🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

For some, the day we learned of our diagnosis is a happy day. Imagine having your friends and family thinking that you are overreacting or searching for some attention 🤔 👉 Read the testimonies of people who were feeling this way: rarediseaseday.org/page/news/no-o… #RareDiseaseDay

Starting my day with a reminder why we have to work so hard with a wonderful and poignant talk from @[email protected] on his son Bertrand being an accidental pioneer in precision medicine ted.com/talks/matt_mig… via TED Talks

What an incredible way to honor Bertrand’s legacy 💙 so important to help shorten the diagnostic odyssey for rare disease patients everywhere.

For #RareDiseaseDay we need everyone to join the movement to redefine rare! More than 300 million people living with a rare disease, families & carers form the rare disease community 🌎 Rare is many. Rare is strong. Rare is proud. How will you redefine rare❓

The doctors, nurses and carers strongly support a better daily life of the people living with a rare disease and their families Tag here this special person who supports you! #RareDiseaseDay

THE EQUITY ⚖️TOOLKIT FOR PATIENT ADVOCATES IS OUT NOW! Use the #RareDiseaseDay toolkit to advocate for people living with a rare disease and let’s make sure that we leave no one behind! 💪 Download the toolkit here! 👉download2.rarediseaseday.org/2021/Equity_To…

Have you registered for the first RARE on the Road event of the year? Join us March 23 for this Rare Disease Leadership Interactive Webinar for info on the latest rare disease policy and advocacy tips. #CareAboutRare globalgenes.org/rare-on-the-ro…

In honor of #WorldRareDiseaseDay, Behind the Mystery has produced a special that will air on Lifetime on 2/24. In the episode, the team spoke with WEGO Health Patient Leaders William Yank, Travis Flores Kelly Barendt. Don't miss this special! The Balancing Act National Organization for Rare Disorders (NORD)

Applications for this year's #RARECompassionProgram close this week! Help foster an environment of understanding and connection between medical professionals and #raredisease patients through this one-of-a-kind program and apply by 2/28. globalgenes.org/compassion/

You want to advocate for people living with a rare disease but you don’t know how? 🤔 📣 Learn how to advocate using the #RareDiseaseDay equity toolkit! 👉download2.rarediseaseday.org/2021/Equity_To…

Illuminating buildings has become part of #RareDiseaseDay This year we have more than 1⃣5⃣0⃣ buildings changing their colours to raise awareness for people living with a rare disease! 📣Tell us which building you would like illuminated for Rare Disease Day 👇👇👇

It’s Critical for continuity of care that Patients & Parents of pediatric patients, are recognized as trusted & valued members of the health care team #patientsaspartners #bridging thegap

Do you want to find out more about SWAN UK and the work we do? Come along to our information event and hear from families who are affected by #undiagnosed and #genetic conditions: ow.ly/KWx050EhMNH. The All Wales Medical Genomics Service Genomics Partnership Wales (GPW) Tŷ Hafan Children's Hospice

30th April: Undiagnosed Children's Day Let's join efforts 4 the benefit of #undiagnosed #children in the #world SWAN UK (syndromes without a name) SWAN USA SWAN Australia Wilhelm Foundation HeleneCederroth Mikk Cederroth Udninternational UDN Rare Disease Ghana Initiative udninternational.org #equity #health #udnicommunity

We’re on the red carpet! #Oscars

Today is Undiagnosed Rare Disease Day! Learn more about what it means to be #undiagnosed, the #resources available to our undiagnosed #raredisease #community. A special thank you to everyone that shares this info to raise #awareness #UndiagnosedDay RUN tinyurl.com/2ts6unwt

Today is #undiagnosedchildrensday Plz join voices & efforts to raise #awareness, knowledge, data & science. We’ve been on an undiagnosed odessey 15+yrs #hopeforJack Our mission:Find a dx & an individual treatment plan for all #PrecisionMedicine UDN SWAN USA @[email protected]