
SPAGN
@sarcomapatients
Sarcoma Patient Advocacy Global Network (SPAGN) is the global network of Sarcoma, GIST and Desmoid Patient Advocacy Groups
ID: 372148796
http://www.sarcoma-patients.org 12-09-2011 07:12:35
5,5K Tweet
2,2K Followers
557 Following

Christina's son Dylan told her his shoulder hurt after falling down at school. They went straight to the ER for an evaluation. That evening, she got a really unusual call from the doctor. Hear her story. MIB Agents Osteosarcoma Alliance #SarcomaAwarenessMonth2025 #KnowYourNormal #osteosarcoma


Leg pain. Misdiagnoses. A journey of over 1,500 km. A rural sarcoma survivor in India turned his 3-year search for a diagnosis into a mission to change the system. Read Sandeep's story: bit.ly/SPAGNblog_DF DigiSwasthya Foundation #SarcomaAwarenessMonth #KnowYourNormal #SPAGN


In one week we’ll “Light Up the World for Sarcoma.” Building on the tradition set by Sarcoma Foundation of America, this year it's GLOBAL! Ask your local landmarks to light up the night w/yellow to bring awareness for sarcoma, or shine a light in your own home & post a pic. #SarcomaAwarenessMonth




Sandeep is a Ewing Sarcoma patient whose first symptoms appeared at age 12. It took him 3 years and multiple physicians to get a correct diagnosis. Today he has transformed sarcoma diagnosis and care for rural patients in India. Follow DigiSwasthya Foundation to learn more. #KnowYourNormal



Annie of the LeioMyoSarcoma (National Leiomyosarcoma Foundation) shares her experience as a caregiver to an LMS patient, her husband, Dr. Mitch Achee. #KnowYourNormal #SarcomaAwarenessMonth2025
