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Even if you don't have a terminal disease, don't make the mistake of taking this precious life for granted ❤️ #GratefulHeart

Sending a little duckling energy to each of you & specially to Leanne Yacyshyn Evan Campa Brian Wallach Jen 🌾🌾 @sairysays Sarah Nauser Sandy Morris Seth Poling Steve Gleason - "Live Impossible"

Can this be leveraged for neurology, too, please?

This this this... #OneInch #FuckALS

After Glennon Doyle 's podcast w/ Marisa Renee Lee I bought her book, Grief is Love for my family. My daughter was sobbing next to me yesterday reading her passages out loud & saying "I've never felt so understood." Well alrighty then-I see more book purchases in my future. ❤️💔

Thank you I AM ALS, AnswerALS, Team Gleason & Les Turner ALS Foundation 4 amplifying the priorities of the ALS world for the FDA to approve the safe & effective #AMX0035. Sandy Morris Christa Thompson Nicole Cimbura Becky Mourey Jack Silva Lisa's Legacy for ALS HopOnACure axeALSFoundation

I hope that Merit cudkowicz wakes up every morning and hears how brilliant she is. Because she is. Admittedly I had to read this through more than a few times but wow! Come on ALS science! academic.oup.com/braincomms/adv…

My family makes me laugh If music is on my tobii, they will dance/shimmy in to entertain me They each have their own style 1 exaggerates her shoulders w/a big grin, 1 puts his elbows up really high & 1 puts his finger in the air & says 'wait for it' #Lucky youtube.com/watch?v=SebH8E…

The science is good. Now approve.

On Day 2 (Tues) at 1015am EDT there will be a session where ALS advocates present some problems and direct, deliverable solutions. This is important and we thank @DanielleVsALS for her help to make this happen. The agenda cdc.gov/als/files/2022… Register below...

❤️💔❤️ ALS families are simply amazing.

When your beloved cousin in Canada sends you this "you are simply the most beautiful sky ever, and we love you". High probability of big smiles for the rest of the month. ❤️

It just got a little sweeter. We were listening to some songs from The Big Chill soundtrack and my 84 year old dad just danced in -beautifully I might add. I so wish I could video them to show you from behind my tobii-it is precious. youtube.com/watch?v=3s0Tku…

How much I love this! Thank you - I'm taking all of his badass puppy love. 💪❤️

We all think we understand urgency. Until you have lived under that relentless ALS clock, you don't really grasp urgency. Trust me.

Always ❤️ #Blessed

I just had the best time last year! 🌻 All my favorites within my sight. ❤️ #SandyFest #BestFuneralEver

To the incredible ALS community, many of which have become my closest friends - and even family❤️ The ALS Anaconda has to win. Someday (soon) this will not be the case💪 Please take my baton & run faster & farther. Get us to the winner's circle. It's entirely possible.

And then there were 4. We are the Truest Most Beautiful Love Story. You won't 'move on' but you will move forward-w/all the love I was able to pour into your hearts w/the time allowed. It was my privilege & honor being your mom. Until we meet again my beloveds 💫 #MomIs #SandyIs