🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

Today, our research department is in Washington, D.C. with our partners at CURA to educate congress on the issues affecting our communities and PKD research! Inspired? Join our advocacy efforts on April 19th for Virtual Advocacy Day. Learn more at support.pkdcure.org/event/pkd-foun…

We are so excited to share that CURA has won PRovoke Media Boutique Agency of the Year award! It has been a great evening in NYC at the award ceremony! This wouldn't be possible without all of our great clients! #SABREAwardsNA #SABREAwards

Today’s Hill advocacy was personal. We had great conversations with 8 House and Senate offices advocating for ACHD/CHD research and care. Thank you ACHA for entrusting CURA as your advocate!

ACHA staff and volunteer leadership were back on Capitol Hill this week meeting with Senate and House offices regarding workforce legislation impacting the ACHD community. #chdadvocacy #chdawareness #achalive #chdworkforce

Mayor McNamara Tom McNamara Did you see that the Rockford Ready campaign is up for Best in Health Equity by PRWeek? #hometownproud

"Fighting for the least, the lost, and the left behind" - Minority Leader Hakeem Jefferies

New Medicare guidance on the coverage of post-transplant tests has led health providers to cancel orders and left patients in the lurch.⁠ trib.al/JjGqcBw

We're on the Hill today with Honor The Gift urging members of Congress to sign a letter addressing a recent billing article limiting Medicare patients' access to non-invasive tests for organ rejection in transplant patients. Learn more here: ow.ly/6B8i50OQKP1

It was an incredible experience participating in an all-day workshop working towards building a roadmap to provide better maternal care research, care, and outcomes for women with ACHD. More to come!

People have asked me, “What’s the purpose of an ACHD registry?” 👇👇 Leigh Kamping-Carder does a great job explaining the vision and purpose of the Congenital Heart Initiative in her most recent HeartDialouges newsletter.

For every extra year on Medicaid, a child earns 0.5% more annually in adulthood, the CBO says. The implication? Medicaid is both cheaper and cutting it more expensive than thought. Tax Cuts Don’t Pay For Themselves. A New Paper Says Medicaid Might. huffpost.com/entry/medicaid…

It was a pleasure to meet with my old boss yesterday about th importance of continued #CHD research & education funding at CDC.

Last week, Senator Dick Durbin met with ACHA on Capitol Hill to discuss building support for the Congenital Heart Futures Reauthorization Act (CHRFA) of 2024. This week, you can keep the momentum going by attending Wednesday’s webinar to learn more about CHRFA, what it means for the

Met with Christine Wenzl and Cardiologist Dr. Jonathan Cramer from the Adult Congenital Heart Association to discuss the unique challenges faced by adult patients born with a heart defect. Thank you for your important work.