We all stand on the shoulders of giants. I knew Dr. Elizabeth "Betsy" Mellins as dedicated, keen, rigorous, & kind. Her contributions to #pedsrheum & antigen presentation were giant. med.stanford.edu/profiles/eliza… CARRA SJIA Foundation

At the UCAN conference in Toronto. Dr. Rae Yeung introducing the conference and the research partnerships that power this conference and project

Brian Feldman talking about disease classification.

Impact of JIA. A health economist perspective about the total costs including the layers of the iceberg generally not looked at. #cabc2024

Bas vastert compared labs in Systemic JIA patients with and without arthritis #cabc2024

Dilan dassanayake fom Sick kids discussing how monogenic diseases can help understand pathways for more complex diseases like SJIA. #cabc2024

Daniel Horton about differential rates of successfully stopping meds in different JIAs #cabc2024

Joost Swart about treat to target approaches in JIA #cabc2024

Congratulations to Grant Schulert, MD PhD and Yuki. We are excited that the effort to understand and treat SJIA-lung disease will benefit from this grant.

Happy Mother's Day to all the mothers out there caring for their kids with a rare disease. I hope you get to have a restful day filled with laughter and joy. #MothersDay #curesjia

SJIA/Still's Rare Disease Day ahead! Social Hour for patients and caregivers on March 8, 2025, 10:00 AM ET. Register on link below. #cureSJIA #rarediseaseday 🔗 systemicjia.org/rare

The truth is that the scientific process is horribly inefficient and wasteful. But the solution is NOT cutting funds and it’s NOT top down guidance of what should be studied. Instead, we should revolutionize how we publish and improve peer review.

At the Palo Alto Stand Up For Science gathering. Great to see energy. Mixed crowd including scientists from Stanford. Cars passing by honking which leads to cheer every time. My son's life was saved by science and I am here to stand with others. #StandUpForScience

Coming up tomorrow. Be there!

I heard some rowdy #IL18eenagers are planning to liven up tomorrow's SJIA Foundation #RareDiseaseDay event. Rashmi Sinha Luciana Pereira

If you want to hear the inimitable Dr. Canna speak, then join us tomorrow. Still a few hours to register (its free!) form.jotform.com/250356728303657

Big news in the world of SJIA / Still's Disease. Emapalumab (gamifant) approved by FDA for MAS Thanks to everyone - the docs, patients & Sobi who worked towards this. SJIA Foundation is grateful to have been a part of this fight thepharmaletter.com/biotechnology/…