🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

Another proud moment for us on #RareDiseaseDay...☺️ our volunteer Dave's work features in Genetic Alliance UK's 'More than you can imagine: an anthology of rare experiences' officially published today following launch at Rare Disease parliamentary receptions: tinyurl.com/yc82kzkp

Great to connect with Ashley Dalton MP at Westminster Rare Disease Day Parliamentary Reception yesterday on key issues for the prion disease community. Pictured with Andrew CJD Support Network UK & Prof John Collinge MRC Prion Unit at UCL Institute of Prion Diseases... Looking forward to staying in touch! #RareDiseaseDay 💛

Wonderful to see Iqbal Mohamed MP supporting the CJD Support Network UK community at the Westminster #RareDiseaseDay Reception, meeting with committee member Andrew & volunteer Alice after being invited by constituent Brian, a CJD member. We look forward to staying connected! 💛

Thank you to Peter Dowd MP for tabling questions for the @supportCJD community, and to Ashley Dalton MP and Stephen Kinnock for their responses. Read them in full here: tinyurl.com/mh2uwuhe Further posts on their way with the questions, responses and some thoughts from us! 😊💛

We're pleased to share our final update on CJD Support Network UK's engagement with policymakers around Rare Disease Day 2025, & highlight some work we've been doing since!🌟 👉Click for a summary of our recent activities and to view our Political Activity Statement cjdsupport.co.uk/the-cjd-suppor…

📞The @supportCJD helpline is open on Tuesdays and Fridays, 8am-6pm on 0800 774 7317 Closures for Mar 2025: Tues 25th (all day) Fri 28th (all day) You can also request a call back through our website here:👉cjdsupport.co.uk/helpline/ Thank you for your understanding and support!💛

📢 We're having intermittent email issues. You may experience problems sending to or receiving from our email addresses. We are working to resolve the issue as quickly as possible. Feel free to reach out to us by telephone (0800 774 7317) or social media with urgent messages.

📢 The CJD Support Network is recruiting for National Coordinator📢 🔗 Learn more & apply: cjdsupport.co.uk/job-opportunit… 💛 Please share!

📢 Job still open! We’re aiming to interview for the National Coordinator role at CJDsupport network w/c 26 May — so if you're planning to apply, get your application in soon! 🔗 cjdsupport.co.uk/job-opportunit… Please share 💛

The UK wide NHS nursing team are here to support patients diagnosed with Creutzfeldt-Jakob Disease (CJD) as well as the local professionals involved in their journey. Get in touch by emailing [email protected] CJD Support Network UK #NHSScotland NHS England

You may’ve noticed we’ve been a little quieter than usual. We’re currently recruiting a new National Coordinator & focusing on a smooth handover. Our support services remain active: 📞 0800 774 7317 (Tues & Fri, 8am–6pm) 📧 [email protected] 💬 cjdsupport.co.uk/support-events/