sail4epilepsy

Sail for Epilepsy - Phil Haydon (@sailforepilepsy) 's Twitter Profile Photo

Tomorrow Phil & Alex are competing in the Solo-Twin, race from Newport, RI. They will sail for 3 of our Virtual Shipmates, who live on 3 different continents, but are connected by #epilepsy & participating in the One More Step Challenge. youtu.be/vUNMHLUn_j0 #sail4epilepsy

Sail for Epilepsy - Phil Haydon (@sailforepilepsy) 's Twitter Profile Photo

What does Phil do the night before a race? One critical item is planning the voyage route, based on the predicted wind speed and direction. #sail4epilepsy #epilepsyawareness #sailing #epilepsy #offshoreracing youtu.be/hkAgwqfl3IM

Sail for Epilepsy - Phil Haydon (@sailforepilepsy) 's Twitter Profile Photo

We had moments of sheer joy, made an error, had moments of frustration, and near the end, several minutes of furious conditions which were the most challenging that I’ve ever sailed in. Solo-Twin Race recap: bit.ly/45307QP #sail4epilepsy #offshoreracing #epilepsy

We had moments of sheer joy, made an error, had moments of frustration, and near the end, several minutes of furious conditions which were the most challenging that I’ve ever sailed in. Solo-Twin Race recap: bit.ly/45307QP #sail4epilepsy #offshoreracing #epilepsy
Sail for Epilepsy - Phil Haydon (@sailforepilepsy) 's Twitter Profile Photo

unspoken symphony provides non-verbal ways of communicating. It all started when a father explained some of the challenges of having a non-verbal child who suffers from rare forms of #epilepsy. Hear & see our symphony! Try it out yourself: bit.ly/3Kzm8yp #sail4epilepsy

Sail for Epilepsy - Phil Haydon (@sailforepilepsy) 's Twitter Profile Photo

This past week we had the pleasure of meeting epilepsy communities in Canada and WA State. It seems that no matter what state or country we visit, we meet individuals affected by #epilepsy who continue to inspire us. Photos and reflections: bit.ly/3OMgGt8 #sail4epilepsy

This past week we had the pleasure of meeting epilepsy communities in Canada and WA State. It seems that no matter what state or country we visit, we meet individuals affected by #epilepsy who continue to inspire us. Photos and reflections: bit.ly/3OMgGt8 #sail4epilepsy
Sail for Epilepsy - Phil Haydon (@sailforepilepsy) 's Twitter Profile Photo

This weekend's training run marked the 26th voyage leg sailed in 2023! To highlight the prevalence of #epilepsy (1 in 26 people will develop epilepsy in their lifetime) we set a 2023 goal of sailing 2600 nautical miles consisting of 26 independent legs: bit.ly/3ZYO9G0

Sail for Epilepsy - Phil Haydon (@sailforepilepsy) 's Twitter Profile Photo

November is #EpilepsyAwarenessMonth! I believe the stigma surrounding epilepsy is due to lack of knowledge. We can help combat this by talking about #epilepsy. I use sailing to encourage conversations about my epilepsy journey. What will you do to raise awareness? #sail4epilepsy

November is #EpilepsyAwarenessMonth! I believe the stigma surrounding epilepsy is due to lack of knowledge. We can help combat this by talking about #epilepsy. I use sailing to encourage conversations about my epilepsy journey. What will you do to raise awareness? #sail4epilepsy
Sail for Epilepsy - Phil Haydon (@sailforepilepsy) 's Twitter Profile Photo

During #EpilepsyAwarenessMonth, we're highlighting ways our Virtual Shipmates are taking One More Step to live fuller lives. Haley decided to learn to play the guitar, even though she wasn't sure she could do it. This summer she gave us an update. Great job, Haley! #sail4epilepsy

Sail for Epilepsy - Phil Haydon (@sailforepilepsy) 's Twitter Profile Photo

Dispelling some of the myths about #epilepsy. Please share so that together we can all educate and raise awareness. #sail4epilepsy #epilepsyawareness #EpilepsyAwarenessMonth

Sail for Epilepsy - Phil Haydon (@sailforepilepsy) 's Twitter Profile Photo

Phil and co-skipper Alex spend one last day out on the water for the 2023 training season. With their sights set on the Newport Bermuda Race in June 2024, training will begin again in April, after a series of winter projects. youtu.be/9evnumcuYWQ #sail4epilepsy JEANNEAU North Sails

Sail for Epilepsy - Phil Haydon (@sailforepilepsy) 's Twitter Profile Photo

During #EpilepsyAwarenessMonth, we are sharing the amazing things our Virtual Shipmates are doing, to live a full life despite epilepsy! Sean, from Yorkshire, England, is sailing around the world with Clipper Round the World Yacht Race. Follow along at: bit.ly/3RkhdVVHe #sail4epilepsy

During #EpilepsyAwarenessMonth, we are sharing the amazing things our Virtual Shipmates are doing, to live a full life despite epilepsy! Sean, from Yorkshire, England, is sailing around the world with <a href="/ClipperRace/">Clipper Round the World Yacht Race</a>.  Follow along at: bit.ly/3RkhdVVHe 
#sail4epilepsy