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After an awesome conference in Dallas, I have come home inspired with the thought of holding a conference here in Australia for Oceania region.... would you go to... docs.google.com/forms/d/e/1FAI…

Fact Sheets (Dallas conference): smaaustralia.org.au Survey - What would you want to hear at an SMA conference? Click here to fill out the survey:... facebook.com/SpinalMuscular…

SMA Australia will host the SMA 24-Hour Challenge on August 30, to raise much-needed funds to support Australians living with #SMA! Every #donation will be #quadrupled on AUGUST 30. Chris Kessaris is encouraging people to get behind it! #beSMAaware smaaustralia.org.au/news/56-quadru…

SMA Australia will host the inaugural SMA 24-Hour Challenge to raise much-needed funds to support Australians living Spinal Muscular Atrophy (SMA), which is the leading cause of death... smaaustralia.org.au/news/57-zoe-wa…

A new study in the Journal of Neuromuscular Diseases finds that children with SMA type 1 can achieve improvements in motor function after... news-medical.net/news/20180717/…

Did you know that recently #ZacsPlayDay recently won an award? Check the link below. Thank you #Biogen for your support of the SMA community. If you haven't received a FREE book, please email us at [email protected] and we can organise... facebook.com/SpinalMuscular…

Young children with spinal muscular atrophy (SMA) show improvements... smanewstoday.com/2018/07/20/ear…

There's just a little over 5 weeks to go until the SMA 24-Hour Challenge on Thursday, August 30, to raise much-needed funds to support Australians living with SMA. Mark the day in your diaries so... facebook.com/SpinalMuscular…

Its been a hive of activity in the office getting all the hampers and raffle items ready for the Melbourne Gala in a few weeks! Here is a sneak peek of some of the items we have! Last minute... facebook.com/SpinalMuscular…

I was recently interviewed by the beautiful Megan Jaworski. Here is the interview! #inspireothers facebook.com/story.php?stor…

Shift Pharmaceuticals is leading promising research in the United States for a new drug to treat SMA. August is SMA Awareness Month at SMA Australia #beSMAaware hannibal.net/news/20180726/…

A drug shown to be effective in the treatment of babies with #SMA may be effective for muscle control even when treatment is started in children seven months and older, according to a study published in the August edition of Neurology. #beSMAaware medicalxpress.com/news/2018-08-s…

A new experimental method of delivering #Spinraza to people with spinal muscular atrophy #SMA could reduce both the costs & burden of the treatment, potentially allowing more patients access to the therapy, researchers say. #beSMAaware smanewstoday.com/2018/08/29/mor…

Nusinersen, also known as #Spinraza, is beneficial in Spinal Muscular Atrophy patients, even when started late, a new report from France and Belgium claims. #beSMAaware #SMA raredr.com/news/nusinerse…

Great to see Ellie Robertson making headlines today in the Liverpool Champion as she talks about her fight to place #Spinraza on the Pharmaceutical Benefits Scheme. Register: bit.ly/2xrod9c #beSMAaware #PBS

SMA is the no.1 genetic cause of infant death and early diagnosis is crucial. #newborn screening awareness @Sydney_Kids Brad Hazzard SMA Australia @GregHuntMP UNSW ObGyn & Paeds

A Sydney baby is the first in the world outside Nth America to receive a lifesaving gene-replacement treatment under a new #screening pilot. Brad Hazzard said the screening program diagnosed the baby with #SMA, the leading genetic cause of infant deaths. smh.com.au/politics/nsw/s…

Little-known SMA Australia works to provide care for Aussies living with spinal muscular atrophy, the leading cause of death for infants under the age of 2, & was recognised for their life-changing efforts: theadvocate.org.au/inspirational-… #beSMAaware

Spinal muscular atrophy is characterised by muscle weakness from denervation of spinal and bulbar motor neurons. Read more... from Prof Farrar michelle farrar and Dr Kariyawasam. zcu.io/gn41 UNSW Medicine & Health Kids Research #SMA