SPAGN (@sarcomapatients) 's Twitter Profile
SPAGN

@sarcomapatients

Sarcoma Patient Advocacy Global Network (SPAGN) is the global network of Sarcoma, GIST and Desmoid Patient Advocacy Groups

ID: 372148796

linkhttp://www.sarcoma-patients.org calendar_today12-09-2011 07:12:35

5,5K Tweet

2,2K Followers

557 Following

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Christina's son Dylan told her his shoulder hurt after falling down at school. They went straight to the ER for an evaluation. That evening, she got a really unusual call from the doctor. Hear her story. MIB Agents Osteosarcoma Alliance #SarcomaAwarenessMonth2025 #KnowYourNormal #osteosarcoma

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Wilker is an #LMS patient from Brazil, oncology pharmacist and advocate w/Sarcomunicandonos America Latina. Today he shares the story of his journey to diagnosis & the emotional toll that led him into patient advocacy. #SarcomaAwarenessMonth2025 #KnowYourNormal #LMSawarenessday

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Leg pain. Misdiagnoses. A journey of over 1,500 km. A rural sarcoma survivor in India turned his 3-year search for a diagnosis into a mission to change the system. Read Sandeep's story: bit.ly/SPAGNblog_DF DigiSwasthya Foundation #SarcomaAwarenessMonth #KnowYourNormal #SPAGN

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Over half of sarcoma patients consult ≥ 3 physicians before diagnosis, and only 7.7 % of GPs suspect sarcoma at the first visit. Primary health providers are encouraged to learn sarcoma warning signs to improve early detection. Commit to “No Non‑Answers.” #SarcomaAwarenessMonth

Over half of sarcoma patients consult ≥ 3 physicians before diagnosis, and only 7.7 % of GPs suspect sarcoma at the first visit. Primary health providers are encouraged to learn sarcoma warning signs to improve early detection. Commit to “No Non‑Answers.”

#SarcomaAwarenessMonth
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In one week we’ll “Light Up the World for Sarcoma.” Building on the tradition set by Sarcoma Foundation of America, this year it's GLOBAL! Ask your local landmarks to light up the night w/yellow to bring awareness for sarcoma, or shine a light in your own home & post a pic. #SarcomaAwarenessMonth

In one week we’ll “Light Up the World for Sarcoma.” Building on the tradition set by <a href="/CureSarcoma/">Sarcoma Foundation of America</a>, this year it's GLOBAL! Ask your local landmarks to light up the night w/yellow to bring awareness for sarcoma, or shine a light in your own home &amp; post a pic.
#SarcomaAwarenessMonth
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HEALTH CARE PROVIDERS: Don’t dismiss it. Learn the red flags for potential sarcoma & help your patients get clear answers, quickly. Primary care is often the only window to intercept sarcoma early. Commit to “no non‑answers.” #SarcomaAwarenessMonth2025 #SarcomaSignsAndSymptoms

HEALTH CARE PROVIDERS: Don’t dismiss it. Learn the red flags for potential sarcoma &amp; help your patients get clear answers, quickly.

Primary care is often the only window to intercept sarcoma early. Commit to “no non‑answers.”

#SarcomaAwarenessMonth2025 #SarcomaSignsAndSymptoms
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As a teen, Kurt noticed a painful lump on his leg during football practice, and his mom made him get it checked out. Soon after he was diagnosed w/osteosarcoma. That began his journey to becoming a sarcoma surgeon & scientist decades later. Hear his story. #sarcomaawarenessmonth

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Sandeep is a Ewing Sarcoma patient whose first symptoms appeared at age 12. It took him 3 years and multiple physicians to get a correct diagnosis. Today he has transformed sarcoma diagnosis and care for rural patients in India. Follow DigiSwasthya Foundation to learn more. #KnowYourNormal

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Brazil still faces serious challenges in sarcoma care. But global collaboration is helping close the gap. For patients and families, it’s also a reminder: Sarcoma may be rare, but you are not alone. Our latest blog: bit.ly/SPAGNblog_Braz… #SarcomaAwarenessMonth #KnowYourNormal

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Marloes found a lump in her breast and expected breast cancer. A quick referral and specialized testing identified that she was in fact a Phyllodes sarcoma patient. Hear her story. #KnowYourNormal #SarcomaAwarenessMonth2025

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Annie of the LeioMyoSarcoma (National Leiomyosarcoma Foundation) shares her experience as a caregiver to an LMS patient, her husband, Dr. Mitch Achee. #KnowYourNormal #SarcomaAwarenessMonth2025

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Look back on your sarcoma journey and think of the people who never let you walk alone. Tag them and share one thing they did that carried you through. SPAGN’s member groups across the globe create a support network for thousands.💛 #SarcomaAwarenessMonth2025 #RareButNotAlone

Look back on your sarcoma journey and think of the people who never let you walk alone. Tag them and share one thing they did that carried you through. SPAGN’s member groups across the globe create a support network for thousands.💛

#SarcomaAwarenessMonth2025 #RareButNotAlone