
Talia Gutman
@talia_gutman
PhD candidate and Research Officer at The University of Sydney working with the SONG Initiative and KHA-CARI guidelines to strengthen consumer involvement
ID: 878138394890481664
23-06-2017 06:31:23
1,1K Tweet
338 Followers
339 Following

Co-production between patients and researchers to improve the high-priority outcome of fatigue Jonathan Craig #inhonourofjrc The Westmead Institute for Medical Research Angela Ju Andrea Viecelli Yeoungjee Cho @allisontong1 Shilpa Jesudason Talia Gutman Nicki Scholes David


.#patientsincluded involved and at the 💜 of BEATCKD Jonathan Craig #inhonourofjrc Talia Gutman Shilpa Jesudason Stephen McDonald @allisontong1 Donna Reidlinger Yeoungjee Cho Andrea Viecelli Nicki Scholes Helen Coolican Germaine Wong ArmandoTeixeiraPinto


For more info re BEATCKD & to register to join our annual #beatckd19 beatckd.org/forum2019/@Jon… Carmel Hawley Karine Manera @Tess__Cooper @allisontong1 Germaine Wong ArmandoTeixeiraPinto Stephen McDonald Shilpa Jesudason AKTN Nicki Scholes Cochrane Kidney + Tx ANZDATA Registry


.Jonathan Craig expounds Jeremy Chapman’s inspiring leadership according 2 the Microsoft Satya Nadella framework HEAR HEAR 👏🏻👏🏻👏🏻 #inhonourofJRC The Westmead Institute for Medical Research Sydney Health David Harris Germaine Wong Jeff Szer Dominique E. Martin Talia Gutman David Tunnicliffe Vincent Lee TTS Transplantation


John Swinnen: Amazing what amazing people can achieve in low resource settings #accesstocareforall @SIUTOrg Germaine Wong #inhonourofJRC Steve Dominique E. Martin Jeff Szer The Westmead Institute for Medical Research @USyd_Westmead Sydney Health Eric Au Jonathan Craig TSANZ Int Society of Nephrology David Harris


Genetics: finding the cause and treating it! Steve #inhonourofJRC The Westmead Institute for Medical Research Kids Research TSANZ Westmead Kids @USyd_Westmead Sydney Health Jonathan Craig Germaine Wong @allisontong1 Eric Au


Consumers, patients & members of the public often say “I took part in research & never heard anymore” we need to get results out to people so they know fantastic results from your research - have a say now #WhyWeDoResearch telethonkids #CAHSresearch

So great to see this out in the twittersphere! #PatientInvolvement #PatientsIncluded @allisontong1 Shilpa Jesudason Jonathan Craig Stephen McDonald Nicki Scholes Carmel Hawley Sally Crowe BEATCKD AKTN Kidney Health จารี คําพร ANZDATA Registry Cochrane Kidney + Tx

Peter Kotanko Kevin J. Fowler Principal The Voice of the Patient American Society of Nephrology @allisontong1 SONG Engaging patients in research SONG Talia Gutman academic.oup.com/ndt/advance-ar…

It is so important that patients are involved in research #patientsinvolved Talia Gutman Nicki Scholes Kevin J. Fowler Principal The Voice of the Patient Dave White Maddy Warren

Registration for our annual forum 12-13 Aug is now open! beatckd.org/forum2019/ Jonathan Craig Stephen McDonald Carmel Hawley AKTN @KHACARI ANZDATA Registry CKR Cochrane Kidney + Tx @allisontong1 Germaine Wong ArmandoTeixeiraPinto Shilpa Jesudason Phil Clayton Yeoungjee Cho Andrea Viecelli


VIDEO: Patient Experience with kidney disease and transplantation in Canada by Craig Settee. Check out his presentation from last month's World Congress of Nephrology in Melbourne World Congress of Nephrology vimeo.com/334559413

.Eric Au presenting at our ECR session on cancer in CKD here’s why: Germaine Wong Stephen McDonald Jonathan Craig ArmandoTeixeiraPinto Shilpa Jesudason Andrea Viecelli Phil Clayton @allisontong1 Yeoungjee Cho Karine Manera Giovanni Strippoli ANZDATA Registry AKTN


Why use observation data & sources of data Eric Au ANZDATA Registry AKTN Germaine Wong Stephen McDonald Andrea Viecelli Phil Clayton Yeoungjee Cho Jonathan Craig ArmandoTeixeiraPinto Carmel Hawley CKR @allisontong1


Standardised mortality ratios for cancer in dialysis & transplant Eric Au Germaine Wong ArmandoTeixeiraPinto Andrea Viecelli Yeoungjee Cho Phil Clayton Stephen McDonald Shilpa Jesudason Jonathan Craig @allisontong1 Karine Manera CKR ANZDATA Registry AKTN


.@SDenegri (Be Part of Research) says “patient and public involvement is fundamentally about relationships and not an intervention” during #PP2019’s first panel session.



